My little update

[debhun]

I am still having that knife on fire pain in my neck and shoulder and my upper right pain where my GB would be. But I don't have a GB any more. It has gotten a little better. I have good days bad days. I go the Th to my Dr that did the surgery on my Achilles tendons that are not any better. I still have pain after I walk to much on it. like if I go to walmart I can't do any thing but sit the rest of the day cause of the pain. I am not get any sleep my pain is much worse now when I lay down flat on my back. I can't move for a few sec cause of the pain but then I put all I have into it and pull myself to my side. Then the same thing to go over to my back. Some time it seem to be my insides. but the pain is where my kidneys are. So I am going thought the day with not much rest. About this time of the day I get sleepy and do all I can to stay awake.My swelling is not any better. My feet look like basketball I go April 10 th to PM. I will talk to her then about my meds.






Well hubby scared me to death last Thursday. He told me he did feel good for a few days. Then on Thursday he was trying to talk and his mouth was drooped and I could see his eye was not right. I was thinking Bell's palsy but wasn't sure and called Dr office and they told me to take him to ER. I did so and his BP was very high 150/110 they sent us out to wait. We did for a hour. They never took any test no blood no cat scan no nothing. Put he is doing better. His mouth and eye is not as droopy. He did go into work and the meds they put him on made him mood-er LOL. He went out and got a patch for his eye cause his didn't want any thing to get it. He was a big baby. As he is when he is sick. He went back to work today. So I had a quite day till 2 PM.

Deb

[shotspine]

Deb......I don't have any answers for most of your issues but......I know you use Lidoderm patches. I also use them, mostly 3 each night. One on whichever arm hurts the worst and 2 across my lumbar, iliac crest. I also have Lidocaine Ointment 5%. It is the same strength as the patches. According to my Pharmacist, the ointment is just as good for 'close to the surface' pain. The patches send the med. a little deeper. I sit on my bed each night and put on my patches, use the ointment all over my neck and shoulders and both thighs. Then I lather on pain lotion like BioFreeze. It helps ALOT so I can sleep. When you see Doc., ask for some Lidocaine ointment with lots of refills;). Just remember not to overdo so you don't have respiritory depression. Luckily, I don't have swelling issues except for a bloated tummy. Oh, the ointment helps my horrible burning thighs.

Tell your hubby you will help him when he helps you.....this is supposed to be an equal partnership and this is a good place to put it into practice.

[Cervie Barb]

Sorry to hear about your pain, debhun, and I wish you could find something to at least help you sleep at night.

It sounds to me like your hubby had a stroke. He should have follow-up with a doc that gives a hoot and not an ER that makes you wait an hour... I am so disgusted with medical care these days!!!

Take care and feel better!

[Nana4&cntn]

Deb,

I agree with Barb about you need for better pain relief. I also agree that your Husband had a stroke, and was sent away with no medical help. I was in a similar situation a year or so ago, I was admitted and had every imaginable tests available. I was also seen by a neurologist. I spent several days inpatient then physical therapy for fine motor . today I am well. And very thankful for it. I think you should file a report for negligent and poor csre for your husband. another is a drug that can be giver in the first 3 hours that can help immensely. I am so sorry you have had ti deal with all of this!! It is so hard. If the symptoms consist or come on again, call the squad they can be in contact with the Hospital and can do many thing medically with a call. There really is no reason to have the symptoms and not get follow-ups, ie
Brain scans, blood work and other neuro tests that only a neuro should do.

Talke care and watch for hubby for further symptoms.
Kathy

[Mark N]

Deb, I am sorry to hear of your continuing pain and hope the doctor can get you some help. The swelling sounds as if the doctor needs to do something as you shouldn't still be dealing with that much swelling.

I have to agree that your DH exhibited signs of a stroke and I hope he gets checked out to see if there are any signs of an imminent stroke.

[BrokenBladder]

Deb,

I havent been on the forums much but I read this post and wanted to respond. I'm really sorry that your pain issues along with the sleep issues are so bad. I hope things even out for you in the near future.

Now about DH. Something similar happened to my ex MIL but it did turn out to be Bells Palsy, in fact, it's happened to her twice now. However based on what you've described it does sound like a stroke and the doctor needs to address this with your hubby ASAP.
Many Blessings!!

