Maggi315
11-19-2007, 06:11 PM
Here's an update:
igf-1: 163 (bottom 25%)
TsH: went from .3 to 2.9 in less than one week! I take armour thyroid
vitamin B12: very low, not sure exact number, started injections 2 days ago
ferritin: 20, this continues to be low despite agressive liquid iron supplementation, folate and H&H normal
24 hour urine cortisol: slighly low 4 (normal range in my lab 4.5 to 50)
prolactin: normal 5 to 14 (and I am nursing my 2 year old 2 times per day)
creatinine: normal
liver enzymes: slighly elevated
3 hour glucose tolerance: normal
creatine, 24 hour urine: 470 (normal up to 150 or so?): Still not sure the significance of this, my kidney labs are all normal
mercury level low
sed rate low
negative for all the rheumatoid tests, celiac disease, lyme disease
I had my first ambulance ride last night! Well, as a patient, I've written as a nurse and midwife before. Somehow it's not much fun as the patient, lol.
I was fine all day yesterday, in delaware watching my girls compete in ice skating. On the way home, I got extremely tired and pulled over to do the american thing-fast food and starbucks! Well, I'm not eating gluten, so I had a baked potato.
bythe time I got home, I collapsed into bed. I was slurring my words, so hubby took my sugar and b/p. Sugar was ok at 120-180, but b/p was 76/42. In about 1/2 hour or so, I became unresponsive (which I must have been to agree to go to an ER, I generally think they are useless, not a big fan and I certainly wouldn't have an ambulance come make a big scene in front of my kids and neighbors)
Doctor was convinced from the moment I met him that I was either: very drunk or high, an addict in withdrawal, or so depressed I had become "catatonic". I know, because he told me and my husband!
Of course, all tests were negative. We tried (well, my husband did, then as I felt better, I did) to tell him that we were in the middle of looking at my hormones, that I was hypothyroid, and that my latest tests showed a low urine cortisol, undetectable growth hormone, low b12 and ferritin, and slightly elevated liver enzymes.
My labs looked about the same last night, but my liver enzymes were even further elevated, not crazy, but elevated. We asked him about Addison's crisis, and to do the appropriate bloodwork, and he said that an iv would take care of me, sent me home when I was lucid, and told me to f/u for my depression (what depression????)
I saw an endo on friday who was useless, I had to explain some of the labwork to her!!!! And she is at a major teaching university and not a resident. My urine creatinine was normal, low, but normal. But my creatine (not the same test) was 4X higher than normal. She went as far to say the lab made a mistake and misspelled creatinine and did the wrong test. sigh, not going back there.
I saw an ENT last week, he diagnosed dysphaghia, said my throat and vocal cords looked terrible, swollen, raw, I can no longer swallow at all on left side. He wants to order barium swallow, video swallow, and trim my uvula but wants to wait to schedule these tests until after christmas.
See, I tend to be the kind of person that wants to just run all the tests at once: mri's, spinal mri' cat scan, suppression tests for growth hormone, bariums, etc. what the heck is it going to take the next 6 months or so? Well, right now, it's because all my docs are passing the buck and no one wants to be responsible or take the time to do a thorough investigation. I've seen that before as a nurse when I teach on the cancer unit, and it frustrates me to no end. As a patient, I am even less tolerate!
thanks! I know this is a small book, I guess I just needed to vent on my groups!!!!
Barb C.
igf-1: 163 (bottom 25%)
TsH: went from .3 to 2.9 in less than one week! I take armour thyroid
vitamin B12: very low, not sure exact number, started injections 2 days ago
ferritin: 20, this continues to be low despite agressive liquid iron supplementation, folate and H&H normal
24 hour urine cortisol: slighly low 4 (normal range in my lab 4.5 to 50)
prolactin: normal 5 to 14 (and I am nursing my 2 year old 2 times per day)
creatinine: normal
liver enzymes: slighly elevated
3 hour glucose tolerance: normal
creatine, 24 hour urine: 470 (normal up to 150 or so?): Still not sure the significance of this, my kidney labs are all normal
mercury level low
sed rate low
negative for all the rheumatoid tests, celiac disease, lyme disease
I had my first ambulance ride last night! Well, as a patient, I've written as a nurse and midwife before. Somehow it's not much fun as the patient, lol.
I was fine all day yesterday, in delaware watching my girls compete in ice skating. On the way home, I got extremely tired and pulled over to do the american thing-fast food and starbucks! Well, I'm not eating gluten, so I had a baked potato.
bythe time I got home, I collapsed into bed. I was slurring my words, so hubby took my sugar and b/p. Sugar was ok at 120-180, but b/p was 76/42. In about 1/2 hour or so, I became unresponsive (which I must have been to agree to go to an ER, I generally think they are useless, not a big fan and I certainly wouldn't have an ambulance come make a big scene in front of my kids and neighbors)
Doctor was convinced from the moment I met him that I was either: very drunk or high, an addict in withdrawal, or so depressed I had become "catatonic". I know, because he told me and my husband!
Of course, all tests were negative. We tried (well, my husband did, then as I felt better, I did) to tell him that we were in the middle of looking at my hormones, that I was hypothyroid, and that my latest tests showed a low urine cortisol, undetectable growth hormone, low b12 and ferritin, and slightly elevated liver enzymes.
My labs looked about the same last night, but my liver enzymes were even further elevated, not crazy, but elevated. We asked him about Addison's crisis, and to do the appropriate bloodwork, and he said that an iv would take care of me, sent me home when I was lucid, and told me to f/u for my depression (what depression????)
I saw an endo on friday who was useless, I had to explain some of the labwork to her!!!! And she is at a major teaching university and not a resident. My urine creatinine was normal, low, but normal. But my creatine (not the same test) was 4X higher than normal. She went as far to say the lab made a mistake and misspelled creatinine and did the wrong test. sigh, not going back there.
I saw an ENT last week, he diagnosed dysphaghia, said my throat and vocal cords looked terrible, swollen, raw, I can no longer swallow at all on left side. He wants to order barium swallow, video swallow, and trim my uvula but wants to wait to schedule these tests until after christmas.
See, I tend to be the kind of person that wants to just run all the tests at once: mri's, spinal mri' cat scan, suppression tests for growth hormone, bariums, etc. what the heck is it going to take the next 6 months or so? Well, right now, it's because all my docs are passing the buck and no one wants to be responsible or take the time to do a thorough investigation. I've seen that before as a nurse when I teach on the cancer unit, and it frustrates me to no end. As a patient, I am even less tolerate!
thanks! I know this is a small book, I guess I just needed to vent on my groups!!!!
Barb C.