Kick off of this forum

[Silverlady]

I hope this forum is able to give us all the reseach we had before. In case they don't I'm going to start posting what I can dig up and remember. There is another excellent Sjogren's forum at www.sjogrensworld.org. There is already a lot of medical and practical advice stored in that forum. And I hope there will be more in both places in case we lose one of them.

Billye

[PwMS]

do people with sjogren's syndrome (ss) have dry eyes and mouth through out the day or just when sleeping?

my multiple sclerosis neurologist wants me to be tested for ss because i have no saliva during sleep and reduced moisture in my eyes as well. during the day when i am awake all is normal.

is this normal for ss?

[Silverlady]

My Sjogrens seems to be 24 hours a day dryness. I use Salagen during the day and a dose right before bed. I also use Biotene mouth gel at night. I use a liberal amount to coat my mouth and then swallow a small sized piece to coat the throat. And when I get up at night (pit stop), I use the mouth gel again. This gets me thru the night really well.

The eyes require GenTeal gel right before bed and I sleep in Eyeeco Moisture goggles. Could not be without them. Most precious thing I own. During the day I use Bion Tears.

Everyone is different. You might try using a humidifier in your bedroom. That may make a big difference. I use two in the bedroom and one large room sized one in the main part of the house.

Billye

[Silverlady]

I goofed when I posted the mouth gel name. It's actually called Oral Balance and is made by Biotene. Sorry for any problems.
Billye

[new2TX1]

I tried Evoxac, it made alot of saliva, but didn't cause my eyes to have moisture. I have sleep deprevation problems, and I've found the Evoxac cancels out my sleep med.

I also tried Restasis w/o any success at all.. and eye plugs too, no relief.

BYW, PwMS, for me dry eyes and mouth are 24/7. The testing for Sjogrens is not very sophisticated, and doesn't always rule it in or out.

I recently asked my eye doc for a steroid eye drop to reduce inflammation casued my the dryness. They do seem to help a bit, as I am not having to use my OTC eyedrops every 10 minutes - instead, now I can get 30 min. in before I have to use the OTC eyedrops again. 'course now, the steroid eye drops can only be used for a very short pd. of time.

[Silverlady]

If you have tried Evoxac, you might try Salagen. It works differently for me. On the Evoxac I had saliva but on the Salagen I have saliva and some help with moisture in my eyes. It's very little, but I can feel the difference when it wears off.

Billye