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mom2nfautism
05-15-2008, 06:32 PM
Hey everyone here is two poems I wrote. (i hope no one takes offese to them. wrote one back in 1997 and one in 2008.. let me know what you think. just wanted to share them with you

THROUGH THE EYES OF A SPECIAL NEEDS CHILD

S- Spend time getting to know me
P- Please be patient with me; I may not be able to do the things your child can
E- Enjoy learning about what I have and what is wrong with me so you will understand
C- Care about what my parents tell you about how I communicate
I- Imagine if your child had problems then realize what my parents feel
A- Always be kind to people who are disabled. We are just like you, with things that didn't develop right or because of an accident
L- Listen to me, I may be hard to understand but if you take the time you can understand me. Learning is very hard for me; I may not be at my age level

N- Never blame my parents they didn't do anything wrong they didn't cause me to be this way
E- Encourage my parents they need it
E- Entertain me, so my parents can have a night off
D- Distraction is part of my life daily, I'm on the go all the time I never slow down, I get into everything & time out doesn't work with me, because I can't sit still, I try but I can't
S- Screaming is what I do when I can't handle what is going on around me, when I get upset because I want to tell you what is wrong but I can’t.

C- Communication is very hard for me; I may use sign language, gestures, words, communication boards, time line boards
H- Helping me understand input is part of my parent's lives 24 hours a day
I- Imagine not being able to hug your child, even though your child wants to be hugged but your child can't handle it, sometimes hugs hurt, & sometimes they don't
L- Lights sometimes cause me to be act up very badly but once the lights are out I'm able to calm down and I am good, the lights were too much input for my brain to understand it all
D- Disabled means doing something different then someone else, sometimes with aid, sometimes with special equipment, & sometimes with therapy
MOM TO A SPECIAL NEEDS CHILD (REN)
WRITTEN BY: BEA ROSENCUTTER 11-27-97


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When god Created Mothers of Children with Autism

One day God said today I’ am going to make a model
Of a mother who’s child or children will have autism

I need you to get me a jar of compassion, a jar of stubbornness,
A jar of tenderness, a jar of understanding, a jar of tears for joy, sorrow,
A jar of determination, a jar of knowledge, a jar of activism,
A jar of faith, a jar of anger

The angel asked God why do you want all those things for this mother
God said she will need compassion to deal with the melt downs,
And stares of the people who wont understand

She will need stubbornness to be determined that her child will succeed no matter what people or the education system tell her, she will need it to fight for the rights of her child

She will need tenderness to understand when her child is melting down in the middle of the store, or church or where ever she is at, she will need it to deal with and understand why her child does these things

She needs joy to show at the slightest achievement the child does, and joy just over her child for who he/she is .

She will need sorrow to deal with the pain and hurt that people will say with out thinking and out of no understanding, she will need it to deal with the melt downs so she don’t become to drained from the stress of it all,

She needs determination to help her child succeed no matter what. The slightest success is achieved by her determination

She will need knowledge to know how and where to go for help and search for answers and to work with her child

She will need activism, to fight for what her child needs

She will need faith to rely on me to get through the rough times and the good times

She will need anger to handle all the stress and to relive tension

But lord Why did you chose this mother to do this. God said I chose this mother to be the mom of a child with Autism because she is my Special mother I wanted to raise a child with Autism.

Written by Bea Rosencutter 05-06-08

Lavandula Canadensis
05-15-2008, 07:14 PM
mom2... thank you very much for opening your heart to us... i love your poems... they reached my heart directly... :o if everyone on earth would only have one microparticule of your compassion, the world would be so much better !!! i sincerely think that everyone on earth should read them... and i wish that your compassion becomes contagious and spreads fast !!! :D this is just a start !!!
((( :):):) )))

waves
05-15-2008, 08:17 PM
These are so inspirational... informative too ... you must be that model mother! :)

have you ever thought of holding classes for parents with newly dx'd autistic children? You have so much to give.

Thank you for sharing :)

~ waves ~

Lavandula Canadensis
05-15-2008, 08:36 PM
waves, i agree with you... Bea would certainly be helpful to other parents... as she already is on the "Autism" forum...

however, bigger works has yet to be done with society in general... educating people with the special needs children and adults may have... because... like they say in that song... children are not our children, they are the children of the universe... :o so it is everyone's duty to participating the best they can... to be awakened to, to remain aware of, and to care about those needs... and to make our world better... * moreover, i also believe that people with special needs (children, disabled or elderly) should get all the assistance (physical and financial) they need at home...

poetry is a very good way to do it (being or not accompanied by painting or music...)

we, artists and creators of all kind, including all moms here, hey ! are stars in the dark sky of the universe... angels without wings maybe... we are here to wake people up... every little candle light counts, every little action/word of compassion and loving kindness counts... :) and lets keep in mind that artistic expression (being with a pen, a paintbrush, a guitar, etc...) is very therapeutic for ourselves to start with... :)

when we take care of ourselves, of our own little world, we take care of the whole world at the same time... (ancient widsom)

waves
05-15-2008, 09:05 PM
Yes, lavandula, i know what you mean.

and artistic expression is what this forum is for.

Bea... along similar lines... have you ever published? submitted your poetry to a journal? It perhaps could touch people where ordinary words do not.

I guess, when i suggested teaching, i was not excluding your art from that, quite the contrary.

Hope you will share more here... :)

~ waves ~

mom2nfautism
05-16-2008, 08:03 PM
no I have not. I have thought about it just dont know where to go or how to go about it. Been told by more then one person I need to write a book on living and growing up wiht Neurofibromatosis, and then raising two children with Neruofibromatosis, ADHD, and Autism. But not sure even how to go about that. I would like too. I have about 40 poems i have written.. wouldn't know how to descirbe alot of what i've written. alot about God and heaven or God and people with disiabliteis. If your intrested in reading them i can post some of them.

sometimes i can wrte and sometims i can't at times it just hits me and i start writing. my mom says i take that after my grandpa and my great grandma.

low_tide
05-16-2008, 09:39 PM
Bea ,your poetry is heart felt and reflecting on so much of your living experiences .It does take a special person to fullfill your life mission .Words you have selected are soaked with tenderness and love .It is a priviledge ,that you are sharing those wonderful poems with us .Please do bring us more of your poems written with Grace...