notnu2cp
02-14-2008, 06:27 AM
Good to see you Kevin. I have been popping into BT for years and years it sees and always try to make my to TBI forum when I am here and always Kevin my friend I see you here plugging along and what comfort in the knowing.
Not a big poster but an avid reader and follower.
I have more of a brain dysfunction then an actual injury,post encephalitis fro many many years ago when most Docs didnt even realize there was such a diagnosis.
I spent the better part of my life being labled with mental illnesses that for some reason appeared out of nowhere after being mentally well for years,right? Meds didnt work,therapy didnt work,and symptoms didnt follow "normal"protocols but yet what was the explanation other then mental problems? Years later and many many nights reading and researching each and every article written on brain injuries it all began to come together and make sense.
As someone else stated I was told for years to count my blessings and be happy the hearing loss was all I had leftover from the 4 day coma and month long stay not to mention the year of nothing "feeling" right to me. I accepted that for so long that when I finally found the answers to what ailed me it was like a relief. To finally have a diagnosis,to be able to put a name to the symptoms that made no sense!
Random memory loss,anger out of nowhere for no reason,climbing walls with unexplainable motivators,the God awful migraines that brought my entire life to a standstill at times. The countless mood swings that were looked at as a bi-polar disorder and the brush-offs from family and friends and medical persons thinking that I was merely attention seeking,hypochondriatic and drug addicted as if I wanted to be knocked out for days and sometimes even weeks after bouts with the head pain!
Thank goodness for those who had suffered as I and spoke out! Fought against the categorizing those with brain injuries and helped pave the way to a better understanding of where and what was happening to us.
Even today after great strides have been made we still reain the ost misunderstood of disabilites with only a handful of medical and legal professionals that grasp how life encompassing this disorder is for us and how little is known to treat and relieve the ever changing signs and symptoms TBI sufferes experience. It is so widely differing yet so relatively simililiar between us.
This is and always has been a place for those to come to see you are not alone,others walk the same paths and live the same existance but unfortunately this site has not been utilized as much as others,maybe becuase routine is not something we can adhere to? May be in our forgetfulness the last visit seems closer then it was? Maybe talking about it seems draining at times? I have no easy answer for this. I do know that the soe days the words just dont form out of the thoughts and getting it from my head to the key board is a relentless task for me.
Yet I will come here as I said from time to time and read what others have written and occasionally share my thoughts and feelings if possible with those like me who find it easier to read then form words.
May life be good to each of you today.
Not a big poster but an avid reader and follower.
I have more of a brain dysfunction then an actual injury,post encephalitis fro many many years ago when most Docs didnt even realize there was such a diagnosis.
I spent the better part of my life being labled with mental illnesses that for some reason appeared out of nowhere after being mentally well for years,right? Meds didnt work,therapy didnt work,and symptoms didnt follow "normal"protocols but yet what was the explanation other then mental problems? Years later and many many nights reading and researching each and every article written on brain injuries it all began to come together and make sense.
As someone else stated I was told for years to count my blessings and be happy the hearing loss was all I had leftover from the 4 day coma and month long stay not to mention the year of nothing "feeling" right to me. I accepted that for so long that when I finally found the answers to what ailed me it was like a relief. To finally have a diagnosis,to be able to put a name to the symptoms that made no sense!
Random memory loss,anger out of nowhere for no reason,climbing walls with unexplainable motivators,the God awful migraines that brought my entire life to a standstill at times. The countless mood swings that were looked at as a bi-polar disorder and the brush-offs from family and friends and medical persons thinking that I was merely attention seeking,hypochondriatic and drug addicted as if I wanted to be knocked out for days and sometimes even weeks after bouts with the head pain!
Thank goodness for those who had suffered as I and spoke out! Fought against the categorizing those with brain injuries and helped pave the way to a better understanding of where and what was happening to us.
Even today after great strides have been made we still reain the ost misunderstood of disabilites with only a handful of medical and legal professionals that grasp how life encompassing this disorder is for us and how little is known to treat and relieve the ever changing signs and symptoms TBI sufferes experience. It is so widely differing yet so relatively simililiar between us.
This is and always has been a place for those to come to see you are not alone,others walk the same paths and live the same existance but unfortunately this site has not been utilized as much as others,maybe becuase routine is not something we can adhere to? May be in our forgetfulness the last visit seems closer then it was? Maybe talking about it seems draining at times? I have no easy answer for this. I do know that the soe days the words just dont form out of the thoughts and getting it from my head to the key board is a relentless task for me.
Yet I will come here as I said from time to time and read what others have written and occasionally share my thoughts and feelings if possible with those like me who find it easier to read then form words.
May life be good to each of you today.