chloaver
05-28-2008, 11:29 AM
Hello everyone! We haven't been on here for forever and I've missed being a part of CN but life here is, as usual, hectic. Anyway, everything has been going good here. Chloe is doing very well and is even on a baseball team. We were lucky to have The Miracle League build a field here and start a league and I thought it would be something Chloe would enjoy. It's a six week season and they play each game for an hour and a half and each kid gets to hit and each kid gets to go in the field. Chloe can't do any of the activities on her own but they are all assigned a buddy and the buddy does each thing with them and pushes her wheelchair around a rubber track. It is soo cute! The kids on the team are just adorable to watch and alot of them are so excited about being there. I love to watch it! She's been doing good seizure wise and hasn't had any med changes in a year or so. We tried weaning on the Phenobarb but her myoclonics increased almost immediately so we stopped it and left her on it along with the Keppra. It seems to be a good fit for her though and her myoclonics are mild and infrequent right now so we are thanking our lucky stars for that.
Averi is doing good and loves being a big sister to Hayden and has turned into her little mommy. She watches for any little thing on the ground that Hayden can pick up and always makes sure the gate to the stairs are closed. It's really cute to see and actually handy. One of the things I was scared of with having a 4yr old and a baby was all of Averi's toys laying around and being a danger to the baby but she does good in helping me keep things away from her. Hayden is almost 7mths now and such a good baby. She really only fusses when she is hungry or tired and is otherwise very smiley. She is army crawling right now and gets to just about anywhere she wants to and fast so she definitely keeps me on my toes.
Anyway, we've been going back and forth on getting the van with a ramp now or waiting another couple of years when Chloe gets harder to transfer. Right now she is heavy but not impossible to transfer so I'd like to hold off and get the most years out of the van that we can. So we've decided to wait but that means we need to get another car seat. I had gotten a gorilla car seat off of ebay but I really don't feel it supports her nearly enough. It also is the straight up and down kind so she has to always sit in the van seat and recline it so far back that we can't use the seat behind her and that still isn't nearly enough recline. I was looking at the Britax Special needs one. Has anyone had any experience with this one. She is 45lbs and about 45in tall. It says that it fits kids up to 105lbs which i don't think we'll hit for quite awhile but I was worried about the height and her outgrowing it that way. Anyway, any help you could give here would be great or any car seats that you guys use that you like. Thanks!!
Even though I'm not here posting alot I definitely am still checking up on everyone. Hopefully, now that things have gotten a little more calm around here I'll be able to get on here more. :)
Averi is doing good and loves being a big sister to Hayden and has turned into her little mommy. She watches for any little thing on the ground that Hayden can pick up and always makes sure the gate to the stairs are closed. It's really cute to see and actually handy. One of the things I was scared of with having a 4yr old and a baby was all of Averi's toys laying around and being a danger to the baby but she does good in helping me keep things away from her. Hayden is almost 7mths now and such a good baby. She really only fusses when she is hungry or tired and is otherwise very smiley. She is army crawling right now and gets to just about anywhere she wants to and fast so she definitely keeps me on my toes.
Anyway, we've been going back and forth on getting the van with a ramp now or waiting another couple of years when Chloe gets harder to transfer. Right now she is heavy but not impossible to transfer so I'd like to hold off and get the most years out of the van that we can. So we've decided to wait but that means we need to get another car seat. I had gotten a gorilla car seat off of ebay but I really don't feel it supports her nearly enough. It also is the straight up and down kind so she has to always sit in the van seat and recline it so far back that we can't use the seat behind her and that still isn't nearly enough recline. I was looking at the Britax Special needs one. Has anyone had any experience with this one. She is 45lbs and about 45in tall. It says that it fits kids up to 105lbs which i don't think we'll hit for quite awhile but I was worried about the height and her outgrowing it that way. Anyway, any help you could give here would be great or any car seats that you guys use that you like. Thanks!!
Even though I'm not here posting alot I definitely am still checking up on everyone. Hopefully, now that things have gotten a little more calm around here I'll be able to get on here more. :)