been awhile

[mama sue]

Hoping some of you will check back in

[litterkicker]

hiya sue...im at a loss for words right about now...im sitting here crying wishing i had words to pull from my chest to comfort you...i havent even had time to be on the pc for a long time but had to check online for a duck family lawn ornament set (MY crazy *** ma wants one)...thought id check if the chatroom was up and kinda got caught by Bobby's and Matthew's stories...honestly i had to google norrie disease, i had never heard of it...i can make myself available iffin you are wanting to chat...margaret

[mama sue]

Margaret~
Thank you for being so kind. My boys have always had a way of touching others hearts. That is one thing that will always amaze me about their precious lives. I hope in some small way that I can help someone through them. They taught me much about life an love and I will be eternally greatful for that. Always here for anyone who wishes to share.........

[AllisonL15]

My 8 week old has just been diagnosed with Norrie's. He has bilateral detached retinas and is completely blind. He is neurologically exactly where he should be despite the blindness. I'm sorry about your sons. It sounds like they had other difficulties on to of the Norrie's. Any info you have would be helpful.

[mama sue]

Alison,
I am sorry for the long delay in getting back to you. I don not have a computer up and running at my house yet and probably wont anytime soon. I am using my sisters right now.

So tell me more about your precious babe. Do you have a family history of Norrie? I will try and check in more. I really do want to be a support for you. Looking forward to getting to know you.

[Nana4&cntn]

Mama sue,

I wanted to tell you I have read your stories and memories about Matitude and Bobby. I have to tell you I was and still am so touched by them and you. I also googled Norries and it is such a devastating disease. I am sure your stories and experience have helped many.

Allison, I am sure you will find no better info and support than here with mama sue.

I wish you all the best and look forward to hearing more about your son Allison.

Take care, I will check in from time to time and please know I keep you in my thoughts and prayers!

Hugs to both of you,
Kathy

[mama sue]

(((Kathy)))
(((Allison))) how are things going? I try to check in when I come to my sisters. PLEASE know that I'm working on getting my computer running soon........

[Buttons2]

Sue, it's good to see you post here. I think of you often & hope the best is coming your way nowadays.

((((HUGS))))

[Nana4&cntn]

Hi There, long time no hear! I wanted you to know I dozed in my chair this afternoon and woke up thinking of you! I hope you are doing well.

I know you don't have computer yet, but just wanted you to know I was thinking of you and your precious sons.

Take care,
Kathy