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Diandra
01-15-2008, 06:36 PM
Hi All,
My nerve pain has flared so much I can't tolerate a pair of eyeglasses on my face. I am going to give Lyrica another shot....I had been on it for 4-5 days awhile back and it made me so dizzy i stopped. Perhaps that abates after awhile and I did not give it enough time? thanks, diandra

razmataz
01-15-2008, 07:51 PM
Hi Diandra....

I take 25 mg. of Lyrica day...for neuropathic pain and fibro...my doc wants me to increase it but I wont...it's not too bad...really haven't had any notable symptoms...except hunger but controlled. I took neurontin and it absolutely knocked me down...but he started me at 300 mgs. So a few months later I started Lyrica which is quite similar...no probs at 25 mgs per day...make sure doc starts you out at a low dose..then you can decide if you want to increase.. Good luck and let us know.

Razmataz

houghchrst
01-15-2008, 08:12 PM
I had no problem with Neurontin just stopped working after awhile but the Lyrica I had dizzinesss, blurred vision and a migraine for 18 days when I finally said I quit. I tend to be pretty med sensitive. oh yeah and let's not leave out the nonstop urge to eat. I hope you have better luck.

debhun
01-15-2008, 08:39 PM
The sweling was so bad when I was on it and at that time swelling wasn't a SE. I was also loopy too. I hope to never to be put on that ever again. Good luck with it

Deb

MamaRider
01-16-2008, 01:21 AM
I have been on it so far a month and a half and am up to three a day. Daughter-rider is on two a day for abour a week and so far so good for her I have to say, I do have some food craaving, but I have had some problems with that any way. She is having a bit of dizziness, but, we think that should pass.

Things will be great in 2008!

Gimpy
01-16-2008, 01:45 AM
I tried it one day, thought I'd developed epilepsy my arms were flailing so badly. Gotta listen to the dr. so I try it one more day, same thing; they got flushed. Not all meds are good meds. I'm on an anti-med kick lately so don't read to much into what I say except for my experience with this particular drug.

G

Peter B
01-16-2008, 02:24 AM
Hi Di,
Lyrica was a good med except for the fact that my hands swelled up so much I couldn't even pick my nose. I'm sorry. That's gross.
I couldn't even play the piano. Is that better? lol

Pete

Diandra
01-16-2008, 03:30 AM
Hi,
I am curious, since Razmataz is doing well on what sounds like a low dose of 25mg only once daily, can those who had a good outcome or not tell me what dose you tried or are currently taking?

My pain doc started me at 50mg two times a day. He said that is a low dose since I am very sensitive to meds like Christina. I took my first dose at 5pm along with norco and it knocked me out so bad could not make dinner, just fell asleep on couch but, now wide awake and pain is back at 2 AM. I am very dizzy but, it helped the nerve pain already so I am going to stick it out for a week. I have a very hard time asking people for help but since I can't drive because I am so dizzy, I did tell my husband and good friend that I needed help for a week so they are pitching. Bless them. I know it is nuts to do this but I am desperate for the pain relief and upping the opiates aren't helping much with nerve pain and the MScontin side effects were just too much for me.

Thanks, Raz,Christina,Deb,MamaR,Gimpy and Peter for your input. Pete, hope you are back to playing the piano;)

Gimpy, I think it is good you are on an anti med kick...I think we all go through that from time to time and it is good to examine what we are doing medication wise.

Sweet dreams all,
Diandra

Lil E
01-16-2008, 07:10 AM
I too am taking 25 mg Lyrica twice a day and it's working very well. Some of these starting doses were determined by trying them on men and not taking into consideration that women are smaller and lighter. I took 25mg at night for a week then started taking one in the morning also. My nerve pain in my legs is just about gone.

I remember when I tried Provigil for my fatigue. It comes starting at 200mg. Well....
I bounced off the walls all day, was nervous and jittery, my head was all mixed up. It took all day to get it out of my system. I saw my PM today and told him I was tired all the time, he remembered the Provigil problem and asked me (jokingly) can't you just cut it up until you have 25mg? I'm lucky that I don't have anywhere I have to be just doctor appointments.

