Cry Tears
10-04-2006, 01:17 AM
Several years ago....2 to be exact...I was near death.
I was so fatigued I couldn't even sit in front of my computer.
My dear husband got a laptop for me so I could entertain myself while he worked in the next room.
I was unable to even do my own personal grooming and had someone come in several hours a day to help me when my husband was too busy with his work.
I spent the entire summer laying in bed only getting up to use the toilet, and when I did I didnt even have the energy to flush it!
I'd crawl back into bed, hubby would come in to fluff my pillows, give me fluids and try and meet my basic needs.
I had Peripheral Neuropathy from head to toe. My lips burned as if they were sunburned.
When I did walk my balance was so off I walked "drunk" hanging onto anything I could to keep from falling.
I did use a rolla-walker when I had medical appointments..thats if and when I kept them.
My husband drove me to them and I always went to them wearing my PJ's hair unbrushed, teeth unbrushed as well....I was that weak and fatigued!
I saw numerous Neurologist, gastro docs and even spent over $5,000+ out of pocket for a very saught after naturopath/chiropractor doctor who did every test possible, from fecal testing that cost $750 just to mention a few hokey pokey testing....She gave me accupuncture, massage, aroma therapy....(Aroma therapy??? A fart did more... than smelling daisys I was about to be pushing up!)
From Late October thru mid April I "drug" myself the 40 mile round trip twice a week to see this quack doctor who did nothing more than drain my wallet!
She promised I'd start feeling better soon once my body was rid of the intestinal "worms and parisites"that infested my colon. What is odd...all the colonoscopies I've had, and having Crohns disease I've had many...each time the pictures show a very clean pink colon.
I took the home brewed tinctures, formulas, Liver cleansers. I had numerous body adjustments....and anything you can think of to rack up charges!
Nothing she did helped and I only continued getting worse.
I was so confused, depressed and brainfogged. I was beginging to wonder if I was "cracking up", after all, the other tests doctors had order proved nothing was wrong other than my known illnesses such as the years (20+) of irritable bowel later diagnosed as Crohns, Fibromyalgia and now Periperal Neuropathy. T
hese diseases are bad enough, but nothing like I was feeling.
By early spring I was too fatigued to drive and my health really began to decline. I told my husband that I felt I wasn't going to live that much longer.
My spine began to hurt as well...I couldn't put my chin to my chest without it feeling as if I was being shocked.
It couldn't be much worse.
I was ready to give up. No one had any answeres nor did any of the medications offer any releif.
I even considered ending my life. I couldn't even cry! Why go one like this?
No one gave a rip about me...and I knew they thought it was all in my head, except those who'd known me during my 2+ years of an anemia nightmare when I suffered from an intestinal AVM (anuerism like mass) and bowel resections due to Crohns.
When I got the lap top I'd try and fumble through web sites that addressed Peripheral Neuropathy. A nerve conduction test and EMG proved I had a moderate sock glove pattern although my intestinal area and body was not tested....I'd had enough poking and zapping, what did I have to prove!
I wanted to know why I had this on top of all my other list of growing problems. I could hardly comprehend what I'd read, but I kept trudging through.
2 years ago, back in early September I found this web sight, Braintalk.org and made my first contact with Rose. She suggested I use Methylcobablim sublingual B12 by Jarrow. Dear hubby made the first purchase on Sept 3.
By Sept 10 my life began to take a dramatic turn. Wow!
My B12 level had been checked earlier that spring...it was 232...was told within normal range:eek: This was said/done by Oregon Health Science Neurology department under a very errogant resident. Stupid idiot!
I have nothing positive to say about ALL the specialist I saw desperaly seeking help. They failed me miserably. Shame on them.
Didn't they even think about my missing 3 feet of small instestines and having Crohns disease be a tiny clue that perhaps I may need some B12?
When ever I think about how I suffered, it angers me....I don't need this!
It's not been an easy road back. But I found out what was wrong by doing my own research along with the help of other knowledgable people here on BT. I can't run any marathons....but I probably could walk a few!:p
If you are having some of the symptoms listed for B12 deficiency...please do yourself a favor and take the advice here that's given freely.
And don't stop taking it thinking you are all better....and don't stop taking it thinking it's not helping. You never know!
It may take weeks, perhaps months for your body to start healing.
And while your body is making repairs you may feel worse. But keep in mind....you will get better some day if B12 deficeincy was part of your problem. It can't hurt you even if you take a boat load!
But make sure you get the proper kind. You don't need to get the painful and expensive injections....all you need is the sublingual Methyl B12.
Educate yourself as much as you can regarding this very important vitamin and share this information with anyone who'll listen.
Perhaps you may save someone from a lot of suffering.
I sure wish someone had told me before I became so ill.
You want to hear a real shocking aspect to all this?
I would ask each and every single doctor I saw if this could be related to a vitamin and or mineral deficiency due to my having intestinal surgery and over a 2 year bout with severe anemia, lowest hemaglobin being 5.1 hgb! Thats near dead! One doc told me when I went to the ER that I was having a panic attack and REFUSED to do a simple blood test. I passed out driving my car with grandkids in tow....a different doctor took a blood sample where they discovered I had some sort of either massive bleeding or Leuekemia! It took nearly 3 years to find the AVM.....was found only by accident.
Each time I'd ask about a deficiency of some kind, they were adamant I was not! How scary is this?
I do hope anyone reading this finds an answer.
