SSDI doctor appt over with!!!

[karilann]

I was so nervous about this appt but the worst part was the one hour delay in a very hot office...

She pointed out to me one thing my Neuro never discussed....apparently I don't now where my feet are in relation to the ground. Evident by the fact that I watch my feet as I walk. She asked me to run...:eek: I tried but I must have looked like a total dork. Is then and there I realize that I don't bend my toes or front of foot. I just slam, slam, slam almost like a flat foot.
I got the babinski test on my feet and failed....and I couldn't feel the tuning fork vibration as well on my right foot as I could on the left. She seemed very sympathetic and said I had the 'weirdest run she had ever seen':confused: I told her it was the only way I can get up speed.
I failed the eyes closed and stand straight thing as well as the heel to toe walk.
She asked me how my lesion load was and I told her I didn't know:eek: I don't think anyone ever told me how many....and she said no one included the MRI results in her paperwork....great. She told me to make very sure that was in my file with DDSI.
She had me pick up a suitcase with both hands holding it sideways in front of me and walk.....hmmmm didn't get what that was all about. I guess seeing if I could carry an object without looking down???.....well I couldn't.
Any way.....I had a lot of checking my reflexes.......what is exactly up with that????

[graymatters]

Karilann
was the dr appt to get SSDI approval? or to continue benes?

The judge based his decision on my SSDI case on reports from my neuros, MRIs, and made his decision then. I did not have to go to anyone else.
But I am in NY, where they make up the rules as they go I sometimes think.

Here I am totalled by Social Security with a judge wondering who in their right mind would hire me and assume the liability of employing me and the Workers Comp saying I am not totalled now, unemployable according to their own dr reports but they have cut my benefits.

Good luck and wonder what that suitcase was about.
I wonder if I look funny running? Maybe we all do!!!!:)

Tere

[Erin]

I was so nervous about this appt but the worst part was the one hour delay in a very hot office...

She pointed out to me one thing my Neuro never discussed....apparently I don't now where my feet are in relation to the ground. Evident by the fact that I watch my feet as I walk. She asked me to run...:eek: I tried but I must have looked like a total dork. Is then and there I realize that I don't bend my toes or front of foot. I just slam, slam, slam almost like a flat foot.
I got the babinski test on my feet and failed....and I couldn't feel the tuning fork vibration as well on my right foot as I could on the left. She seemed very sympathetic and said I had the 'weirdest run she had ever seen':confused: I told her it was the only way I can get up speed.
I failed the eyes closed and stand straight thing as well as the heel to toe walk.
She asked me how my lesion load was and I told her I didn't know:eek: I don't think anyone ever told me how many....and she said no one included the MRI results in her paperwork....great. She told me to make very sure that was in my file with DDSI.
She had me pick up a suitcase with both hands holding it sideways in front of me and walk.....hmmmm didn't get what that was all about. I guess seeing if I could carry an object without looking down???.....well I couldn't.
Any way.....I had a lot of checking my reflexes.......what is exactly up with that????


They check the reflexes to see if there are any deficits in the reactions, that tells them that somewhere your nerves are not communicating correctly.

I went to the neuro today, and everything was great except that I had delayed reactions of some sort in my right foot...so I got a nice Rx of Baclofen for that (apparently I have spasticity there)

I really hate it when they check for the Babinski reflex...It always feels like my neuro is trying to cut the soles of my feet apart. I have no idea if I had a positive Babinski today, I was trying not to kick him for making my feet hurt.

[karilann]

Graymatter: I am here in MI and after I sent in my initial paperwork applying for SSDI...I heard from them within a week. Within 2 weeks or so I was to see their doc. This is because my medical records have been slow getting there. And they wanted a very current assessment. I could not get my records because I went thru some time with no car.....so the SSDI office told me to just let them get the records. So......I think things moved along quite quickly and my records were not forthcomming. One day I called my regular doc and asked if the records had been sent and they said : "oh, nope, they are stilling sitting here"........this after my nuero had already sent records from her office 10 days earlier. Sometimes getting office staff to help you is like pulling teeth.

I still wonder why one of my legs in the reflex kicks way up and the other one does hardly anything.....spasticity? And okay.....I run funny. I didn't know at that moment if I even knew how to run anymore.

[Erin]

Every time I've ever had to send records to another doctor, I've just done it myself. The first time I had to have records sent to somewhere else, the records never made it, so I just take care of that part myself.

[JAM622]

I'm strill walking (slowly with balance and coordination issue) and not in bad shape, but I noticed around 5 years ago that I couldn't run anymore. I quess it just depends where the nerve damage is.

Jim*crawling

[Mariel]

I can run but it's with a "wide stance"--the expression made famous by SenatorCraig's bathroom antics. So I suppose I look strange running too.

Getting records has always been a big problem. Sometimes they go, sometimes they don't. I have been trying to get records to a new hematologist for Tuesday. They told me I had to pay extra if I carried them down the hall from one doc to another doc. So I am whipping them up to get those records there themselves...it's possible they might do it. It's like gambling?