I'd try the 25mg and work my way up Diandra, did he have you start all at once? if so that is more likely the problem. I'd try it 25mg once at night for a week, it helps for sleep, then 25mg in the morning for 50mg a day and stop there if it works.

slipnslide
01-16-2008, 09:29 AM
I'm wondering about Neurontin:confused:. I've read that Neurontin and Lyrica are in the same drug class and are used to treat some of the same types of neuropathy, however they work differently. According to drugs.com, "Neurontin affects chemicals and nerves in the body that are involved in the cause of seizures and some types of pain. The exact way that it works is unknown.":rolleyes:

I started taking Neurontin a month and a half ago and have not noticed a decrease in pain, instead just some SE's. I have some dizziness w/ trouble focusing off and on throughout the day, along with memory problems. The SE's listed for Neurontin include "dizziness or drowsiness", but since I've started taking it, I've experienced insomnia....how weird is that? Has anyone else had this same problem when taking it?

Diandra,

I'm not trying to hijack your thread...lol...I'm having the same problem with Neurontin and thought since these drugs are so closely related, it was a good place to post my question. I apologize:o:)

Kim

Kathi49
01-16-2008, 09:38 AM
Diandra,

I have tried Lyrica 5 different times...each time thinking I can take it and stay on it. The dizziness I had only lasted for 3 days and then passed. The darn thing about it...every time and usually into the 5th day...my muscles ache like crazy. And...I have even gone as low as 25mg. I just can't take the stuff. It even felt like my arms wanted to curl up. Weird I know!

Kim,

I never had insomnia on Neurontin but plenty of other SE's that never did pass. Oh, well, and as I have been told...I am just one of those that can't take or tolerate either one. Just hypersensitive I guess. Who knows, I have long since stopped trying. :(

BrokenBladder
01-16-2008, 10:04 AM
Diandra,

I was given Lyrica a year or so ago and I couldn't tolerate it either. I was started out on 25mgs 2x per day.

I stayed on it for about 3 weeks, but I was dizzy, loopy, blurred vision, and my toes felt like they were in a cramp as the med would wear off and I was approaching my next dose. Oh and I did have swelling as well.

My doctor told me up front that alot of people simply couldn't tolerate this med. Whatever you decide to do I would give it a couple of weeks just to see if the side effects will subside.

houghchrst
01-16-2008, 12:42 PM
You know I just checked on Moodtracker to check the dosage they had me start on and it was 75mg 2x a day. I wonder if 25mg 2x a day would have been a more appropriate start. I was somewhat tolerating the se's except for the terrible migraines. Maybe I should bring it up next time because I will be seeing him before I get to see the PM doc.

Diandra
01-16-2008, 10:25 PM
Hi All,

Lil - I think your idea is best to back off and restart at 25mg, yes, he did have me start at 50mg - 2x daily. I am seeing my pain doc tomorrow and will ask to do restart at 25mg. I had the exact same experience with Provigil....it was a horrible feeling...I was given the same dose and just bouncing off the walls, felt like I had an electric current in my body.

Kim - you did not hijack the thread...not to worry. I actually had an easier time with Neurontin but got quickly accomodated and as we upped the dose, the SE's were too much to deal with but, i did have great pain relief for over a year. No insomnia. If you have been on it this long with no pain relief, perhaps it is not worth it. The pain relief should have been apparent by now. The one thing you could take from the experience is that perhaps the pain you are experiencing is not neuropathic pain. Just a thought Kim.

Kath - I will back up and restart at 25mg and good to know your dizziness abated after a few days as the dizziness had been brutal. I cannot drive and today I was so loopy and uncoordinated, I closed my hand in a door. I feel off kilter like I have been drinking alot of champagne. Will see what happens to me on day 5!

