Pain

[Slower]

I always have pain in my legs and feet but the last several weeks have been worse. I take neurontin and darvocet but it doesn't seem to be helping like it used to do. What types of pain meds does anyone else use? I need to call my Dr. and ask for something different and would love to have some knowledge of what others may take.

Thanks!

[wumberlog]

If you're in the right state, that's what pot's for. At least Montel's excuse is leg pain. It used to help me with the pain in my feet that feels kinda like frostbite.
Mine's not constant, so I don't know if our situation is comparable.

It just seems this is where Grassman would have chimed in with something far more eloquent than I can come up with

(ps - Hi. I've been in and out of here over the years, too)

[loulou]

Hi Slower,
I have been dealing with very bad leg/hip pain for some time. Have you tried Lyrica? It really works well and quickly too. I had a very large weight gain so I had to stop taking it. I must say though it was amazing how well it worked. Good Luck and keep us posted. xo Loulou.

[soul]

I hope this helps
http://www.thisisms.com/article138.html
soul

[Abby2006]

You know I had some pot in my hot little hands the other day and turned it down, decided I liked myself to much to screw up now, someone on this board said something to me not long ago about thinking real hard at the cost and stress of finding it,

and thats what went through my mind, and I know it works VERY WELL for pain because thats how I was able to have had MS for over 20 years and no one ever know it, well I was a very old pot head and went to any extreme to get it and made some real stupid and serous (dangerous) mistakes.

So I handed the gizmo (strange little box that had a thing that looked like a cig and you dipped it in the gizmo and the end of the cig thing grabbed enough for a hit) back to the person, hardest decision I've ever made but I think probably one of the wisest ones.

I can't live that life anymore its to hard stressful and dangerous and I'm really to old now and very sick and stress is a real no no for me.

So I thank God I had the sense to have a million things go thorugh this poor tired damaged brain in a split second to be able not to take that first hit after so long away from it.

It does work but for me not worth the stress of living the life again



Abby

Forgot, I have Demerol and although a very dangerous drug seems to be helping, and I don't have to worry about addiction, I'm way beyond my life being ruined by drug addiction

[soul]

As I like myself as well, so much that I don't want to see my disease to progress if you want to call that an addiction so be it
I like to call it self preservation

Don't get me wrong Abby but I would rather smoke some pot then do the various narcotics that are available for us, I do not want another socially acceptable addiction
soul
Peace
http:/****eo.google.com****eoplay?docid=4736563701346383014

[Abby2006]

Thats what I hate about the internet you say something and because the other person can't see your expression it gets taken wrong

my saying

" I like myself to much "

was not meant as a put down for everyone else that anyone thats smokes pot must not like themselves, thats not what I meant at all, I wish I was in a position that I could smoke it, but since I don't have any connections where I live now and trust me the way things go get used to something and it goes poof.

Although, I do have a story to tell

Back in 1990 living on the front range of the Rockies in a beautiful Condo that had a balcony off of the bedroom that looked out down on the living room (I'm not saying that to brag) but to tell you it was when Colorado was going through rough times and we rented it for $500 a month, life was good had just made a drug run back to the East coast and had a pound. And then when we'd get on the east coast we would have to go back to last place.

Anyway, some people gave me a little booklet to read on smoking pot (they were trying to save me from myself) and what it does to the brain, so one day I had a hit (I smoked 24/7) and picked up the little book and read a page that said pot had been found to cause severe brain damage complet with lewsions, so I took a drag and went bummer and put the book in the trash.

Well.... did it?

Abby

[Harpist]

I always have pain in my legs and feet but the last several weeks have been worse. I take neurontin and darvocet but it doesn't seem to be helping like it used to do. What types of pain meds does anyone else use? I need to call my Dr. and ask for something different and would love to have some knowledge of what others may take.

Thanks!

Hi Slower,

I while back I put together a list of pain meds used by some of the board members. Here is the link:

http://brain.hastypastry.net/forums/showthread.php?t=9860

If you tolerate Neurontin, you can go to fairly high doses (5400 mg/day). Or consider changing from Neurontin to Lyrica (they are related but can have different results).

