Vitamin B

[Fayelle]

Hello Fibromites :D ....

I wanted to ask if anyone has tried taking extra vitamin B Balanced, and vitamin c?

If so how did it help, or work?

I had also read that some studies had been done with magnesium suppliments, has anyone tried this?

If so how did it work?

Recently I read up on that 5 hour energy drink out of curiousity and found it heavy with Bvitamins....So I read up on the ingredients and discovered that the B vitamin deficiencies symptoms were close to my own, so I decided to try a vitamin B regiment....I was already taking additional B12 because I am on metformin for diabetes....So I was curious about anyone elses experience....

Thanks,

Fay

[Fayelle]

Well I started taking the additional B vitamin and a vitamin c in the mornings...

It seems to be having some effect on some things.....I went into flare mode 2 nights in a row, last night being skin related mostly.....This morning I woke up in less pain....The day I started taking the vitamins I was in major fatigue and had been for 3 days, when I say major I mean unable to really move around fatigue....To the point of tears fatigue, and wanting to just sit still....I took the first dose that night and had an immediate kick of energy and felt energized until bed time when I took my sleep aid and went to la la land.....But I also had a massive pain flare right before bedtime....

I feel this strange thing going on in my body, it feels like an internal war...I am not sure that makes a lot of sense.....Its like part of me is starting to give some added energy, but another part is dragging me back into fatigue....Its not an emotional or mental thing either it is physical.....It feels like something is fighting back against the fatigue....I know sounds bizarre and possibly in my head right.....I would think so if I was not getting short bursts of energy that last a short time.....Plus it is different from a typical flare time, typically once I hit a flare it hits and lasts until one day its over and I feel better....Now I have these short moments where it feels like I might come out but then I fall back in.....I discovered also that a short 30 minute nap yesterday accomplished the goal of getting me up and moving enough to start some laundry and make some dinner.....Typically I fall asleep and am dead to the world for at least 2 hours if I nap, and then wake up exhausted.....

Then there is the fibro pain itself, it does not seem to come until just before bedtime.....Then I sleep it off and am better the next day.....I have had this terrible joint pain in my hip for weeks now, it has greatly decreased over the last 2 days to the point of my not limping anymore....

So something is happening, I am not sure what yet but something is.....

Although I am still seeing some neurological issues along with this flare, heaviness in my left hand which is making it difficult to type....Brainfog is still there.....Although it has been coming and going with the increase in vitamins.....I am having moments of lucidity and clarity rather than total and lasting brainfog....

I think Ill give it a couple of weeks though to see what happens, this could all be unrelated or short lived.....My body could adjust back rather than going towards the positive side of things.....

Trial and error what a fun way to live with this thing :D ....

Fay

[ainee]

Fay,
I wasn't diagnosed with Fibromyalgia - none of my tests really found anything - the doctors didn't diagnose anything in relation to my symptoms.
I don't know what B Balanced Vitamins are - but VB1 - VB6 and VC, all water soluble, non toxic vitamins, worked well to suppress my symptoms and eventually, after many months of experimentation etc., my neurological symptoms started to reverse.
In 2001, I became very, very tired. Then I developed horrific spasms in my spine, cramps, twitches, tics throughout my body - which all hurt like -ell, and many other symptoms, which research found were neurological symptoms, which crossed over many different illnesses and conditions.
When I took the VB1 (and later on the VB6 for a short time - VC and many other simple things which also have similar properties to the VB1) I noticed my temperature would rise and my heart rate increased - as if excercising - then my breathing increased, which in turn, increased my blood circulation and also my oxygen circulation and oxygen content.
My symptoms were suppressed within minutes of each dose. It took about 3 weeks of taking 250mgs VB1, 3 or 4 times a day, before I really noticed any change - A couple of months later, I started to increase the doses. I noticed my symptoms reversing - I wasn't as tired. I believe the extra oxygen I breathed in, over time, reversed the damage done to my nervous system due to injury and/or toxins. Now 6 years after I became ill, I am reasonably well most of the time.
ainee.

[Tootsie]

It is well known that any kind of stress will deplete our bodies of vitamins B and C. Some supplements are even advertised as such and called "stress vitamins," or something similar.

To me, it only makes sense that with fibromyalgia, we need all the help we can get! Especially, now that so much of our food is overprocessed and depleted of vitamins in the name of better preservation, better taste, etc., if you're not getting vitamins C and B in your diet, supplementation is an excellent idea.

Then too, there is always the chance that the fibromyalgia is the consequence of undiagnosed, subtle neurological disease. I'm thinking here of MS and lupus, which are notoriously difficult to diagnose in the early stages.

I routinely buy, 100 % whole wheat bread, add wheat germ to muffins, cookies, and even meat loaf occasionally. Eating whole oranges is one of my favorite snacks, and usually it's more than one. Cheerio.

[Fayelle]

Thanks for the replies....

It seemed to make sense to supplement these vitamins with the reading I have been doing....I added calcium, magnesium, and zinc to this regiment to see what happens....

The B Balanced is a one pill supplement of 100 mg b-1, 100 mg b-2, 100 mg niacin, 100 mg b-6, 400 mcg folic acid, 100 mcg b-12, 100 mg pantothenic acid...

