What a dreadful day.

[Bill[uk]]

Just a horrible day yesterday,don`t know what it was, over tired maybe ? Not enough "switch off " time, i don`t know . Just soooooooooo fed up with it all, want to be how i used to be .................

[houghchrst]

Bill sorry you are having such a lousy time, I seem to be in the same boat. A wee bit better today, hopefully tomorrow even better. For you too.

Have a good night and take it easy.

[GODISMYSTRENGTH]

Hi Christina, Hi Bill,

This is my first post on this site, I am so blessed that our friend found it for my husband and myself.

I had searched for so long to find a site where we could post to, my husband has Parkinsons.

I know the feelings that you both are expressing and continually see these feelings in my husband, and yes myself many times. I just wanted to say I am praying for you both and each and everyone that is suffering from afflictions. Life is so difficult at times, I have learned through my own daily health issues in order for me to deal with them it has helped me, by putting my trust in the Lord and leaning on HIM daily has helped me tremendously.

My heart aches in watching my dear husband being taken over by this devastating Parkinsons Disease, diagnosed 12 years ago. This past week has been a real stuggle for him, I find myself many times crying out to the Lord to give me the strength to help my husband get through each and every day. I am so thankful HE has thus provided in those times of need. Yesterday evening being one of them, I guess life is like a rose garden, we can't have and enjoy those beautiful roses without the thorns.

Good Lord willing we will be celebrating our 52nd wedding anniversary in May. It is my prayer that more will be done for finding cures or much improved treatments for this and other diseases.

May your mornings be filled with hope and through each day give you peace in knowing that God does hear our prayers and HE is always with us 24-7.

I hope that I can come back and post with you in the future, it is so wonderful to find a site where folks are here to be for one another and give support. This is something I have searched for a long time.

Please excuse my larger print, as I have visual problem.

Sincerely, Patti

[jplayer78]

hi I suffer from many ailments and I found tht 100% pure sunshine does a world of good for me. Try it in the early morning hour. It just might be on of the best medicines.

[Vince F]

look into Fava beans to treat Parkinson's.

VF

[Vince F]

;219777']Just a horrible day yesterday,don`t know what it was, over tired maybe ? Not enough "switch off " time, i don`t know . Just soooooooooo fed up with it all, want to be how i used to be .................

I had a chemical injury that caused some brain damage and short term memory problems, and that helped me not get frustrated with the pain problems I had, since i wouldn't remember them, or the sorry state my life was in, and still is to a great degree 20yrs later. Friends told me I had to be depressed. Ones with physical problems were, but I didn't remember the pains much, and enjoyed when I wasn't in pain.

VF

[Bill[uk]]

Bill sorry you are having such a lousy time, I seem to be in the same boat. A wee bit better today, hopefully tomorrow even better. For you too.

Have a good night and take it easy.

Hi Cristina,

Hows it going ? dont think i`ve heard from u for a while. just to say u were perfectly correct, the days did improve. then got much much much worse,as if it peaked[i hope anyway] and today is brilliant in comparison.

can i just say i found your brief words so warming at that time and would very sincerely like to say a big thankyou to you.

hope this is not a repeat message.

p.s. love the picture

Bill

[houghchrst]

HI all, thank you Bill, I am glad I could be a bit of comfort. Thank you re: my avatar, I have considered changing it but I feel as though it has become a part of me. Yes I too am quite a bit better. Had some effects from a med add on, some cabin fever, quite tired of the cold and snow and then developed pneumonia. The weekend went quite well and today the sun is shining so I am very grateful for that. I am very happy to hear that you are doing much better. It is often like a roller coaster I know. The thing that often keeps me going is knowing that there is a light at the end. The bad days are limited in number and the good far outweigh them.

Patti welcome, I am sorry about your husband and wanted to thank you for taking the time in all your trials to pray for me, I will do the same for you. Wow 52 yrs!! Coming soon. Congratulations. You are by all means more than welcome to come back and post and I hope you do. There are many forums here that you will find a place in. Everyone here is kind and supportive. It has become a place I know I can come everyday for friendship, love, laughter, a hug, a shoulder to cry on, a prayer, just about anything you need.

That goes for all of you, there are many forums here. I most frequent the Forum for Emotional Support but I also stop in Addictions, BiPolar, Chronic Pain, Depression, and a few others. I hope you all post often and take advantage of all the many places to visit. Even if it is just to get a laugh in Chit Chat.