I know I finally did!
Blessings to all, Cheryl
I was so fatigued I couldn't even sit in front of my computer.
My dear husband got a laptop for me so I could entertain myself while he worked in the next room.
I was unable to even do my own personal grooming and had someone come in several hours a day to help me when my husband was too busy with his work.
I spent the entire summer laying in bed only getting up to use the toilet, and when I did I didnt even have the energy to flush it!
I'd crawl back into bed, hubby would come in to fluff my pillows, give me fluids and try and meet my basic needs.
I had Peripheral Neuropathy from head to toe. My lips burned as if they were sunburned.
When I did walk my balance was so off I walked "drunk" hanging onto anything I could to keep from falling.
I did use a rolla-walker when I had medical appointments..thats if and when I kept them.
My husband drove me to them and I always went to them wearing my PJ's hair unbrushed, teeth unbrushed as well....I was that weak and fatigued!
I saw numerous Neurologist, gastro docs and even spent over $5,000+ out of pocket for a very saught after naturopath/chiropractor doctor who did every test possible, from fecal testing that cost $750 just to mention a few hokey pokey testing....She gave me accupuncture, massage, aroma therapy....(Aroma therapy??? A fart did more... than smelling daisys I was about to be pushing up!)
From Late October thru mid April I "drug" myself the 40 mile round trip twice a week to see this quack doctor who did nothing more than drain my wallet!
She promised I'd start feeling better soon once my body was rid of the intestinal "worms and parisites"that infested my colon. What is odd...all the colonoscopies I've had, and having Crohns disease I've had many...each time the pictures show a very clean pink colon.
I took the home brewed tinctures, formulas, Liver cleansers. I had numerous body adjustments....and anything you can think of to rack up charges!
Nothing she did helped and I only continued getting worse.
I was so confused, depressed and brainfogged. I was beginging to wonder if I was "cracking up", after all, the other tests doctors had order proved nothing was wrong other than my known illnesses such as the years (20+) of irritable bowel later diagnosed as Crohns, Fibromyalgia and now Periperal Neuropathy. T
hese diseases are bad enough, but nothing like I was feeling.
By early spring I was too fatigued to drive and my health really began to decline. I told my husband that I felt I wasn't going to live that much longer.
My spine began to hurt as well...I couldn't put my chin to my chest without it feeling as if I was being shocked.
It couldn't be much worse.
I was ready to give up. No one had any answeres nor did any of the medications offer any releif.
I even considered ending my life. I couldn't even cry! Why go one like this?
No one gave a rip about me...and I knew they thought it was all in my head, except those who'd known me during my 2+ years of an anemia nightmare when I suffered from an intestinal AVM (anuerism like mass) and bowel resections due to Crohns.
When I got the lap top I'd try and fumble through web sites that addressed Peripheral Neuropathy. A nerve conduction test and EMG proved I had a moderate sock glove pattern although my intestinal area and body was not tested....I'd had enough poking and zapping, what did I have to prove!
I wanted to know why I had this on top of all my other list of growing problems. I could hardly comprehend what I'd read, but I kept trudging through.
2 years ago, back in early September I found this web sight, Braintalk.org and made my first contact with Rose. She suggested I use Methylcobablim sublingual B12 by Jarrow. Dear hubby made the first purchase on Sept 3.
By Sept 10 my life began to take a dramatic turn. Wow!
My B12 level had been checked earlier that spring...it was 232...was told within normal range:eek: This was said/done by Oregon Health Science Neurology department under a very errogant resident. Stupid idiot!
I have nothing positive to say about ALL the specialist I saw desperaly seeking help. They failed me miserably. Shame on them.
Didn't they even think about my missing 3 feet of small instestines and having Crohns disease be a tiny clue that perhaps I may need some B12?
When ever I think about how I suffered, it angers me....I don't need this!
It's not been an easy road back. But I found out what was wrong by doing my own research along with the help of other knowledgable people here on BT. I can't run any marathons....but I probably could walk a few!:p
If you are having some of the symptoms listed for B12 deficiency...please do yourself a favor and take the advice here that's given freely.
And don't stop taking it thinking you are all better....and don't stop taking it thinking it's not helping. You never know!
It may take weeks, perhaps months for your body to start healing.
And while your body is making repairs you may feel worse. But keep in mind....you will get better some day if B12 deficeincy was part of your problem. It can't hurt you even if you take a boat load!
But make sure you get the proper kind. You don't need to get the painful and expensive injections....all you need is the sublingual Methyl B12.
Educate yourself as much as you can regarding this very important vitamin and share this information with anyone who'll listen.
Perhaps you may save someone from a lot of suffering.
I sure wish someone had told me before I became so ill.
You want to hear a real shocking aspect to all this?
I would ask each and every single doctor I saw if this could be related to a vitamin and or mineral deficiency due to my having intestinal surgery and over a 2 year bout with severe anemia, lowest hemaglobin being 5.1 hgb! Thats near dead! One doc told me when I went to the ER that I was having a panic attack and REFUSED to do a simple blood test. I passed out driving my car with grandkids in tow....a different doctor took a blood sample where they discovered I had some sort of either massive bleeding or Leuekemia! It took nearly 3 years to find the AVM.....was found only by accident.
Each time I'd ask about a deficiency of some kind, they were adamant I was not! How scary is this?
I do hope anyone reading this finds an answer.
I know I finally did!
Blessings to all, Cheryl