Lisa - thanks for telling me about your experience....sorry it did not work for you. I am going to give it at least a week but, can't really afford to not drive for much longer than that.

Christina - what is Moodtracker?

Does anyone know, can I just stop this drug or do I have taper of it? thanks.

Thanks all, Diandra

razmataz
01-17-2008, 12:38 AM
Diandra...

I'm not sure how long you've been taking Lyrica....but NO...you
should not just stop it..if it's been awhile...tapering is a must...I'm
sure your doc will advise you tomorrow..good luck and let us know.

Razmataz

Lil E
01-17-2008, 03:17 AM
Neurontin is notorious for s/e's and very high doses. People on this board talk about taking 2400mg and up. They also get zombied out. I wouldn't take it if it took all my pain away.

Diandra
01-17-2008, 05:22 PM
Hi All,
I just got back from my pain doctor. He put me on 25mg Lyrica- 3X a day instead of the 50mg (it said 3x a day on the bottle and I was for some stupid reason thinking it said 2x daily!). He also added Cymbalta - one dose at bedtime of 20mg(he had 30 mg samples he wanted to give me but I asked for the lowest dose since I am having so many issues with Lyrica side effects.) My regular pain med is Norco(10/325) every four hours and Soma as needed. He asked me to only used the Soma as absolutely necessary as he was concerned about all the new meds he had given me.

I asked him how long the Lyrica side effects lasted before they subsided and he said 3-6 weeks....don't know if I can, or want, to hold on that long.

Will let you know how I do on the lower dose Lyrica. I sincerely appreciate all the good advice and info from my friends on this forum. You are all wonderful.
Love you all,
Diandra

houghchrst
01-17-2008, 06:13 PM
Diandra, moodtracker is a website that I use to keep track of my meds, moods and pain. A journal type site and will also graph the info for you. I haven't been there in about 2 weeks though I posted everyday for like the last 8 months. I got tired of writing the same thing everyday. Guess I should get back at it again.

I hope the Lyrica and Cymbalta work for you. You most definitely should titrate down if they do not work. I had to quit cold both of those because of the SE's. Fortunately I had not been taking them long. They Cymbalta only about a month, became suicidal, and the Lyrica 18 days.

Lil E
01-17-2008, 06:34 PM
Why Cymbalta? That is a nasty med, it's for depression, if you don't need it don't take it. Have you read Bluebirdys post on her problems getting off it? The Lyrica, Norco ,Soma combo should be o.k. you'll probably be tired for a while. There should'nt be too much s/e from the low lyrica dose but did he give you a titration schedule? You don't just start taking it three times a day, thats why you get s/e's.

The schedule I had looked like this: One at night for one week. One day and night for one week. Then three times a day every other day for one week, after that 3x a day.
I found I was good at one daytime, one night and thats where I stayed. You don't have to use it 3x a day if you don't want to. Good luck. PM me if you need to.

houghchrst
01-17-2008, 06:44 PM
I wish I would have known all this info on Lyrica when I started it because it really was our last hope for getting some relief from my primary care doc. I did all the research but that is still nothing compared to hearing from lots of experience.

Diandra you may want to start the Lyrica and see how that goes and Lil is right if you don't need the cymbalta then there is no sense in taking it. My doc doesn't like to give me two meds at the same time like that because if I am going to have a reaction we don't know which on it is. I still am of the mind that only psychiatrists should be prescribing the Cymbalta. Most physicians are not aware of the possible psych side effects. It is like giving someone who does not have a mental illness an antidepressant. Can be especially bad if someone is BiPOlar and undiagnosed or really with any undiagnosed mental illness.

Kathi49
01-17-2008, 09:32 PM
Diandra,

Should you decide to take Cymbalta please let us know how it goes. My Neurologist prescribed the 20mg as well and I did fill it. But after reading BB's posts, I am hesitant to take it yet. And let us know if the lower dose of Lyrica works for you. :)

Diandra
01-17-2008, 09:43 PM
Hi,
Lil - my doc gave it to me 25mg- 3x but not on a schedule. I found that the two days I was on Lyrica it never lasted for 12 hrs, only lasted for 7-8 so he put me on 3x daily. The reason is, my trigeminal neuralgia pain has flared very badly and I am really suffering.

