CJD - PEM Similar Symptoms - Maybe same treatment

[ainee]

CJD symptoms are similar - give or take a few - to PEM - Polioencephalomalacia or CN - Cerebrocortical Necrosis (wasting or decaying of the brain) in livestock - so perhaps similar symptoms in humans could be treated with the same treatment. The treatment for PEM in livestock is Vitamin B1.
Maybe VB1 - either injections into the veins as for the treatment in livestock or in tablet form, at the right dose as per body weight and frequency - could be the treatment to give better health to those who suffer CJD or any other neurological illness.

Through my research, I believe prions are NOT the initial cause of CJD and likewise illnesses, but lack of oxygen to the brain due to injury and/or toxin, which would allow an anaerobic to grow and multiply, could be - and a simple treatment as for a neurological illness in livestock could just make a difference between life and death. I wonder if there is a doctor or family member of a loved one who's suffering CJD, interested in following up on my research?
ainee.

[Buttons2]

Ainee, I just replied to your post on the salt pipe thread. I have been taking B12 Methylcobalamin for awhile,also folic acid,B1,B2,B6. I also cut Aspartame out of my daily life except for a diet Pepsi (used to drink 5-6 per day!! plus Atkins products).

Thanks for this info,Buttons

[ainee]

Buttons - Some info I read in the Hungerfords diseases of livestock book, said that a vet in 1968 had used VB1 for the treatment of PEM. I actually found that vet a couple of years ago and asked why the VB1 worked in saving sheep - and a cow also mentioned - which had PEM. The vet didn't know, but the article said 250mgs of VB1 was not good enough, but 400 mgs was a successful treatment. More research found that the VB1 had to be given in the correct quantity as per body weight and the mob had to be checked 3 times a day - hence 3 or 4 doses a day.

PEM and CJD have similar symptoms - BSE also has similar symptoms. Although the cause may be different - I believe from my research, that these brain wasting or brain decaying illnesses and other neurological illnesses and conditions - which probably lack oxygen to the brain due to injury to the head and spine or from toxins from stock feed, or any other cause, may be treated succesfully with the same treatment as for PEM.
Research has found that VB1 has water soluble properties of carbon and hydrogen, which when taken, increases the temperature of the body, increases breathing, increases blood and oxygen content to the body and also to the brain, over an extended period of time, to repair the damaged caused to the nervous system - and if this easy, simple treatment which has been scientifically tested in the successful treatment for PEM in livestock hasn't been tried for treating CJD and also BSE - what are they waiting for?
ainee

[Buttons2]

Hi Ainee, I just pulled out my old Nutrition almanac from 1975. Had lots of good info about B1 (thiamine). I now recall that in the 70's I sprinkled wheat germ on cereal & made my kids gag down a teaspoon of blackstrap molasses everyday! I put brewer's yeast on food also! I was a health nut back in those days & was healthy.

Had forgotten all about those days until reading my nutrition book!

I'm just too slack on taking my vits & I know it's up to me to do this!! They are so cheap. And I've been praising B12 for several years now. I just have to descipline myself to use my store of vits everyday....

You ask what are they waiting for?? Well, it's all about MONEY. We are being killed off by big pharm companies that rule! If the FDC had their way we wouldn't even be able to buy vitamins! And these days all the good nutrients are taken out of our food source.

What research I've read on CJD is pretty disheartening,again-it's the money game! So what if a few people die,beef is big business! I don't trust our government one bit to protect out food chain.

I used to be a vegetarian,seems like that might be a good idea again! I've refused to eat deer or elk for many years now & after reading some of the links here I'm glad I had that much sense at least! Again, there's alot of $$$ at stake!

We are what we eat!
Buttons

[ainee]

Thanks Buttons and Lara.
I guess we do know that it's money that drives the world - in every aspect. But what use is a world full of ill people? - many without the means to get medical help or the medication they need.
You know - after all my research, I don't think there's anything wrong with eating meat - unless it's from an infected BSE beast and if anyone gets ill, then MOT - Mini Oxygen Treatment - may be all that's needed to get reasonably well again. I suppose many have read my posts and know what I'm talking about - my uphill battle to get heard. Buttons - I've answered some questions on the Complementary etc. thread.

I believe CJD may be caused due to injury and/or toxin. Injury to the carotid body - in the neck - can cause an imbalance of carbon dioxide and oxygen to the brain, which can cause neurological symptoms. Several CJD case studies, speak of injuries, falls, accidents etc, sometimes a long time before any symptoms arose - maybe others have forgotten injuries or unknown injuries, that the families don't even know about.

