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lisag
01-25-2008, 10:08 AM
Hi,
I posted a couple of times about Gary communicating with Neuroswitch , a non- invasive painlesss sensor --that uses very technology similar to an EMG fo communicate --infact disc EMG dry sensor pads are used to operate it on his cheek--though it is completely painless --


I thought I would share a picture of him using it with you guys--- and let you know as well today a segment will be aired locally on WOWT- on the 5 o'clock news - our NBC channel here in Omaha ---


For those who can not watch or see the television airing in our area --I wanted to share pictures of him using it ---unfortunately as this is just a still picture that I am posting -- you cannot see exactly how it works -- but it gives the general idea--of how it works --

http://www.controlbionics.com/

The other computer sitting on the table is not being used any longer -- it was a demo incase it was not compatible with his Freedom 2000 -- but " as it is compatible it was not a problem-" - he was able to use it to scan letters with EZ Keys -- EZ Keys is not required to use it -- but Gary prefers it -- as otherwise on the demo computer he was only highligting already wriiten sentences and phrases-- that are not his original words -- my husband is a stickler for wanting to say "exactly" word for word what he wants to say --and although it was much faster to use that way --he prefers to use his own exact words and sentences to communicate --

Gary's case is a featured testimonal on Control Bionics website --the quoted statements were quoted very accurately -- with one very minor exception --nothing else worked as well-- instead of nothing worked -- should have been the most accurate quote from me --as Gary was at the time before using Neuroswitch able to use the Tash switch --although 3 times slower -- and with great exertion -- it was a growing concern to me that he would become locked in if something was not found soon --as he failed eyegaze trials , outprogresed the headmouse years ago-- and had tried numerous other switches without any success--if the Tash switch failed in the near future -- I was concerned he would become locked - in -- or reduced to blink communicating to alphabet boards --

Also although Gary muscle requirement is almost effortless -- you can not even see any visible movement in his forehead -- or upper cheek area as he uses now when he types with it --I do not want to give the impression it is lightening fast either in his very advanced state --he was typing an average of about a word a minute --prior to Neuroswitch--it is three times faster now but still not lightening fast --I just do not want to give a misleading impression --though others in early stages may be able to type much faster on it --and to those who are OK with highlighting pre programmed phrases -- it works faster that way as well--


It is amazing technology , especially considering his very advanced stage , and we are quite thankful for it -- as it has reduced stress of communication quite significantly -and the fears of him becoming locked in in the near future --

In this picture Gary is using it on his forehead -- however -- on his cheek is where we have it work the absolute best in his case -- this picture was taken during the intial trial period --i so n this picture he is using three seperate square EMG pads--as it was the first site found that worked --



It is not currently covered by Medicare -- however the VA due to Gary's service connected disabilty and level of impairment -- decided at a regional board hearing in Washington DC to cover it in his case -- he was the first to have it covered by the VA --my hope is that it will open the doors to future coverage if it is needed by other PALS-- Lisa

MuonOne
01-25-2008, 12:24 PM
Congratulations on your media coverage!

lisag
01-25-2008, 01:00 PM
Hi Muonone ,
Gary was actually fairly reluctant about wanting to do the television segment.

Even , before ALS, every since I 've known him he did not like the spotlight. And shyed away from public engagements.At party's when he was healthy he was the type of guy to sit in a corner and talk to only a few close friends.

Even before ALS he shyed away from cameras , and did not like pictures of him taken.It has always just been his personality.

Although very reserved and humble , he is a very kind and compassionate person.

As he was convinced , that sharing his experience with this technology may help others, in very advanced stages of the disease , he agreed to do the interview and let Control Bionics-- feature his case on their website -- as a testimonial.

As he does not want others , to fear being locked in , he wanted to help make the public aware that the technology currently exists. Lisa

lisag
01-29-2008, 09:39 AM
Hi.
I now have a copy of the actual broadcast of WOWT's news piece on Gary using the Neuroswitch.

Just click the link below if your interested in watching it.


http://www.youtube.com/watch?v=ykDvZSlaleM