That was also the reason for adding the cymbalta. The doc and I sat and reviewed all the stuff I have ever taken for pain and one of them was Elavil, but I could not tolerate it. That is when he brought up Cymbalta and he asked if I had felt depressed at all and I said, yes, lately because the pain has escalated suddenly for no reason I can find. So he said, let's try 1 Cymbalta at night. Christina, I had decided to wait a week or so before I try it since I have just started the Lyrica.

He did bring up the withdrawal issue and said that was in issue for some. I have to say, when I googled Cymbalta withdrawal, some youtube videos came up about it and they were downright frightening.

Thanks friends, I appreciate your warnings and concerns. Kathi, I will come back and let you know how Cymbalta goes when I try it.

Diandra

slipnslide
01-18-2008, 02:16 AM
Diandra,

I'm on such a low dose that I don't know if that's why the Neurontin is not working (or barely touching it:confused:), or if I'd actually be in more pain if I wasn't taking it, because with the weather changes, my pain has been up a bit anyhow....who know's:confused:. I'll discuss it with my PM in 2 weeks when I see him.

As far as you taking the Soma, I would go ahead with it, but I agree with the other posters about the Cymbalta. I'm not a doctor:), but I would give the Lyrica and other meds a shot and see how you feel after you get used to them before deciding on the Cymbalta.

Best wishes,

Kim

Diandra
01-18-2008, 06:06 AM
Hi,
As I have been researching Lyrica I have found other sites where people offer their experiences. There was alot of talk about weight gain and some talked about relief from depression/anxiety. I had no idea it affected depression or anxiety. Has anyone experienced any of these? I have found it is making me very chatty, to the point I am not only annoying myself but, the poor schnook sitting in front of me and having to listen (usually my poor husband!):)
Thanks, Diandra

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Just answering my own question here....this is an article that says Lyrica has been approved in Europe
for anxiety disorder. Like I said, I had no idea about that, thought it was just for neuropathic pain.
http://www.medicalnewstoday.com/articles/40404.php

Kathi49
01-18-2008, 08:55 AM
Kim,

I went from 300mg of Neurontin to 100mg and then finally to 50mg (in an Elixer form)...just couldn't handle the SE's AT ALL! It did help just a wee bit but the price I paid was barely being able to drive (had to have my husband drive me to work eventually) and walking into walls. And the pain continued in my neck and head no matter what I took. But of course that was before any fusions. I tried it again after surgery and down the road for neuropathy...same thing. I just can't hack it. Actually, I could handle the Lyrica much better at a smaller dose. It is just too bad my muscles reacted in such a way I had to stop it. Otherwise, it helped with the neuropathy bit fairly well.

Lil E
01-18-2008, 09:49 AM
Di,
I sometimes focus on my pain meds when I'm having a bad flare and forget to take some of my others. I did this last week and forgot the lyrica for a day and a half. I woke that morning with a lot of anxiety and couldn't think of what I had done wrong. My DH (the stroke guy, its what my future SIL calls him) got me calmed down and had me go over what I had missed which was lyrica. I took it and it calmed the anxiety real well. I didn't know it was good for that either.

IMO I believe most meds should be titrated. You don't know what's going to happen if you suddenly dump 200mg of something into your system. It is crucial for women, being so much smaller than the men they usually test these things on.

Aside to Kathi, have you tried Baclofen? It's great for spasms but I got hives from it.
I really like these kind of threads, we get so much more info than doctors give us.

Kathi49
01-18-2008, 10:58 AM
Lil E,

I really agree with you about starting low. It is like the Cymbalta deal a few weeks ago. I told my Neurologist...start with the lowest dose possible. Anymore, I make it a point to tell most of my docs the same thing.

