not sure about....

[Austinsmom]

not sure about....What I can do, or what might help my Mom...... My Mom has been sick for years, but she was just Dx'd tonight to have Lewy body Dementia, it is now so bad , but I worry how bad can it get and how fast does this progress?
there are no listed web site do some of you have good websites to share, are there some meds better than others to help or slow things down??
Thanks for any help,
Deborah

[Austinsmom]

RESOURCES:

Lewy Body Dementia Association

http://www.lewybodydementia.org/

Lewy Body Journal
http://www.lewybodyjournal.org/


Clinical trials lewy
http://www.clinicaltrials.gov/ct2/results?term=Lewy+Bodies


Familial Occurrence of Dementia With Lewy Bodies
http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=1482839



National Institute of Neurological Disorders and Stroke
http://www.ninds.nih.gov/


CANADIAN RESOURCES:

Alzheimer Society

http://www.alzheimer.ca/

Canadian Stroke Network

http://www.canadianstrokenetwork.ca/



References:

Ballard CG, Chalmers KA, Todd C, McKeith IG, O'Brien JT, Wilcock G, et al. Cholinesterase inhibitors reduce cortical Abeta in dementia with Lewy bodies. Neurology . 2007;68:1726-1729.

Bouchard RW. Diagnostic criteria of dementia [review]. Can J Neurol Sci . 2007;34:(Suppl 1)S11-18.

Camicioli R, Gauthier S. Clinical trials in Parkinson's disease dementia and dementia with Lewy bodies [review]. Can J Neurol Sci . 2007;34:(Suppl 1)S109-117.

Chaudry, A, Khan, F. Dementia with Lewy bodies. In: Gilman S, ed. MedLink Neurology. San Diego, CA: MedLink Corporation. Available at: http://www.medlink.com . Accessed August 10, 2007.

Chou KL, Borek LL, Friedman JH. The management of psychosis in movement disorder patients [review]. Expert Opin Pharmacother . 2007;8:935-943.

Dementia. Health Library website. Available at: http://healthlibrary.epnet.com .

Dementia with Lewy bodies information page. National Institute of Neurological Disorders and Stroke website. Available at: http://www.ninds.nih.gov/disorders/dementiawithlewybodies/dementiawithlewybodies.htm . Accessed June 25, 2007.

Goldmann Gross R, Siderowf A, Hurtig HI. Cognitive impairment in Parkinson’s disease and dementia with Lewy bodies: a spectrum of disease. Neurosignals. 2008;16(1):24-34.

Kemp PM, Hoffmann SA, Tossici-Bolt L, Fleming JS, Holmes C. Limitations of the HMPAO SPECT appearances of occipital lobe perfusion in the differential diagnosis of dementia with Lewy bodies. Nucl Med Commun . 2007;28:451-456.

Lewy body disease: LBD. Lewy Body Disease Association website. Available at: http://www.lewybodydementia.org/docs/brochure/3_brochure.pdf . Accessed June 25, 2007.

Tarawneh R, Galvin JE. Distinguising Lewy body dementias from Alzheimer’s disease. Expert Review of Neurotherapeautics. 2007;7:1499-1516.

Weintraub D, Hurtig HI. Presentation and management of psychosis in Parkinson’s disease and dementia with Lewy bodies. Am J. Psychiatry. 2007;164(10):1491-1498.

Last reviewed September 2008 by Rimas Lukas, MD