I know at least a couple of you see Dr. L in Albany

[Matthew's Mom]

Incase you didn't know he is heading to Georgia. Just read it in my newest MS newsletter.

Pam

[Annie123]

Yes ... quite devestating to me personally ... I always have such bad luck... immediately after he leaves, I go totally blind in both eyes, a one-time attack deep in my visual cortex within the brain that lasted five hours...

He's seeing some Albany patients down in GA, and I'm seriously considering at least calling him if not flying down to see him... but I'm not well enough to fly and the trip would probably be my complete undoing, so.

I have Dr. Murnane now -- Dr. L recommended him at my last appointment back in late August, and I have a very strong feeling he doesn't really want me as a patient, but that he's taking me on as part of a deal made with the hospital and Dr. L. The last I heard, they are still interviewing for an Ms specialist to replace Dr. L.

Dr. Murnane seems like a great guy, but he is not an Ms specialist and seems lost with my attack of total blindness, so.

The very first thing he said to me when he walked into the exam room was "Complicated," followed by "You're a complicated patient," as he lets my very thick folder drop loudly on the table. My whole body shook when I heard the file go "Boom!" when it hit the table. I was too scared to speak because I didn't want to lose him before I even had him take me on as a patient.

The very last thing he said to me as he walked out of the exam room was, "Complicated," which made me feel anxious and scared all over again <sigh>. With my vision loss and N infusions, I don't want to have to find another neurologist unless it's the new Ms specialist hired by the hospital.

He's continuing my N infusions, but my oncologist hasn't ever heard of him -- he knew all about Dr. L, though, which was comforting.

Best of luck with your new neurologist. Losing one's doctor can be devestating <tears>. I cried so hard during my blindness attack because Dr. L isn't here to help me when I need him most <tears>.

Were you a patient of Dr. L's? Did you not get the letter sent out by Dr. L to all his patients in sept or Oct that told of him leaving to be near his son who is in medical school down in GA?

~Annie

[renee]

I am seen through the resident program and for my case it has worked well.

A resident plus the attending physician usually give me 45 minutes to as much as an hour an a half when timing is right and we can jaw.
Sometimes Dr. L ,often Murnane and occasionally a few others.
I believe they are all good but I, too, want a very seasoned MS specialist in the department.

Take care all you hot-blooded nothern women.

Are we living in a Currier and Ives paradise today or is this fourth level of mobility hell???
When falling, go slow.

Yeehaa and a Happy N Y(ear)!

[Matthew's Mom]

Annie,
Dr. L's not my neuro, I did visit his "office" once but had a bad experience with a physicians asst, cant remember her name.

I see Dr. S at the Center for Disability.

Good luck with your new neuro, hope it works out.

Glad they sent letters out ahead of time, I just posted incase someone wasn't aware.

Renee,
Isn't it freezing today. I'm at my daughters and at 6am with the wind chill it was 20 below. Just think in a few months it will start warming up some.

Actually the weather says that next week it might hit 50 on Wednesday. A heat wave.:)
Pam

[renee]

I have an appt next week.
We'll see wassup.

If it hits fifty, i'm planting the bulbs I didnt plant in november-
that is if 3 feet of snow melts in the yard.

YAH.

[Annie123]

Hi Renee,

I like the sound of your case management -- your post got me to thinking....

You get to meet a number of the docs in the department, which is good over the long-term for when retirements/relocations happen and is good during emergencies for when docs cover for each other on weekends/vacations. Finding a familiar face in the ER who also happens to be a resident doc sounds good to me.

And from the docs point of view, the docs get to spread around the liability/stress/difficulty of having a "complicated" patient, like Annie123 ;)

45 + minutes. Wow. This, too, sounds good to me. Where's the sign-up sheet?

Have you been in the new 1st floor offices yet? Very nice, very close to the parking lot....... which now has Valet Parking which really does work well. Having a cute guy park my car has become one of my favorite things to do ;)

Currier & Ives to springtime in the blink of an eye -- I'll take sunshine anytime of year, even when Mother Nature doesn't know what season it is.

I bet you're a great gardener, with a green thumb and all.

Hope your appointment goes well

~Annie

[renee]

At least half the attending neuros know me, but in addition to my resident I usually see the same two or three attending.
I got in as a Medicaid patient when MS hit and it has worked well. I believe my care has been every bit as good as a one-physician only patient.

AND, geez, I had two of them giving me dating advice two years ago-hahahahah. Can you beat that.
"Don't settle, R. Somebody smart with a sense of humor."
I love it. I have a mind-body holistic health TEAM.

The valet parking- unfortunately wasted on me.
For insurance purposes, the cute guy can't touch my converted van. Poo.

Think green.

[Annie123]

Renee & Pam,

Pam's heat wave has arrived so Renee can plant her blubs. What do you two ladies think of today's 65 degrees? Crazy.

Global warming or just an early January fluke?

Renee, those doctors sound like fun guys -- I bet you're teaching them a few things that neurology residents always seem to miss out on in med school -- for example: MS patients really can have pain caused by MS. Hey, you should invite them to our lovely, little forum so they can further their education.

Pam, if Alb. Med. kicks me out of their neurosciences department because I'm too complicated, I'll start a thread asking if your neuro is accepting new patients.

Enjoy the warmth!

~Annie

[renee]

Still have 18" snow on my garden and three inches of ice on the street where I park.

Don't know about the bulbs but just when I am ready to toss in the towel we get some gooood days.

YES.
Keeps ya going.

[mikies mom]

Annie - I am so sorry you have had such a hard time. I read your message on here about Dr. Murnane. I realize this was originally posted in 06 and I'm hoping things have improved. He is a neurologist that specializes in muscle diseases. I know this as my son has seen him for a few years now. My son has neurofibromotosis. He is very good with those types of patients. Most likely what happened was your previous doctor left and Dr. Murnane, being the total sweetie he is said he would help out. He got assigned to you. Next time you see him or one of the others, express your concern with not getting the treatment you deserve. You know the old saying "squeeky wheel gets the most grease". I can guarantee that Dr. Murnane was as frustrated as you are. He is there at the office until at least 9 every evening reviewing patients records and doing plenty of research in hopes of helping each and every one of his patients. I only know this as I have spoken to him in regards to his long hours on many occasions.