Good luck to you Slower.

Good Roads

Harpist

[soul]

Hey Abby who published that little booklet?
soul

[lady_express_44]

If you tolerate Neurontin, you can go to fairly high doses (5400 mg/day).

REALLY?? I had understood the HIGHEST dosage to be around 3600mg, but more often a high dosage would be around 2700 mg . . .?

... just making sure for future reference.

Slower, I can't use most medications, and have had long-term arm and leg pain that was hard to live with. Low Dose Naltrexone (LDN) took care of that pain almost entirely, but is a compounded drug and not compatible with the interferons.

Cherie

[Harpist]

REALLY?? I had understood the HIGHEST dosage to be around 3600mg, but more often a high dosage would be around 2700 mg . . .?

... just making sure for future reference.

Cherie

Hi Cherie,

Dosages higher than 3600 mg/day are rarely used for two reasons:


Most people can't take the higher dosages without serious side-effects.
The effectiveness drops off at higher dosages so you don't get the same bang for the buck as you do at lower dosages. If you aren't getting a lot of relief at lower dosages, increasing it doesn't help much. If lower dosages are giving you a fair amount of relief, higher dosages might improve it even more

There are several other people here on the board who use this high of dosages. Dr. Thrower from the MS clinic in Atlanta was the one who put me on the high dose, and he is one of the few neurologists I have complete trust in.

Good Roads

Harpist

[dizzyintx]

It's been my experience that neurontin stops working after awhile. I'm on 4200 mg of neurontin. When I find it not working, I switch over to 600mg of Lyrica and when it stops helping back to neurontin. My neuro says she doesn't think there is an upper limit to neurontin, however my insurance disagrees. She is more chicken about the Lyrica though :D. Had to beg for that much and no getting any more out of her :(

[frame]

i have terrible pain in my legs. its crazy because i cant feel them if i touch them, but they freaking hurt all the time. weed helps. weed helps more than anything else.
i <3 pot.

[soul]

Cannabinoids in the treatment of pain and spasticity in multiple sclerosis.


: Curr Opin Investig Drugs. 2002 Jun;3(6):859-64.Links
Cannabinoids in the treatment of pain and spasticity in multiple sclerosis.
Smith PF.

Department of Pharmacology and Toxicology, School of Medical Sciences, University of Otago, Dunedin, New Zealand. paul.smith@stonebow.otago.ac.nz

There is a large amount of evidence to support the view that the psychoactive ingredient in cannabis, delta9-tetrahydrocannabinol (delta9-THC), and cannabinoids in general, can reduce muscle spasticity and pain under some circumstances. Cannabinoid (CB1) receptors in the CNS appear to mediate both of these effects and endogenous cannabinoids may fulfil these functions to some extent under normal circumstances. However, in the context of multiple sclerosis (MS), it is still questionable whether cannabinoids are superior to existing, conventional medicationsfor the treatment of spasticity and pain. In the case of spasticity, there are too few controlled clinical trials to draw any reliable conclusion at this stage. In the case of pain, most of the available trials suggest that cannabinoids are not superior to existing treatments; however, few trials have examined chronic pain syndromes that are relevant to MS. Whether or not cannabinoids do have therapeutic potential in the treatment of MS, a further issue will be whether synthetic cannabinoids should be used in preference to cannabis itself. Smoking cannabis is associated with significant risks of lung cancer and other respiratory dysfunction. Furthermore, delta9-THC, as a broad-spectrum cannabinoid receptor agonist, will activate both CB1 and CB2 receptors. Synthetic cannabinoids, which target specific cannabinoid receptor subtypes in specific parts of the CNS, are likely to be of more therapeutic use than delta9-THC itself. If rapid absorption is necessary, such synthetic drugs could be delivered via aerosol formulations.

PMID: 12137404 [PubMed - indexed for MEDLINE]

http://www.ncbi.nlm.nih.gov/sites/entrez?Db=pubmed&Cmd=ShowDetailView&TermToSearch=12137404&ordinalpos=1&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsP anel.Pubmed_RVAbstractPlus
soul