Maybe I should Start asking People What They Like

[jennifer]

What Do you guys like to do?

[Spiritgal]

Hi Jennifer,

Hope you're well. I've noticed that you have been getting really frustrated that people don't reply or post to you as often as you'd like on here. You got some fantastic advice to your thread: 'I am tired of people saying they'll be my friend and I never hear from them again'....everyone who replied to that explained to you correctly how this forum works and that you'd be much more successful in a chat forum for hydrocephalus (there is one on this site) or somewhere like MySpace. I have a MySpace site which I use for 'socialising', but I come here to see if I can offer advice or support to anyone going through troubles, or to get some myself! :) This site has some great supportive people on it but we don't hang out and chat all the time. So using this site to make friends is NOT going to work. The thing is, we've all explained this to you with encouragement and support, because we all like you and as OzzieKezzie rightly said, think it's really sweet you want to communicate so much...but this is the WRONG place for it. And to be honest you just don't seem to be listening. It's upsetting to read your posts when you become so disillusioned with us and start having a go at people for not talking to you, the way you did with Lizard...we want you to be happy but at the same time you're making us feel bad/guilty for not replying 24/7 and that's no way to make friends. I've told you this several times before personally, so PLEASE take note...you are MORE than welcome here and you've posted some really helpful, insightful and supportive posts. But this is not the site for chit-chat and friends....more for support and advice. If you want friends who'll stop by and gossip with you, try a chat forum or MySpace. And no one on here has ever wished you ill so please try not to become attacking again in your replies. Have a look at the chat forums on here and see what you think! I've been on several times and it's definately the place to hang out with like-minded people to discuss hobbies and day-to-day stuff! Good luck and do keep giving us the advice and support that you have done and we shall reciprocate whenever you're in need of it.

Jordan xx

[kathleenandjoe]

Jennifer -

I have to agree. I and others have tried to explain nicely many times over that you are in the wrong place if you are looking to just chat with others. You seem to just ignore those posts. Maybe you just do not understand.

This is a hydro board - about hydro and related topics.

Please go elsewhere now, unless you wish to seek or offer support related to hydrocephalus.

Best Wishes,
Kathleen

[CathyE]

Jennifer,

It occurred to me that there are posts that appear to be chit chat here. However, these almost always are updates how someone with Hydro is doing, or a milestone has been reached, etc.

Do you have a story about yourself you'd like to share related to how your hydro affects you. I'm sure that is the why of your loneliness. But as the others have said, to have daily chats, this is not the right place.

Good luck to you in finding cyberspace friends!
Cathy

[WmM3]

hi all,

Though I haven't posted as much in while (prior to this I was Bward3rd). I honestly don't get the friction Jennifer is getting. Particularly as a newby.
Because they have had to rebuild this site a few times my seniority has been reset but at one time I was a daily poster or better. Back in 2000 when I found this board it was all about diagnosis, feedback, alternatives, etc.

Over the years I watched as it became more a place of daily chit chat. Like it or not there was more than is being acknowledged. But that evidence is likely gone with the Cyber-Wind.

Ive seen posts here about ppls vacations and who they met at conventions. Questions about how to deal with hydro in the work place de-evloved into lengthy narravitive replys that in fact never gave advice just vented; and thats ok. We all need that now and again.

Remember those two letters: OT (Off Topic) I lost count of how many post like that I saw and finally that kind of thing brought me to seeke help where my posts werent moved down the line by the latest OT discuscussion thread which had often given birth to other OT threads.

Dont missunderstand me, I'm all for keepin the forum "On Task" and "On Topic"
That would be great. Ive not become some old cranky guy in the past years but I do think that a reality check was needed here even if it only goes to re-enforce Cathy E's reply.

Give the new kid a chance she will get the hang of things here and find the various forums. Might even help to post some links to those forums in the replys should Jennifer or any other member get to far Off Topic.

In the end we all came here because we felt some isolation. Most felt that isolation in dealing with the medical side of this disorder, but whatever the reason we are supposed to lean on eachother if not indeed shine a light in the right direction in good spirit.

Well thats all I wanted to add. I hope this has been taken in the spirit intended from the heart...As you read this know that its quarter to 1a and Im typing through the pain meds so please give me a lil consideration and know I would never wish to step on anyones toes.

--WmM3