WhataBreeze
02-06-2008, 04:07 AM
Hello B/T Community and Online Viewers:
It's a good feeling being back where much of my new career started back here at B/T in 2003 I believe. (Might be 2004) Either way it's truly a blessing. All those days alone in the "Myelin Disorder Forum" just hoping anyone would just say "Hi." With the always popular MS Forum sitting on top, it felt this Forum was justified in staying to help the parking overflow from MS. Oh well, time marches on. My sole purpose of starting this Thread is to give others a first hand view of what truly is involved in what I all called, "Planting My Seeds," as it was my system as I went into this arena knowing what I was and still am up against doing my best being successful on one end as well as a positive assist to both myself and at this time I'm very proud to say the hundreds I've been there for as they similar to me as I new there was something truly wrong prior to the day a bariatric surgeon informed me one year post op that the list of complications I continued to communicate as early as two weeks or less after my surgical release close to two months post op. Yes, somehow I surely don't remember reading that possibility on the Weight Management Information Pamphlets. Yes, at that that "One Year Post Op Weigh In," I get the news, "We now feel that the complications you have been having are early stages of "Parkinson's Disease." Here I am at a time that has been semi staged to be your first call to, "Look At Me Now," and I instead receive news about Parkinsons.
You think that's enough to be concerned over? Where this all took place happens to be at one of the US News and World Report's Ranked Hospitals in many areas. At that point, I'm directed by the Gastric Bypass Surgeon to contact my primary care doctor to have him refer an neurologist to me. I sure hate to say that two floors below at this nationally ranked Hospital along with it's Medical School who are "Nationally Ranked," was my current lead physician today in my CPM (Central Pontine Myelinolysis) team located in Baltimore at the Kennedy Krieger Institute and Johns Hopkins University Medical School and Hospital.
Now it's time for the Double A's to go into effect. I'm now so pleased to say, right here at BrainTalk, I was contacted for the very first time by a gentleman from London, England. Please note this still rates as one of the happiest days of my life. Together we worked daily to set an initial course to both help ourselves along with everybody else who might just pop up which happened.
I do want everone to know, your always kind patience will be a great assist to me as Today is my 6th anniversay since I acquired this Toxic, Demyelinating Neuromuscular Disease of the Central Nervous System. Yes, I'm sure you may remember me as I posted in three or four Forums a day. Those days have slowly slipped into the past but the good news is I'm now not only assisting those similar to what I went through with what now is the 50 Year Anniversary of the finding of this disease that many time is fatal in its first 30 days, but also the headway it's taken me five years to get to. Yes, from my appearances at the US Senate Offices into the NIH and currently "Planting my seeds at the US Health and Human Services.
Stay with me as I will be filling in the blanks so to say. Now the main news going on here with me. FRANKY, my Boston Terrier, now validated as a "Neuro Service Companion," just turned 4 years old in early January.
It's so GREAT to be back!!!
TO BE CONTINUED.......
Franky (Boston Terrier) and Breeze (That's Me)
It's a good feeling being back where much of my new career started back here at B/T in 2003 I believe. (Might be 2004) Either way it's truly a blessing. All those days alone in the "Myelin Disorder Forum" just hoping anyone would just say "Hi." With the always popular MS Forum sitting on top, it felt this Forum was justified in staying to help the parking overflow from MS. Oh well, time marches on. My sole purpose of starting this Thread is to give others a first hand view of what truly is involved in what I all called, "Planting My Seeds," as it was my system as I went into this arena knowing what I was and still am up against doing my best being successful on one end as well as a positive assist to both myself and at this time I'm very proud to say the hundreds I've been there for as they similar to me as I new there was something truly wrong prior to the day a bariatric surgeon informed me one year post op that the list of complications I continued to communicate as early as two weeks or less after my surgical release close to two months post op. Yes, somehow I surely don't remember reading that possibility on the Weight Management Information Pamphlets. Yes, at that that "One Year Post Op Weigh In," I get the news, "We now feel that the complications you have been having are early stages of "Parkinson's Disease." Here I am at a time that has been semi staged to be your first call to, "Look At Me Now," and I instead receive news about Parkinsons.
You think that's enough to be concerned over? Where this all took place happens to be at one of the US News and World Report's Ranked Hospitals in many areas. At that point, I'm directed by the Gastric Bypass Surgeon to contact my primary care doctor to have him refer an neurologist to me. I sure hate to say that two floors below at this nationally ranked Hospital along with it's Medical School who are "Nationally Ranked," was my current lead physician today in my CPM (Central Pontine Myelinolysis) team located in Baltimore at the Kennedy Krieger Institute and Johns Hopkins University Medical School and Hospital.
Now it's time for the Double A's to go into effect. I'm now so pleased to say, right here at BrainTalk, I was contacted for the very first time by a gentleman from London, England. Please note this still rates as one of the happiest days of my life. Together we worked daily to set an initial course to both help ourselves along with everybody else who might just pop up which happened.
I do want everone to know, your always kind patience will be a great assist to me as Today is my 6th anniversay since I acquired this Toxic, Demyelinating Neuromuscular Disease of the Central Nervous System. Yes, I'm sure you may remember me as I posted in three or four Forums a day. Those days have slowly slipped into the past but the good news is I'm now not only assisting those similar to what I went through with what now is the 50 Year Anniversary of the finding of this disease that many time is fatal in its first 30 days, but also the headway it's taken me five years to get to. Yes, from my appearances at the US Senate Offices into the NIH and currently "Planting my seeds at the US Health and Human Services.
Stay with me as I will be filling in the blanks so to say. Now the main news going on here with me. FRANKY, my Boston Terrier, now validated as a "Neuro Service Companion," just turned 4 years old in early January.
It's so GREAT to be back!!!
TO BE CONTINUED.......
Franky (Boston Terrier) and Breeze (That's Me)