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View Full Version : New and need help...my brain/spine (LONG)


gmof2
02-25-2008, 07:26 PM
Hi, I am brand new here but have consulted these forums over the past few months. I need help, reassurance, advice from anyone with a diagnosis who has had similar symptoms.

I am scared. About 4 months ago I began having severe pelvic pain which I assumed was of a gynecological nature, although I am post-menopausal at 53. I saw my gynecologist who did an exam and I had an ultrasound which revealed no abnormalities. I visited the ER one night when the pain was particularly bad (lower right pelvis) and had a CTscan which revealed nothing abnormal. The following week, I saw my primary care physician who scheduled a colonoscopy, which I had performed within the month, and had a couple of benign polyps removed, no major issues. My PCP then sent me to a surgeon to have me evaluated for a possible hernia, which the surgeon could not find. He felt that the nature of my pelvic pain suggested nerve entrapment. Meanwhile, around this time (about 2 1/2 months ago) I began having back pain all along my spine. The pain does not seem to affect my range of motion, but the spine is literally sore to the touch in places, and both of my legs feel weak. I developed a ringing in my ears around this same time. I returned to my physician in tears, scared...and he prescribed zoloft and klonopin for panic attacks. Granted, I AM panicked but this is BECAUSE I can't seem to be diagnosed. Three weeks after he started me on these meds, I returned for follow-up. I told the doctor I was afraid that I have cancer, a brain tumor, my back hurts, my vision has been getting progressively worse in one eye over the past few years, and lately the vision in my right eye is almost nil. He sent me to an ophthalmologist who examined my eyes and said I have a cataract, which I am scheduled to have removed in a couple of weeks. My PCP also increased my dosage of zoloft, and he insists I am having panic attacks. I am scheduled to see him again this week, so that he can clear me for the cataract surgery and fax paperwork over to the ophthalmologist. I am going to BEG for an MRI of the brain. My head now feels like there is a band around it, and the ringing in my ears is non-stop and loud. Sometimes my neck hurts as my head feels so heavy, and my nose sometimes feels numb. I have some hip pain in addition to this, and my spine feels unstable; I can feel the joints cracking when I move. If I look down toward the floor, I have a weird sensation in my chest and throat, and sometimes (not always) my ribs hurt.

I realize this sounds like hypochondria. It is NOT. I had not seen a doctor in nearly 15 years prior to the initial pelvic pain for which I sought medical advice. I have researched too much on my own, and have come up with brain tumor, spinal tumors, csf leak, multiple myeloma and I am driving myself crazy with worry. Does anyone have any experience with nerve compression that began as pain low in the pelvis? Can anyone identify with the problems I am having? Any ideas as to what this could be? Please help if you can. I am physically exhausted as well. Thank you so much for listening.

Nana4&cntn
02-26-2008, 10:08 AM
Hi gmof2,

Boy you really do have yourself worked up! I am not saying you are making anything up, or that you are a hyperchondriac!! You do have symptoms, that could be alot of different things. These need to be ruled out in a methodical way.
Maybe start with asking for xrays of your cervical and lumbar regions? And then go from there, The headaches could very well be from your cervical spine and the easiest to diagnose or rule out, the same with the lumbar pain. Have you told your gp about the rib and back pain.
The other thing I think is why is this person your gp? If you are not being listened to, then change gp's. That is what I have done. I also think it is a bunch of bogus for a gp to dismiss you with anti-depressants and benzodiazapines. Seems to be a bit dismissive to me. I can understand him giving you anxiety meds, as you are worked up.
All the above are just my opinions, all come frpm some experience.

Turn your head off a little, and stop playing the "what if" game, it really does cause mega thoughts to can get a bit out of control.

Please don't take this as a dismissal, It is not. Just take it a bit slower and don't jump to the conclusion you have cancer. I think but am not sure there is a blood test that will tell if you do have it. Check it out.

Take care,
Kathy

gmof2
02-26-2008, 11:12 AM
Thank you so much for responding, Nana4&cntn !

Last night I promised myself and my husband that I would switch physicians if my current PCP refuses to order an MRI. I neglected to mention that my chiropractor did a lumbar Xray and thought he saw something on the xray in the kidney area in front of an artery and did not want to try any adjustments until my PCP was informed ( I have the film, and it appears to be a circular lesion. ) I brought the film to my PCP to one of my office visits and he sent me for a repeat xray, but he checked off "abdomen" and that xray was normal. He also said that if there had been anything there it would have been seen on the CTscan that I had in ER. He actually seemed aggravated that the chiropractor gave me the film and told me to bring it to him. Also, the lumbar xray did not show any bulging or herniated disks.

I am trying to do things methodically, which is why I began with the gynecologist since the original pelvic pain seemed to mark the beginning of this entire episode. I still have that same pain as well, although not as pronounced. Yes, I did tell my PCP that my back and ribs ache. He asked me to choose the one thing that worries me the most, and deal with that. I told him it worried me deeply that I cannot see more than shadows and light from my right eye, which is why he referred me to the ophthalmologist. I truly appreciate your input, and I will update this board in hopes of helping someone else. It just really seems that this is going so slowly. I think choosing a new PCP is my priority right now. Thank you again!

Nana4&cntn
03-03-2008, 08:49 PM
Just checking in. I am wondering how things are. And how are you?

Kathy