Lara, I remember your info on Beri-Beri in the old BT. Thanks for mentioning the sites again. Well worth another look.
I've heard that there is less oxygen in the atmosphere now, than there was 100 years ago. We have only about 23 percent oxygen in the air we breath and less if there's a low in the atmospheric pressure or at night time. This quantity - 23 percent - may be enough for anyone who is fit and healthy - but when you're not fit and healthy, you can't breath in enough oxygen over an extended period of time, to repair damage done to the body and nervous system, due to injury and/or toxins. There are a lot of illnesses and conditions which lack oxygen in the body - many illnesses and conditions seem to have similar neurological symptoms - so MOT, which increases the oxygen content to the body 24/7, may just give some a chance to live a normal life.
ainee.

[flatfish]

CJD symptoms are similar - give or take a few - to PEM - Polioencephalomalacia or CN - Cerebrocortical Necrosis (wasting or decaying of the brain) in livestock - so perhaps similar symptoms in humans could be treated with the same treatment. The treatment for PEM in livestock is Vitamin B1.
Maybe VB1 - either injections into the veins as for the treatment in livestock or in tablet form, at the right dose as per body weight and frequency - could be the treatment to give better health to those who suffer CJD or any other neurological illness.

Through my research, I believe prions are NOT the initial cause of CJD and likewise illnesses, but lack of oxygen to the brain due to injury and/or toxin, which would allow an anaerobic to grow and multiply, could be - and a simple treatment as for a neurological illness in livestock could just make a difference between life and death. I wonder if there is a doctor or family member of a loved one who's suffering CJD, interested in following up on my research?
ainee.



Ainee, your vitamin b1 will NOT cure CJD and you know this.
we have discussed this before, about you spreading this false hope to these poor victims of CJD, and it is sinful to say the least. shame on you! these poor families want hope, not lies, and this is a blatant lie that you know does not work. many have tried these vitamins and other cocktails of false hope to know avail, but to continue to spread these lies, when you know they do not work for CJD, is a smack in the face to every person out there with CJD and there families. IF this worked for you, fine and dandy, glad it did, but you did not have CJD. I just wanted to clarify this for the cjd victims and there families lurking here that may not know any different, or may not have read your endless ranting about how your delusional vitamin b1 curing CJD. please reference any study where vitamin b1 has ever cured anyone from CJD???


ainee, i see now you think you have MS instead of CJD ???


ainee,
10-26-2006, 09:21 PM
Join Date: Oct 2006
Posts: 19


Info may help MS symptoms.
--------------------------------------------------------------------------------

I had symptoms similar to MS. My test for MS, along with many other tests, were clear. I had injury to my spine years ago and a chemical overload, which I believe, over time, caused neurological (nerve) symptoms. My symptoms seemed to cross over many different neurological illnesses and conditions, so I believe the treatments I experimented with, could help give better health to anyone with neurological symptoms regardless of diagnosis or cause.
I experimented and found that 250mgs Vitamin B1 - 3 times a day as suggested on the bottle - suppressed my symptoms within 10 minutes to an hour. After much experimentation, I rose the dose to 500mgs 3 (or 4) times a day. After 18 months of experimenting with VB1 - and other treatments which probably have never been scientifically tested for medicinal purposes - my symptoms started to reverse. It took another year to gain reasonably good health - most of the time - now with only a few slight symptoms.

VB1 and the other treatments, rose the temprature of my body (as if excercising), increased my breathing, blood and oxygen circulation, over an extended period of time, to repair damage done to my nervous system.
I'm not claiming MOT - Mini Oxygen Treatment - to be a cure for anything, but I certainly have better health now. Several other people with all sorts of illnesses and conditions also said they had better health while taking what I suggested. I wouldn't take VB1 if I was on pain relief, but found Vitamin C also suppressed the symptoms - I started off with 1000mgs - 3 or 4 times a day - then rose the dose to 3000mgs.
Now 5 years later, I still take the lesser dose of MOT 3 times a day to retain my health. A friend with MS, took VB1 for a few days, which reduced her shaking, but she discontinued it as she was on other medication. The other treatments which worked as well, have similar properties to VB1 and VC, or have a volatile compound. Maybe my information, my experimentation, trial and error, will help others to gain better health.
ainee.

http://brain.hastypastry.net/forums/showthread.php?t=2610



ainee,


i thought you thought you had CJD, and had the cure all for it ???