Oh, and I did put a post out there to Kira about Baclofen. IF that particular med won't make me loopy, I would be more than willing to give it a try. :)

And this has been my biggest beef for years. I do NOT hate meds, I wouldn't mind even going higher if I could handle it. But someone PLEASE explain to me how I can drive and get from Point A to Point B for PT as an example? The docs say to keep moving...so I am trying. But I REFUSE to drive if feeling loopy, zombied out or extremely dizzy and nauseated. If my husband were retired, it would be a different story as he could drive me where I need to go even if I felt rough. But for now...the best thing is to stay low and get to PT on my own for as long as I am able.

I am really looking forward to the aqua therapy. It may or may not help. But if it helps to give me relief for a bit, I am going and sticking with it for as long as I can. I KNOW it will probably NOT FIX the problem; but taking the load off my back may help a bit.

houghchrst
01-18-2008, 12:12 PM
When I mentioned to my psychiatrist that we were looking to start the Lyrica she was all for it. Told me to stop taking my Xanax, unless I really felt I needed it, and my sleep aids because she said that it should help in those areas. I slept wonderfully and my anxiety levels went down. AT least until the head pain wouldn't go away. I also was hungry all the time. I had to be careful when grocery shopping because if I bought anything to munch on it was too tempting to eat it all day long LOL. Last thing I need. No willpower there.

jimac
01-18-2008, 07:29 PM
I started taking Lyrica a little more than a year ago for radicular neuropathy in my arms and hands. I started at 75mg AM and 75mg PM. I have been able to slowly increase the dosage to the maximum of 600 mg a day.
When I first started it did have two main side effects. Dizziness and blurry vision. Both of these passed in a few days. It did help with sleep at first but not so much now. But it did make a big impact on the burning, tingling and some of the pain in my arms and hands. I would say that my symptoms have improved 60 to 75%. I had a Neurologist appointment last week and he asked if I wished to continue with Lyrica.... I said yes! most definitely.
At the higher dosages it does have an effect on my short term memory. But It is easier to take a few notes at work than to endure the burning etc..
I also have been taking Cymbalta for the last two years. So I really can not say if it is Lyrica alone or the combination of the two.
Oh! I must say if you take Lyrica, don't ever forget to take it on time. The Friday before New Years I forgot to fill my Rx. I figured that I would fill it on Saturday. Well on Saturday I looked at the bottle and I had NO refills left. My Neuro was out until Jan. 2 and to make a long story short... I went until late Sunday without. That was only 48 hours and let me say that I started feeling the "discontinuation syndrome" within 16 hours. I was a basket case by the time I went to a walk in clinic late Sunday afternoon and my neuropathy was so MUCH worse. The Doctor there gave me an Rx for a month.
I really can not describe the feelings both physical and mental. I have never made that kind of mistake before and hopefully never will again. :(
I tolerate Lyrica much better than Neurontin. I was a zombie on 2400 mg of Neurontin.
Jim

ErinENj
01-19-2008, 01:32 AM
Diandra - Sorry, little late on this (been a really rough week), but I've had a fantastic result with Lyrica. I take 100mg three times a day (every 8 hours I think...I can't ever remember), and it has worked wonders. One of the symptoms that used to really just push it all over the edge so to speak was the nerve pain running down my legs. There was never anything anyone could do about it. They tried the anti-depressants, anti-seizure meds, but it never really dealt with it all fully. But the Lyrica has worked wonders. I actually don't really have the nerve pain anymore. I know that it's a bad day when I get even the slightest bit of traveling pain. It's made things at least a little more bearable.

I've been on it for awhile, I know it's more than a year, but I'm not really sure exactly how long I've been on it (I really have to make up a record of how long I've been on what). From what I remember, it was one of those meds where it took a little time to build up in my system, but once it did, it was great. I started on 75mg three times/day, and have only gone up 25mg a dose in that length of time, which to me says it works, and even better, it does something for the pain, which says it's 100% a success.