Have a great day all.:D

[GODISMYSTRENGTH]

HI all, thank you Bill, I am glad I could be a bit of comfort. Thank you re: my avatar, I have considered changing it but I feel as though it has become a part of me. Yes I too am quite a bit better. Had some effects from a med add on, some cabin fever, quite tired of the cold and snow and then developed pneumonia. The weekend went quite well and today the sun is shining so I am very grateful for that. I am very happy to hear that you are doing much better. It is often like a roller coaster I know. The thing that often keeps me going is knowing that there is a light at the end. The bad days are limited in number and the good far outweigh them.

Patti welcome, I am sorry about your husband and wanted to thank you for taking the time in all your trials to pray for me, I will do the same for you. Wow 52 yrs!! Coming soon. Congratulations. You are by all means more than welcome to come back and post and I hope you do. There are many forums here that you will find a place in. Everyone here is kind and supportive. It has become a place I know I can come everyday for friendship, love, laughter, a hug, a shoulder to cry on, a prayer, just about anything you need.

That goes for all of you, there are many forums here. I most frequent the Forum for Emotional Support but I also stop in Addictions, BiPolar, Chronic Pain, Depression, and a few others. I hope you all post often and take advantage of all the many places to visit. Even if it is just to get a laugh in Chit Chat.

Have a great day all.:D


Dear Christina,
I wanted to say thank you for the PM today, turning on our computer and recieving your message and remembering that we soon will be having our 52 nd wedding anniversary really touched my heart. My husband is doing the same, I keep praying for better treatment or better still a cure for Parkinsons and other debilitating diseases.

I am sorry to say that for reasons out of my control. I have had to curtail the use of our computer, sitting still at a stop light waiting for the light to change, we were rear ended in January, totaled our vehicle, I can only thank the Lord that it was I and not my husband that has to suffer the brunt of the accident. Lord knows my husband has enough on his plate suffering daily with Parkinsons.

My seat broke on impact therefore I believe to have caused me to have the neck injury, have three herniated disks. Therapy isn't helping. Will be consulting with Neuro surgeon, however I am not quick to let anyone do any surgery on me, not at my age. I lean on the Lord daily for His strength to provide to get through what ever comes in this life time, I personally coudn't make it without God in my life.

Christina again my dear lady, thank you for the sweet and loving pm to my husband and I, God Bless You. I did just send you a PM.

Prayers continuing for each and everyone here, am continuing to pray that one day man kind will through out the world put differences aside and work together towards finding cures for all with these debilitating diseases. So much, much more could and needs to be done.

Sincerely, Patti

[houghchrst]

Hi Patti. I am glad you decided to pop back in and say hi. The accident must have been pretty terrible. Was it due to the winter weather? If you don't mind my asking. Not much that therapy can do for herniated disks if you ask me. It can strengthen the muscles to prepare for surgery or even help keep you strong if you choose not to but besides that I don't think it will do much else. Lots of prayers and faith can do wonders.

What is the date of your anniversary? My brother's birthday is on the 22nd. I love May, the trees are almost fully leaved, the flowers are abundant and the days are warm and the evenings still cool enough for a fire.

I hope you get some kind of relief from your neurosurgeon and that these days have been good to you and your husband.

{{{{{{{{{{{{{HUGS}}}}}}}}}}}}}}}

[Bill[uk]]

hi I suffer from many ailments and I found tht 100% pure sunshine does a world of good for me. Try it in the early morning hour. It just might be on of the best medicines.

thanx, that sunshine thing definitley works.we don`t get much summer/sunshine here in the uk but our "version" of summer/sunshine is jsut around the corner .

Bill

[Lavandula Canadensis]

since the minute I've been guided to BT by an angel friend, :) a real sunshine...
I find all of you, members of BT, are sun rays in my life... Thanks for sharing...
http://bestsmileys.com/sun/2.gif

[houghchrst]

Bill glad to see you. How have you been? Yes nothing like sitting in the sun and soaking up them rays.

Lavan you yourself sure are a ray of sunshine, all over the place. So good to see you posting a good word here and there.

[Lavandula Canadensis]

Christina, thanks for your words of encouragement... sunshine is contagious... I got contaminated (!) the moment I joined BT... :D
but it's true that I was probably predisposed...

http://bestsmileys.com/sun/4.gif

[Bill[uk]]

[QUOTE=houghchrst;241514]Bill glad to see you. How have you been? Yes nothing like sitting in the sun and soaking up them rays.