NOW you think you might have MS and have cured it too ???

which is it ???




10-27-2006, 12:10 AM
ainee
New Member Join Date: Oct 2006
Posts: 19

CJD - PEM Similar Symptoms - Maybe same treatment

--------------------------------------------------------------------------------

CJD symptoms are similar - give or take a few - to PEM - Polioencephalomalacia or CN - Cerebrocortical Necrosis (wasting or decaying of the brain) in livestock - so perhaps similar symptoms in humans could be treated with the same treatment. The treatment for PEM in livestock is Vitamin B1.
Maybe VB1 - either injections into the veins as for the treatment in livestock or in tablet form, at the right dose as per body weight and frequency - could be the treatment to give better health to those who suffer CJD or any other neurological illness.

Through my research, I believe prions are NOT the initial cause of CJD and likewise illnesses, but lack of oxygen to the brain due to injury and/or toxin, which would allow an anaerobic to grow and multiply, could be - and a simple treatment as for a neurological illness in livestock could just make a difference between life and death. I wonder if there is a doctor or family member of a loved one who's suffering CJD, interested in following up on my research?
ainee.



http://brain.hastypastry.net/forums/showthread.php?t=2627



6/10/06



http://disc.server.com/discussion.cgi?disc=7498;article=3041;title=CJD%20 Voice%20Discussion%20Group


http://disc.server.com/discussion.cgi?id=7498


http://disc.server.com/discussion.cgi?disc=7498;article=3052;title=CJD%20 Voice%20Discussion%20Group


http://disc.server.com/discussion.cgi?disc=7498;article=3063;title=CJD%20 Voice%20Discussion%20Group



ainee will stoop as low as to go to the site of cjd foundation and other cjd sites guest book for families dealing with there loved ones dying and or dead from cjd, time and time again. she literally chases the dead. ...



Posted : 03/11/2006 8:57:44 PM Name : ainee E-Mail : ainee.pv@hotmail.com Referred By: Search Engine Location : Australia Comments :

MY STORY MAY GIVE HOPE on the CJD VOICE - cjdvoice.org - Message Board 15th November 2001, explains a treatment I took, which over time, reversed my horrific neurological symptoms. Ie posted many other MY STORY MAY GIVE HOPE on the message board since, which I pray will be recognized one day as a treatment to give better health to those suffering with neurological symptoms - regardless of the cause. My symptoms were like those of a sheep disease,(our sheep) I experimented with the sheep treatment - also for human use - which suppressed and eventually reversed most of my symptoms.
God Bless
ainee.



Posted : 02/17/2006 12:58:57 AM Name : ainee E-Mail : ainee.pv@hotmail.com Referred By: Search Engine Location : Australia Comments :


Beth.- MY STORY MAY GIVE HOPE,on the CJD VOICE Message Board, 15th November 2005, explains the treatment I took. Please show it to the doctor treating this man. God Bless. ainee.


Posted : 01/19/2006 11:58:37 PM Name : ainee E-Mail : ainee.pv@hotmail.com Referred By: Search Engine Location : Australia Comments :

To
the families of CJD victims.
While reading CJD case histories on Human BSE
web page, I found several had falls or injuries to their head or spine.

Do you remember any such injury that your loved one had suffered?
I had
head and spinal injuries and years later, ended up with symptoms similar
to CJD.
MY STORY on CJD VOICE Message board in November 2005 and several
this year, explains what Ie been through. I hope this info. may one day help
those who suffer with neurological symptoms of unknown cause.
God Bless.
ainee.



Posted : 01/05/2006 8:54:26 PM Name : ainee E-Mail : ainee.pv@hotmail.com Referred By: Search Engine Location : Australia Comments :


To
the families of CJD victims.
While reading CJD case histories on Human BSE
web page, I found several had falls or injuries to their head or spine.

Do you remember any such injury that your loved one had suffered?
I had
head and spinal injuries and years later, ended up with symptoms similar
to CJD.
MY STORY on CJD VOICE Message board in November 2005 and several
this year, explains what Ie been through. I hope this info. may one day help
those who suffer with neurological symptoms of unknown cause.
God Bless.
ainee.