I hope that you find some relief with whatever you find works the best for you. It's another one of those cruel ironies of this life - things that are supposed to work for something don't always work for that purpose, but may work really well for something else. And, as per usual, nothing works for everyone. So I hope that your road to finding that thing that works for you best is very, very short and that you're almost done traveling that road and soon on to an easy, non-potholed road! (Sorry, feeling slightly poetic at the moment...:D)

slipnslide
01-19-2008, 01:02 PM
Kim,

I went from 300mg of Neurontin to 100mg and then finally to 50mg (in an Elixer form)...just couldn't handle the SE's AT ALL! It did help just a wee bit but the price I paid was barely being able to drive (had to have my husband drive me to work eventually) and walking into walls. And the pain continued in my neck and head no matter what I took. But of course that was before any fusions. I tried it again after surgery and down the road for neuropathy...same thing. I just can't hack it. Actually, I could handle the Lyrica much better at a smaller dose. It is just too bad my muscles reacted in such a way I had to stop it. Otherwise, it helped with the neuropathy bit fairly well.

Kathi,

I'm taking 100mg 2x/day of Neurontin. I "wobble" from time to time, but immediately regain balance, it's not like I fall or anything like that, instead I just step off to the side when walking, then get right back on track.:o

I tried this little balance test just for fun and the result were frightening!:eek: I won't even tell you what age range I fell into....lol:o

http://www.realage.com/WorkoutCenter/Articles.aspx?aid=10318

Kathi49
01-19-2008, 02:23 PM
Kim,

LOL! And again...laughing WITH you. :) I will have to try this out later on...getting ready to go out for a bit. But, hey, besides the meds...it is our darn necks I think. :eek::) And that's another reason I decided to go for aqua therapy. I am not falling over...but I do stumble quite a bit. My best friend asked me the other night if something was wrong with my shoes LOL! But, I told her no...my body is just haywire.

slipnslide
01-21-2008, 04:30 AM
Kim,

LOL! And again...laughing WITH you. :) I will have to try this out later on...getting ready to go out for a bit. But, hey, besides the meds...it is our darn necks I think. :eek::) And that's another reason I decided to go for aqua therapy. I am not falling over...but I do stumble quite a bit. My best friend asked me the other night if something was wrong with my shoes LOL! But, I told her no...my body is just haywire.

Kathi,

LOL...did you get a chance to try it? If so, you have to let me know how you did!:D

Has anyone else had a chance to try the little balance test? I'm wondering if I am the only spaz!?!?!:o:D

Diandra
01-21-2008, 04:41 AM
Hi All,
Just thought I'd let everyone know that restarting Lyrica at 25mg-3x daily is working much better. I am still a little wobbly but, it is very slight. The best thing is that neuropathy has been softened quite a bit. The pain is not all gone but, much better....it had gotten so bad I was feeling that panic feeling you get when your pain is out of control and you have taken every drug you have and done everything you know and the pain is still really bad.

I really appreciate all the support.
Diandra

Kandra
01-22-2008, 04:51 AM
Diandra,

I wish you and everyone else trying and using Lyrica the best...my PM told me 300mg/day is "normal" and was supposed to be increased by 50mg increments every 3 days...eek!

I made it up to 200mg and it had no effect on my pain plus the side effects weren't pleasant. Very similiar to Neurontin and I saw somewhere in this thread someone asking
about Lyrica being in the same class as Neurotin and it is...Neurontin gave me the same side effects only worse.

Kandra

Kandra
01-23-2008, 05:32 AM
I just received a message from a member of another forum relating her Lyrica experience...she has just been discharged from the hospital.

She had started the Lyrica and it made her very dizzy and off balance..but she continued to take it because she was in such pain that she was willing to put up with these side effects if it would help.

She ended up developing severe swelling in her legs which diuretics didn't relieve...and then was taken to the hospital with asthma/breathing difficulties as her doc decided he wasn't going to wait any longer to see if the side effects went away..sheesh.