Hi Christina,

Slowly doing better thankyou, its all begining to piece together,feeling much more positive at he momment. memory still useless,in my opinion anyway but as Helen my partner puts it "I AM MY OWN WORST CRITIC AND VERY HARD ON MYSELF. " Until its close to how it was before i don`t think i`ll be satisfied,but i accept perhaps i am expecting too much.

Its been quite sunny here so we are taking advantage of it this weekend and off to the Roman town of York in the north of England this weekend for a well earned break[for Helen] It was where we were the time i received the phone call that i needed emergency neurosurgery in sept 07 .My recollection of it is very hazy,i can remember arriving and thats it so it should be interesting!

hope you are having a good one.

Bill

[houghchrst]

Aaahhh Bill a bit of a vacation. Small though it may be sounds well needed. I know it is hard accepting our new lives. Wishing things could be the way they were, lamenting the loss of the old us. I know how hard it is. I too am suffering from losing the old me and the hard reality of who the new me is going to have to be. I don't like it and it seems to be taking a long time to get help to at least reach a "happy" medium. If that is possible, 'tis according to others. Anyway, a long road we travel but hopefully the holes get smaller and the way gets smoother.

I hope you both have a great time on your weekend away.

{{{{{{{{BIG HUGS}}}}}}}}

[Bill[uk]]

hi,

got back yesterday,had a lovely time,sun was shining and people were friendly. Just a fabulous place,will be going again soon .just what we needed.

hope u r good.

Bill

[houghchrst]

Bill I am so glad you enjoyed yourself, we all need to get a bit of time away sometimes. I am looking forward to my next turn though I have no clue as to when that will be LOL. Hopefully soon as it has been too long since my last.

Have a wonderful day,

[Bill[uk]]

Christina,

hi, i just can`t stop looking at your avatar,its beautiful but i have to get really close to the screen to view it.

could i ask a big big favour, can you send me a bigger version of it via e-mail if that is at all possible[i`m not very computer literate you see]

perhaps the new me has developed a new appreciation of art !!!!!!!

Bill

[chunky]

Hi all my husband of 45 years has had PD for the last 4-6 years and I am the one with history of colloid cyst and now dealing with a host of other issues. My firm belief is ALL adversity is sifted thru the permissive will of God My response is to not become bitter but ask Christ what he wants me to learn so that I can move on and not stay stuck any longer than I need to!!!
Donna

[houghchrst]

Thank you Donna for the wise words.

[Vince F]

Patti,

If the disks aren't definetely the cause of your pain, I would look into Prolotherapy.

VF

[Jeanne]

Hi Bill, I too am sorry you're havint a bad day. Seems all of us here have them. Often because we don't know whatever symptoms we are having (headaches, more extreme memory loss, lack of engery) are due to the surgery and/or a recorracnce. I wish I would say more. I've been having gad days too. I'm getting bad headaches again and my visions is changing. I know that in Feb. 2007, an MRI showed a new cycst of 4mm and plan to get is checked again to check for growth. From what I understand here, 10-13 mm seems to be the size when hydrocephalus occurs. Docs where I live are definatley not good at reading eithe CT scans or MRIs to I'm not sure how to proceed. I'm hoping the scans can be send to Mayo to be read as I know they how what's they're doing. I wish you the best and certainly hope you are feeling better!
A fellow member, Jeanne

[Bill[uk]]

i Find At The Momment,sleep Is The Single Most Beneficial Thing:)

[houghchrst]

I agree I am trying to keep my eyes open as I read and am considering going back to bed. Hurt, tired, recovering from long weekend.

[chunky]

HI Freinds and fellow survivors, Yes Patti Christina God is my strength!!! My husband and I have been married for 44 years, I recently retired from 48 years of nursing, My husband has Parkinson's and I had a craniotomy at the tender age of 29 with 4 samll children, I did not have apersonal relationship with Christ but since 73' I am a new creature in Christ. My problems have not stopped, ie: detached retina; large thyroid tumor, and now migraines with a possible small stroke!! I am convinced that ALL adversity is sifted thru the permissive will of God and thank HIM for HIS daily grace!!!Memory was a big issue after I had my craniotomy, a neighbor would introduce me to people saying this is Donna "she repeats herself a lot." My motto Never Give Up and Never Give In...
Donna