Lifetime of obesity

[FoolsGold]

I always told doctors that I went from the skiiniest kid in sixth grade to the fatest kid in the seventh grade. This and some other things made me wonder about hormones.

Doctors ofcourse merely said 'lose weight': eat less; exercise more.

So now I appear to be the world record holder for leptin levels and have low Lutenizing Hormone levels but the doctors still refuse to say there is anything wrong with my endocrine system and refuse to test for ghrelin or conduct any pituitary testing.

After I had diagnosed diabetes and after I had even self-diagnosed a diabetic crisis, they finally ran a glucose test and I was sent to ER at well over 1,000 glucose and am now officially a diabetic.

I was the one that diagnosed:
Diabetes
Pituitary Dysfunction and resulting Hypogonadism
Sleep Apnea.

This doesn't stop the doctors from saying things like 'don't eat anything white'; 'don't eat past six o'clock' 'don't eat potatoes'.

Anyone else go through all this nonsense with doctors who refused to take a biological approach and order tests, but merely assumed you were obese because you ate too much?

[joy]

Not for that but for my always insisting I had weird pain. Finally was diagnosed as having peripheral neuropathy. Same end results, they act like you are making it all up. Thing is once they do get the ball moving, to still keep after them to help you with it all. Not just diagnose it and drop it.

Well yes I have. Way back in the 80's when a new sweetner low calorie was on market, I drank a lot of artifically sweetened kool aid type of drink. Got diahrreah sorta bad. Told doctor who asked had I done anything different so told him about the drink. He said something like might be glucose intolerant but did not elaborate. He also mentioned if I had had any lake water or something similar. I was a walker back then and had took one or two swallows of clear looking water from a little stream. I assumed it was that. I always tried to get any doctor to test me but none did. How I wish any of us had followed up on that as I accidently stuck myself with hubby's needle one day and decided to check my blood with his tester. It was a little high. I had a new internist due to having the neuropathy so he sent me for testing. And I'm not diabetic. I'm having a hard time beliving I need to stay on a diabetic diet but know that if I would and it helped me, I'll be better off.

My neuropathy just might be caused by the glucose problem. My legs are numb from the knees down and hands feel like clubs. It also is in other parts of my body as well.

Sorry this is such a long post. Good luck and let me know if anything the doctors finally do helps.

[pab]

"foolsgold"...i assume you have been dx with PCOS?? are you on metformin? or some similar insulin sensitzing agent? and unfortunately, the treatment, other than that, is the same eat less.....good luck

[LIZARD]

Anyone else go through all this nonsense with doctors who refused to take a biological approach and order tests, but merely assumed you were obese because you ate too much?

YES, and I was put on "diets" that dang near killed me. I had actually known most of my life (though didn't know what it was called) that I had low blood sugar, and that eating, particularly protein, made me feel better. Well, I have epilepsy, too, and because doctors were such idiots and didn't teach me to manage it properly (instead, I was stuffing food down my throat, trying to "chase away a 'crash'"), I came dangerously close to going into seizure, and I quickly became morbidly obese. It wasn't until August of last year, when I joined Weight Watchers, that I was finally able to lose and get my glucose under control, as it had normalized and then started dropping again once I lost the weight. I'm now at nearly 90 lbs lost, and I can live my life without being in constant fear of crashes and szs. :)

Good luck to you!

LIZARD :)

[FoolsGold]

"foolsgold"...i assume you have been dx with PCOS?? Nope. I don't qualify for that!
Fools Gold is male!

[mrsQ]

Ok I was thinking PCOS 2 until you brought you the being male part...guess the lack of ovary would kill that idea.;)
I may be wrong since I am still half asleep but what about syndrome X, you don't have to be female for that one.

But to answer your original question yes. Doctros always blame everything on weight even not mine. My dad is big, my older sister is big so when I started putting on weight in a situation just like you described. Going from underweight to over in a a school year. My family doctor said I was just fat go on a diet. When my periods never were right,, they blamed my weight, when my back hurt same thing. It took me moving out of state to get a doctor to dx me right. She looked at me prior to any tests and said I had hypothryroidism and PCOS and she was right. I admit those conditions are not the only reason I am fat I am the biggest reason but at least treating the thyroid problem I stopped gaining 10lbs a year for the first time.

I hope you find some answers soon.

[clouds z]

inside of an apple is white and may keep some doctors away

[rumpled]

Foolsgold - you say you have pituitary disfunction... in what way?
Could it be Cushing's syndrome? Diabetes, obesty, sleep issues are symptoms of that...
You don't have to have all the symptoms. I did not have diabetes but I had it.
Have you had your cortisol checked? I was cyclical so I had many normal tests but was symptomatic and kept after docs...well... after a while... to be tested but it took me over 12 years to get diagnosed.

[FoolsGold]

Can anyone come up with a list of Dx's and causes for anterior pituitary hormones being all screwed up but there being a normal MRI and no discernible cause of the secondary hypogonadism?

[gizmogirl]

lose 50 pounds while eating MORE -he's heard the same un-useful crap as you life long. I make a gallon plus of virtually zero calorie creamy coleslaw so he can eat alot (and all veggie stir fries):

1 container fat free sour cream
1 thinly sliced chinese cabbage
1/2 to 1 pound finely shredded carrots (use a machine if possible)
a teaspoon or more powdered wasabi (asian horseradish)
black pepper
lemon juice to taste (start with a teaspoon - if fresh I use juice of a whole lemon)

Mix well, cover, and refridgerate. Thank god he doesn't get sick of it. I think it's so important to have "all you can eat" foods in the fridge so there's always that option.

Good luck

[FoolsGold]

Can anyone come up with a list of Dx's and causes for anterior pituitary hormones being all screwed up but there being a normal MRI and no discernible cause of the secondary hypogonadism?
Make that no discernible cause on the MRI for all the anterior pituitary hormonal trouble, including leptin and its resulting obesity difficulties.
One possible cause, not ever subject to detection by an MRI, is severe sleep apnea from infancy onward.