I would suggest that if anyone taking Lyrica develops swelling/edema in their legs to contact their doc immediately.

gambles
01-23-2008, 02:12 PM
I started in Sept and thought the headpain, dizziness, (pus)***** lips, and blurred vision were going to kill me but my back and leg pain was MARKEDLY BETTER! I was on 50 mg tid for 2 months. Then I went up to 75 mg tid. I just started 100 mg tid. Each time I seem to find that I get pain relief, but then it dissapates though never to as bad as when I started. I'm sill on that rollercoaster.

The important part is that each time that I gave it 2 months, the side effects did go away - pretty much completely with the exception of my lips still peeling slightly and the blurred vision sometimes. The unbearable head pain and the dangerous dizziness went away completely.

For that reason, based on my experience, it is well worth trying to push through the misery of the onset of Lyrica. That may not be true for all people, but it has been for me. I have even driven myself to Home Depot for the first time in 10 years and gone through a few drive throughs. I've managed a little gardening I could never have done before.

I hope I find a dose that will even off and allow me to have some semblance of life which I haven't had in years.

In the late 90's, (before my spinal accident - I was trying them for migraines) I did VERY poorly on both Topomax and Neurontin so I was afraid of Lyrica, but I was still desperate enough to try. My doc just gave me Cymbalta as I spend my days crying. I'm hoping it will help with the pain and the depression though having something to do other than stare at the tv would be my best med.

I hope all that helps. I also found that website were people list their experiences with meds instead of just hearing about what the manufacturer says. That made me realize Lyrica could be a godsend or hellish. I'm hoping some dose will be the former for me.

Good luck,
Suzanne

jimac
01-23-2008, 04:21 PM
Gambles,

Take it slow on the titration and your system will adjust. I did and I love Lyrica.
LOL..... an adjective. :rolleyes:

Diandra
01-23-2008, 06:25 PM
Hey Kim....I did try the balance test and even on the Lyrica I did not do too badly but, I do yoga and a balance by standing on one foot and closing my eyes all the time so I think that is why I did OK.

Suzanne...I feel like we were in the same position with Lyrica...the side effects sucked but the pain was worse so you chose the lesser of two evils. I am very happy I stuck it out. Now just one week into it I am doing much better. Not all the way better but my neuropathy was so bad I could not wear my eyeglasses or even a ring or bracelet on my right side...I couldn't even wear a turtleneck sweater I was so senstive. Now at least I can wear my glasses again and wear regular clothes instead of living in a loose nightgown. My doc actually just scripted me Cymbalta and I have decided to wait another week or two before I take it so I could get more accomodated to the Lyrica. I would be interested to know how you did with the Cymbalta. If you don't want to share on the open forum, please feel free to PM.

Hope everyone is doing well today.
Diandra

P.S. Totally NPR but, we just saw the movie Juno and it was well worth seeing. We really enjoyed it.

Stetson
01-26-2008, 02:48 PM
Lyrica makes my arms and hands do funny things.I will not take it 3x a day as Iam
suppose to as my arms jerk all the time.I will only take it a night when I know I am home
for the night.

Spiney
01-26-2008, 03:17 PM
I have been on Lyrica for about 18 months...........25 mg tid. It really knocked me for a loop for the first 3-4 months but WAS reducing the pain. I just scheduled the pills to avoid the increased risk of falling. I would set the alarm for two hours before I got up and took the first one. I took the second one right before my afternoon nap and took the third at bedtime. Eventually, the dizziness stopped. At 18 months, the dosage still does the trick. Best wishes.

Nana4&cntn
01-27-2008, 12:41 AM
Hi All,

I call Lyrica my miracle drug. My sciatic pain is gone,:) Before I was using a walker or walking the walls for support. I also haven't ben falling as much or have foot drop. The only problen is the need for chocolate:mad: Seriously.

I take 75mgs 3x;s a day. Although I was titrated very slowly. I do have a very hi tolerance to meds. But, Unless it was going to kill me I will fight to keep it.:eek:

Kathy