need a national site

[cjw59]

Once again, I am finding the need for a "national" society, association, whatever you want to call it. This business of having the NPF, the APDA, the PDF, etc gets old and tiresome very quickly.
I was looking online today for an aquatics class in my area that I could afford on a very fixed income. I found the National MS Society offers a fee waiver for its members to use for aquatics and/or land exercise. I called them out of curiosity to see if they would pay for a PD person too. The answer was no.
So I came back online to look at the various PD websites in hopes of finding some type of waiver of fees for exercise. So far, I haven't found anything. I truly wish all of the groups that are PD-related would just get together under one name. The American Cancer Society, the American Diabetes Association, the National MS Society, the American Heart Association... Why not a "National Parkinson's Disease Association" with one toll-free number and one email address to make it easier to remember?
Just had to vent a little frustration.
Carolyn

[RustyD]

Ya know I agree.. In stead of having all these smaller organizations, one larger one would surely have more clout, financially, politically and in so many other ways!

[olsen]

along with a national site, I think there should be a national registry for PD--I know the Ali foundation has started one that has "voluntarily" registered feature--but in order to sign up online, one must be aware that the information given is not secure. just what we do not want -- our medical records available to the internet world (whatever that is).