new here, not sure anyone in same boat....

[stef80]

I have had chronic pelvic pain for 9 years now...
I found out i have severe GERD (gastroesophagul reflux disease), IC (interstitial cystitis), mild endometriosis, IBS (irritable bowel syndrome)....
I have chronic pain from the congenital scoliosis and also i broke 3 vertebrae in the middle of my spine 10 years ago....
Lately i have been very depressed since i have been housebound a lot from any and all of my conditions flaring up...
I am on 2 antidepressants(one for depression and one for pain) (generic effexor and amitriptyline)
I have been quite exhausted lately...started iron shots since i was severely anemic....
I have started to wake up with burning pain in my upper back---been taking flexeril for that.....
I am just so sick of feeling sick...
just thought to put my intro in here to see if anyone has any input on any of this and any suggestions....
had many diagnostic tests and such done....
I want to feel normal but i don't remember what that is like....:(
well i hope people are having a good night...well at least good sleeps...
take it easy and take care
:cool:

[911]

i'm sorry you ended up here but welcome , obviosly i am a guy and i cant have some of the issues you have but , i have chronic pain just as you do , i find that i am also depressed at times and i deal with but the pain is unbearable most of the time , i wish i had an anser for you and i hope someonme else here will identifie with you , but most of all i really wanted to welcome you , i have found this site and the people here to be caring , understanding and able to give hope when there is none , glad you came , keep coming back ,,,, dave

[slipnslide]

Stef80,

I really feel for you.:( I've only been dealing with pelvic/abdominal issues and pain off and on for 2 yrs, and don't have half the problems you do:eek:. It's definitely exhausting and depressing.

This is a great forum to ask questions on, or just get support from. I hope you're having a better day;):).

[debhun]

Welcome to the board. I hope you fine what you are looking for here. There are alot of good people with Info. I have had CP for 19+ years. Again welcome

Deb

[Jo6]

you would probably find it hard to believe that so many members are trying to deal with these issues. You take care~~, jump in if you have particular questions.

Anyway, hope you get what you need here.

Jo

[Nana4&cntn]

Welcome to the boards, we all have chronic pain in common. A lot of us have different kinds so you will fit right in.

I also have GERD, but had a hysterectomy years ago, but do remember the major pain prior to having it.

As Jo said just jump in anywhere and ask questions.

Again welcome,
Kathy

[Kathi49]

Welcome Stef! :)

I have GERD or at least I DID have GERD. I had an upper Endoscopy a couple of weeks ago and the Gastro said I didn't have to take Nexium anymore since everything is healed. I find that odd because I THOUGHT GERD was your whole life. :confused: Anyway, also have mild IBS and DID have Endometriosis for YEARS (that stuff is wickeldy painful let alone all the other things you have going on). :( Like Kathy, I also had a hysterectomy 8 years ago. And also have spinal issues. As everyone else said, just jump in with any questions and welcome again. :)

[stef80]

I feel quite welcome here now....
I am always on the IC forum but some of my issues are not really addressed there since no one has gone the same kind of things as me....
don't get me wrong there are people there who have had to get there bladder taken out and have debilitating pain from various issues but i just find that some stuff i could probably find some help elsewhere....and i checked on this site and it has just about every issue to cover so i am thankful that i stumbled on this site...
I find it really hard for people to understand....sometimes once they know that type of stuff i go through (like being housebound for bathroom reasons or pain)
they offer advice but i find some of it, i have all ready done and would have kept up with it if it had helped....
Just frustrating since all these new symptoms pop up and i just want a quick fix because i am kind of getting fed up about it but its hard since i don't know what normal is anymore and yeah just quite frustrating you know??
So i thank you for making me feel welcome here and you will find me poppin up again ;)
i hope people are having an all right day....at least somewhat pain free and not too loopy from pain meds....:D
take it easy and take care
hugs n more hugs to you
thank you so so much :D

[Mark N]

Stef, welcome to our forum. You will find kind compassionate people that have info that will help some of the conditions you have. It is common and many of us have had the feeling of being discouraged after years of CP. What I wouldn't give to feel normal again and to be able to do the things I used to do just as you feel now. It often seems like our conditions are never ending as more conditions crop up. I am glad you found us and come around as often as you want.

[hoops2u]

Hello My Dear,
So sorry to hear you are having such challenges right now. Just remember, this too shall pass. Oh yes it will, the good and the bad and the ugly. hahaha.
Now, sounds llike you are under way too much stress. You may not think so, but it's there, lurking in the background. Are you able to get involved in a gentle yoga group? It is good for teaching breath control and relaxation. I know we all think maybe because we are tired all the time that we relax too much, but illness fatigue is not really healthy relaxation.

So, If you can at all get involved in a small group that teaches gentle yoga or breathing and relaxation techniques, I would get involved post haste. This would at least be a start in making a significant change in your life, andputting you back in charge, where you belong.

I have totally eradicated my IBS and GERD through breathing and relaxation techniques. It is phenominal. I didn't believe it could be done( nor did my Dr.) and felt I just needed the right pill, but girlfriend, tell ya what, I am in charge! And that makes me feel good, it's a start. I still have a ways to go, but I have a great foothold on this game.

Give it a go, won't you? If you can't get to a group, often someone who has been involved with Yoga will be delighted to come to you. Or, you can start like I did, I went to the library and got a book for beginners. I already belong to a church that practices meditation so I had a bit of a head start.

If you should decide you would like to persue this more, I could, perhaps, be persuaded to mail you a tape on guided relaxation, recorded by none other than me, myself and I. But, you must promise not to pay me anything for it should you decidee you want the tape, but only to help someone else someday, to learn this technique.

God is Blessing you Now,
hoops

[stef80]

thank you for your suggestions....
I used to do yoga....they were simple moves from a book i got from my sis....
and i stopped it last year since my IC was so bad that it seemed that exercise hurt me....so i had stopped it....
and then i was going to start up again but i had to go have another laporascopy done and that hurt so bad and now i am hoping to get something settled so i am not stuck on the couch or bed....since i have realized that my muscles are sore just after doing some laundry (way way out of shape now:()
but i am going to try and get some type of routine of yoga or some type of stretching exercise to get me back on track....or at least let me be able to do laundry without being so tired after.....
i am trying to get things under control enough to do more stuff...
its just hard to get going when things hurt....
and its hard when you got so much stress (yup i am stressed out and that does make things worse)
but anyway....now i am babbling on and on....
just wanted to say thank you and that i am trying to go some yoga and such of that ilk....
online forums are great to build emotional strength from to go out and do stuff....
i would have gone crazy by now if i didn't have these here....
i have been on the IC forum trying to help others out and get help too...
it definitely makes things more sane....:cool:
well i hope all are having good days
take it easy and take care
HUGS
;)