free advice on twisted intestine

[wallyw1]

Hi, all--since Wally's emergency surgery, I have been thinking about what we could have done to realize what was happening earlier. My advice would be: if your tummy becomes distended and hard and if you are not passing urine or gas or moving your bowels get to an emergency room and have a CAT scan. You may or may not have pain but you probably will have pain. When it comes to our children with autism I am not sure if the pain will be obvious. Hopefully a twisted intestine is an uncommon event--I hope so.

Now that I have covered the serious stuff, enjoy Alan Sherman's "Good Advice" video on You Tube:

http://www.youtube.com/watch?v=MInOApCkA98

[milivica]

Hi Gay,

You might want to post any info you have on this topic, on the first thread "Useful Websites". I think GI problems seem very common with autism, be good for parents to know the signs especially if communication is an issue. Some of us have a problem knowing we are in pain and/or where too.

Lisa

[Keggy]

I was hospitalized for this several times when I was younger, always managed to escape surgery though. They did put a tube down my nose once and emptied me, relieved the pressure and avoided surgery... but tis not pretty.

I suspect that maybe this is just because some of us can not handle too much fiber. I would advise drinking flax tea, or ground flax in your food when a stomach starts to occur. But, I don't even have to do that anymore since I discovered capryl.

[wallyw1]

Mili--I don't have any information--those are just my observations.
Keggy--Wally is on Osmolite in a tube feed since last November. He has alternated between constipation and diarrhea and situations in between since being on the Osmolite. I still haven't seen the pathology report. I'll let you know if there is anything helpful.

Gay

[Isabelle]

i was about to ask you, guys, for the details on how you noticed, what you observed, what were the signs, but i didn't want to sound curious or morbidly curious....you read my mind, we need to have this kind of knowledge in our observation of the behaviours of the non-verbal autistic, like mine.
so many times i picked up signs of distress on my son for infection that his carers dismissed as he being attention-seeker or dismissed as part of his "autism" !!!
edit: i enjoy tremendously the good advice youtube :D