Are your symptoms from food intolerances and hypoglycemia ?

[Marciab]

I've been at this for over 2 years now and have found that many of us suffer with food intolerances and hypoglycemia. Gluten, dairy, soy, eggs, corn and chemicals were causing gluten ataxia (heavy legs and arms, visual distortion when walking, and balance problems) , myoclonus (jerking when falling asleep), insomnia, ADHD, GERD, etc etc.

And I've been dealing with chronic hypoglycemia for years now and didn't realize it. My Doctors instructions were to eat every 2 - 3 hours and I'd feel fine. Well, that never happened for me. :confused: I feel weak, light headed, dizzy if I try to do any excercise without eating immediately prior and my vision gets fuzzy if I eat sweets without a protein. I figured out that I have to eat more often and meat is critical. Granted it's a pain in the butt to keep eating all time ...

Dr. Myhill has an interesting report on how chronic hypoglycemia is common in CFS patients. She does such a good job of explaining this that I've included the link ...
http://www.immunesupport.com/library/showarticle.cfm/ID/8170/T/CFIDS_FM/searchtext/myhill


I'm still having problems with weakness and fatigue, so I started the Paleo diet on Nov 1st, 2007 to see if it helps. Dr. Myhill says that our livers aren't doing their job because there was always glucose available for instant energy and the Paleo / low carb / high protein / high fat diet can fix this over time. :D

I'm trying to go low carb/high protein/high fat, but this diet is harder for me to stick to than the other was. I'm ok without grains, it's the fruits that keep calling my name ... and chocolate ...

I'll let you know if it helps. Meanwhile, I thought others might be interested in seeing this info.

Has anyone here tried this successfully ?

Thanks, Marcia

[Ladybug]

Thank you for sharing.....Great article. My 7 yr old ds is into the 2nd yr of mega testing of every system and rare metabolic condition known to mankind. The only thing found so far was multiple food/dye sensitivities. They have had him on 5 different seizure medications to improve the EEG, but there are never any clinical seizures and he can't tolerate any of the meds at even tiny doses. He's totally messed up from all their trials. The neurologist is doing like the 100th hospital EEG and glycemia test. He totally fits all the symptoms of CFS, but they are also the same for glycemia and thyroid problems. My ds is currently on no meds and just started an elimination diet. No specific diet is used, just eliminate all products with his known intolerance to those categories - i.e. corn, dairy, dyes and preservatives. He does seem better with the protein diet and he does wake up every night in the middle of the night, which is in the article you posted. Next is the building up of anything he is deficient on - spectracell test results are currently pending. The alternative therapy doc has resolved multiple symptoms from the list within this last month, but we are still in the process of sorting all this out. Let me know how the diet goes for you and how you got diagnozed with the hypoglycemia and the cfs?

[Marciab]

Ladybug,

I'm always happy to hear that someone else is taking control of their health. Or better yet, your son's.

I'm still struggling with low energy, but I caught a cold 2 - 3 weeks ago and I think it set me back. I never catch colds, but when I do they like to stick around.

I also was taking an enzyme called DPP-IV that is supposed to help with gluten cross contamination. Come to find out it's not good for those with hypoglcyemia.

I was officially diagnosed with CFS/ME/FM back in 1992, but I first became ill in 1990. Symptoms were extreme pain from head to toe, all my muscles had knots in them, fatigue, repeated URI's despite anitibiotics, white lesions on my brain, extreme cognitive problems (I flunked the nueropsychological testing), fatigue, sleep disorder (nocturnal myoclonus via sleep disorder test) and elevated viral titers (CFS Panel).

My hypoglycemia was diagnosed in 2005 via the 3 hour glucose test. It went down to 64 at the 3 hour mark. That glucose level is not bad according to what I've read, but I felt like hell ...

I actually got really fuzzy headed and my vision got distorted immediately upon drinking the sugar water, but didn't know I was supposed to tell them that. I thought, :mad: this was just my CFS doing this to me, and I had stopped talking about the fuzzy headedness and visual distortions years ago. :(

Is your son gluten free ? There is a known link between gluten and seizures. I had myoclonus (jerking) and it went away after eliminating gluten.

Good luck and I'll keep y'all posted on this ... Marcia