grace
10-24-2007, 08:46 PM
Two weeks after botox we began serial casting. Botox didn't help much. Week one of casting helped some. Week two...cast needed repairs after two days, then when we took it off on day six he had a rash where it rubbed. but gained some range. Cast #3...this is its second day. it is rubbing the sore spot but not too bad pain wise. but, he is turning his foot out and flicking from the hip and is complaining his knee hurts on the outer side. a 7/10. We're icing it and trying to alter his gait but may have to take the cast off. I'm sad if none of this is successful in the end... hoping he makes it through . we need a week four if we can and then ....
he's being casted for an AFO for BOTH sides now. so, right hemi officially out the window. Thanks to the casting, right side is now improved but left the left side in the dust and it is now worse than the right. hohum.
And school is discouraging. okay, now this is a vent. sorry. His teacher is great but he's slow to respond and is always on the previous subject and therefore missing the current subject so he is not doing well. failing many tests. sweet lady is giving up Thursday lunches to help him one on one and photocopied his work for me to help at home. He gets it if you repeat a lot and teach one on one but not in a class setting.
you know, i went out after school and was asked by someone who has known him for 7 years why he had a cast on. I explained to stretch his muscles as he has cerebral palsy. She was shocked. DIdn't realize anything was different with him.
I'm grateful. He does seem so fine. But it's those behind the scene struggles. he's really down about the additional AFO. But, who do you vent that to? as a kid I mean. And he's in pain. And discouraged with his marks and always being last to answer things... and feeling like he isn't contributing anything worthwhile in academics or sports at school... just a downer. am sure it will pick up and i'm grateful his teacher cares.
you know, i had somewhat of a break with my kids. feel sad to have to go back into all this.
anyway, thanks for letting me share.
he's being casted for an AFO for BOTH sides now. so, right hemi officially out the window. Thanks to the casting, right side is now improved but left the left side in the dust and it is now worse than the right. hohum.
And school is discouraging. okay, now this is a vent. sorry. His teacher is great but he's slow to respond and is always on the previous subject and therefore missing the current subject so he is not doing well. failing many tests. sweet lady is giving up Thursday lunches to help him one on one and photocopied his work for me to help at home. He gets it if you repeat a lot and teach one on one but not in a class setting.
you know, i went out after school and was asked by someone who has known him for 7 years why he had a cast on. I explained to stretch his muscles as he has cerebral palsy. She was shocked. DIdn't realize anything was different with him.
I'm grateful. He does seem so fine. But it's those behind the scene struggles. he's really down about the additional AFO. But, who do you vent that to? as a kid I mean. And he's in pain. And discouraged with his marks and always being last to answer things... and feeling like he isn't contributing anything worthwhile in academics or sports at school... just a downer. am sure it will pick up and i'm grateful his teacher cares.
you know, i had somewhat of a break with my kids. feel sad to have to go back into all this.
anyway, thanks for letting me share.