[debhun]

Thanks all it is Bell's Palsy and he he doing better.

Deb

[Nana4&cntn]

Deb,
I am glad to here it was not a stroke. Bells Palsy can be brought on by many different things, I had it after giving birth to my first son. I resolved my B12 shots for ten weeks. Did they check if he had Lyme Disease? I know you live in a rural area, and that can cause Lyme disease and bells palsy and a number of other diseases. I have a friend this happened to. So if you can check it out it could save problems down the line. Just a suggestion and just my opinion.

Take Care,
Kathy

[debhun]

They didn't do any kind of test on him. He was luck it wasn't a stroke. That is why I don't go to this ER in Duplin Co. I go to Greenevill or Wilm. they have very good Hospital there. For my PM I go to Greenevill.

[Nana4&cntn]

I Deb,

I just wanted to give you that info, I hope you GP can do the test as it takes awhile to come back. I am glad you did take him to the ER even they aren't the best, they would have been able to tell if he had a stroke. I wish him well, I remember how mortified I was as the whole left side of my face drooping. All of the pictures from with him and I are horrible. Of course he was beautiful, me not so much.
Anyway I wanted to know both of you are in my prayers!

Hugs Kathy

[shotspine]

Dear Deb....

I just need to apologize for making a kind of nasty remark about your DH in my post. I never thought anything like a stroke or something serious. Once I know someone is abusive, I lose my sense of compassion for them.

I do really hope that he gets this job though, for your benefit. I want to see your life start to see improvement so badly. Your stories, among many others I read, just break my heart. The abusive issues really hit me hard.

(((((((((((Deb))))))))))

ss

[debhun]

SS NP I understand. If my DH hadn't had a TBI it wouldn't have been this way. But as far as my XH I am still dealling with that and trying to let it go. But I can't. I know it is mean of me but I wish him bad things. But right now he is living the life. His new wife has money and his money is like play money and none of it comes to our son. My son hates him so much just for what he done to him when he live with him. He want to get to know his dad and it didn't happen so back to mom he comes. But I have no trouble with you at all.

Hugs
Deb

[Kathi49]

Shotspine,

I agree. I tend to lose all compassion for these abuser types; emotional, verbal and physical. I feel for all of you who have had these types of experiences. I know because I suffered from verbal and emotional abuse for quite some time. Never physical though. Even so, I think they all can be just as bad and leave all kinds of scars for a long, long time. I probably did the same thing as most everyone else; hoped and prayed for change and did everything in my power to change me...thinking it was me. But it wasn't. Once I woke up and smelled the coffee, that's when my own inner strength came back. BECAUSE...NO ONE deserves to be a doormat, a scapegoat or a punching bag. I know it is easier said than done to up and leave; there are so many things that factor in. But the bottom line is...you have to take care of you. You have to love yourself enough to let go and move on if need be. And I am sorry if I sound abrupt. I just simply feel that if the SO isn't willing to meet you halfway or wants to put the blame on you then it is just not worth it. But that's just me. To me, love only goes so far. You can love someone to death but if it isn't reciprocated, then honestly, I don't feel there is anything left. I know a lot of people feel "until death do us part"...but I don't. And, yes, we all have CP issues which makes things even harder. But before I would let my husband lay a finger on me (verbal abuse was bad enough), I would leave. And I almost did. It just so happens HE sought out a counselor because I had divorce papers ready to go. But again, it took awhile before I reached that point. I know I sound harsh. But when you sit and take a look at the whole situation, do you really WANT to live that way the rest of your life? I didn't. I could NOT imagine another 20 years living that way. But WE BOTH went to counseling for over a year. He has turned around. Things aren't perfect but he has cleaned up his act for the most part. And...he is not a "bad" person...he just had his priorities totally mixed up...I will put it that way. And, well, leading a double life can cause anger or in my case, directed at me.

[Rozia]

I thought I would mention this . I had Achilles Tendinitis just like you and it hurt really bad . I went to the foot dr, and he said start using Spenco foot pads insoles and believe it or not , my pain is gone and I have been wearing ever since. they saved my life. and nothing hurts worse than any kind of foot pain.