Unverricht Lundborg disease or epm1

[judyh321]

Hi
I'm still looking for others with Unverricht Lundborg disease. Also known as epm1, Baltic myoclonus, or Ramsey Hunt syndrome type 2. Thanks.
Judy

[Lara]

Hi
I'm still looking for others with Unverricht Lundborg disease. Also known as epm1, Baltic myoclonus, or Ramsey Hunt syndrome type 2. Thanks.
Judy

Hi Judy. There is a Ramsey Hunt Forum here.
Ramsey Hunt Forum (http://brain.hastypastry.net/forums/forumdisplay.php?f=231)
This forum has recently restarted from base. I'm not sure how many users there were posting on the old forum, but hopefully you'll be able to get in touch with some others soon.
I just ran a search for Unverricht Lundborg disease forums and quite a number of links came up on Epilepsy boards.
There appears to be a Ramsey Hunt Forum also at http://www.ramsayhunt.org/forum/