Posted : 11/20/2005 4:21:55 PM Name : ainee E-Mail : ainee.pv@hotmail.com Referred By: Search Engine Location : Au Comme


MY STORY MAY GIVE HOPE
Please go to - The many faces of cjd - view our guestbook
OR cjd watch - view our guestbook
written 17th Nov.2005 God bless, ainee.


snip.......go through and see for yourself;



http://www.cjdfoundation.org/viewguestbook.asp



ainee australia ainee.pv@hotmail.com



http://brain.hastypastry.net/forums/showthread.php?p=17561&posted=1#post17561


ainee, i hope what ever it is you are looking for, i hope you find it. ...

[ainee]

G'day from Australia flatfish,
Just hang on there flatfish - I have never claimed VB1 to be a cure for anything - and how do you know it won't do as I suggest it might?
Have you ever suffered horrific neurological symptoms? - if you have, have you ever experimented with a sheep disease treatment, as I have, to regain your health?
Yes, flatfish, we certainly have discussed this before - many times.
How on earth can you say I did not have CJD. I don't even know - and I have never claimed I did have CJD - but I certainly did have similar horrific neurological symptoms to our sheep, that were scientifically diagnosed as having PEM - with similar symptoms to those who suffer CJD. So similar neurological symptoms - why not similar treatment?

If people with CJD - and the medical profession - aren't given this information, my symptoms, experimentation, research, trial and error and survival from horrific neurological symptoms, then how on earth can they gain this knowledge? Perhaps some may think that the earth is still flat.
The information you've posted on many CJD sites, also give much information, but I certainly haven't read about a possible successful treatment to ease the symptoms of CJD, let alone reverse them.

MS - My symptoms were similar but my test in 2001/02 was clear. I've read on many forums where many people were thought to have MS, but tests proved they didn't. Perhaps they have nerve damage from injury, toxin or a forgotten or unknown source - and I'm not going to sit on my information which may help them. A friend with MS tried VB1 and her symptoms were not as bad when she was on it. So that's the reason I posted on the MS thread and not some farflung idea.

I know that we are pulling from different angles - and different sides of the world - but I respect your effort - even though I cannot find any advancement in a treatment for CJD or an actual cause of these neurological symptoms. But thank you for bringing my information up from other sites again - it may be read by those who have missed it before.

At the moment my email is down - but I'm happy to answer any questions here - so everyone can read them. Maybe if you would stand up beside me and not be so critical of my information and the simple treatment which suppressed and eventually reversed my symptoms - which I went through much experimentation and great trauma to discover - then you may appreciate my effort.
Someone will eventually come out of the woodwork to prove that I possibly could be on the right track. But if you can't prove I'm wrong - then please stop criticising my effort - let others make up their own minds. I always advise those on medication not to change any medication without seeing their doctor.
These forums - and thank you to BT for allowing us to do so - are for knowledge of personal stories to be shared - and I don't expect you to keep discounting it, if you can't prove I'm wrong.
Our combined wish is that a treatment will be found for CJD and many other illnesses and conditions. Let's just leave it at that.
Have a nice day.
ainee.

[ainee]

G'day flatfish,
I'm bringing up this post from last year, because I believe we have a positive outcome - even at this early stage.
I emailed a lady whos mother was diagnosed a few months ago, with CJD. This woman couldn't talk or walk - the doctors couldn't help her.
From early September, the woman has been treated with VB1 injections - and she is "doing better".
Another man diagnosed with CJD - similar condition to the woman -was to start VB1 injections this week. I haven't any word as yet.
Over the past few days, I've emailed several people who have loved ones diagnosed with CJD. I pray they get my information before it is too late.
I've contacted many medical people in all areas of medicine - research etc., since 2001 - maybe I should have contacted the people who have loved ones affected with brain wasting diseases in the first place.
I'm not claiming this treatment to be a cure for anything - but it may give hope to many. Even if this treatment suppresses the horrific symptoms like I suffered, then my effort will be all worthwhile.
I wonder if a vet somewhere will take up this livestock treatment for other brain wasting diseases in livestock.
Yes flatfish, I think I have found what I've been looking for -- a stranger on the other side of the world, who has believed my word - and has the guts to try a simple treatment for a brain wasting disease in livestock, which has similar symptoms - give or take a few and put into human terms - as CJD.
I thank God someone is listening at last.
ainee
Australia.

[ainee]

I had an email from the lady's daughter to say her mother can now eat, talk and walk. Doctors are now diagnosing her condition as an Encephalopathy.
Well - Encephalopathies have similar symptoms to CJD - and can be just as deadly.
The treatment of VB1 for brain wasting diseases in livestock - which has similar symptoms to CJD - was known about prior to 1968 - I wonder if the doctors know about it yet - if not - then I think they should be informed.
ainee.