Then I am taking 500 mg calcium, 200 mg magnesium, and 15 mg zinc....

A multivitamin

and another 1000 mg b-12

The magnesium, calcium, and zinc are one pill.....I am going to slowly increase this over a few weeks until I am taking 600 mg magnesium....However I may very well change to a magnesium only since I just noticed that the B balanced has calcium in it as well....

I do worry I have an underlying undiagnosed more significant problem.....But I am dealing with the emotional stuff first so I can at least know that part of it is covered before pressing for more detailed testing.....Plus my weight issue.....

I have wondered for some time with my IBS, cravings etc if I have a malabsorption issue so supplements are a positive if that is the case....

And why not I have done a better job discovering my issues than any doctor has in all honesty.....I diagnosed my own plantar fascilitis recently and just went to the doctor to be sure....I was right....

Besides I don't want to argue with my doctor over testing....So heck I have had more dangerous medications in my system that really caused problems....Trial and error blah....

Thanks again for the replies!!!!

Fay

[ainee]

Fay,
In 2001, when I started to get "strange" symptoms, I wrote down every illness, surgery, injury, symptoms etc., (no matter how small), that I'd had since I could remember. I later found through research, many of the symptoms I displayed, were neurological symptoms, and found they cross over many different illnesses and conditions - many which can be due to injury and/or toxin. I'd had both detected in medical tests.
I had the usual tests done - then I asked for more tests which doctors don't usually do. Some my doc refused to do. I visited many specialists in many fields of medicine.
When it all boiled down, my illness wasn't diagnosed, I found out why I got ill, accidently found information of a treatment for the symptoms I displayed, experimented with it and many others things with similar properties, which suppressed and eventually reversed most of my symptoms.
I tried many simple things which worked the same as the vitamins above. I tried small doses, big doses, no doses for days, many different things together as a dose. I found that by taking only ONE of anything I found successful - at the right quantity for my body weight - worked the same as taking many treatments together. It isn't what I took which mattered, but how it worked in my body - by increasing my breathing - which was the key.
It took 18 months to get the dose quantity and dose rate right, then another year to become reasonably well most of the time.
I've found the vitamins and other things which gave relief, have water soluble properties of carbon and hydrogen. I didn't know any of this before - I had to do a lot of research. I've found most B vitamins are water soluble, as is VC. Many other vitamins are not water soluble and may not disolve well before they pass through the system.
I heard that a fellow who has a portable loo - toilet - business, said that he has a hugh pile of tablets in his back yard, which get caught in the strainer when he is flushing out the loos. People might feel good and feel they are doing the right thing for their health by taking many pills etc., but when they don't disolve in the body, the only benifit to anyone is the pill makers.
I found the right dose for my weight by experimentation - and documenting it all. I gained over 2 st. in weight, so needed to take more to get it to work in my body. It only cost me about $1 a day when I was experimenting with lots of things - to about 50 cents now, to stay as well as I can - as I believe the injury and toxin is still present in my system, but the simple treatment has reversed the damage done to my nervous system.
I was very ill and probably too concerned about finding the right dose etc., to be too worried about my health. That doesn't mean that I wasn't worried - but if I hadn't found the info I did, I don't think I would have survived long.
I found that by taking a colloidal form (gelatin) which covers the negative atoms in the intestines, gives better absorption of your food. I tried taking the gelatin many ways - yuck! Then I tried a heaped teaspoon of dry jelly crystals off the spoon, once a day. I think this helped - along with my usual dose - at little expence.
The simple treatments which I found to help me have better health, are available everywhere, cheap, if one doesn't suit - then something else will, I can take any ONE of the many things I experimented successfully with - yet the doctors disbelieve my word. Several people with all sorts of illnesses and conditions, said they had better health whilst taking what I suggested. So one day, someone, somewhere, also may gain better health.
I go back to the doc every few months to tell him of my research etc., I usually talk for longer than the normal time - and he charges me for it. I think it should be the other way around - Oh well - one day he may listen.
ainee.

[Tootsie]

Fay, have you ever tried a gluten free diet for your IBS? Since my grandson has been found to be gluten sensitive, I've been doing a LOT of reading, and have learned to bake with alternative flours.

My daughter works with autistic and learning disabled children and learned from parents that a GF diet seemed to make their children more responsive to her therapy. She decided to try it with her own son, my grandson, and it has made a significant difference in his attention span, short term memory, and ability to function in school and elsewhere.

She then decided to limit her own intake of GF foods and found that the achy-ness that she has always had in her upper arms and neck, disappeared!
Both she and her son had all the symptoms of fibromyalgia.

The folks here at braintalk, on the Gluten Sensitivity Forum are real helpful in answering any questions. One of my friends, hadn't been feeling well and went to her doctor. A routine blood test found that she was terribly anemic, and she was given six pints of blood. Then all the testing started, as they thought she had cancer of the intestinal tract. It is the most common diagnosis when anemia is the only symptom in older people. Everything was negative, except the bowel biopsy that revealed that she had Celiac Disease, an autoimmune disorder. Anemia was her ONLY symptom. Cheerio.

[mrsdoubtfyre]

showing that in Fibro patients the spinal fluid levels of Vitamin B12 are very low.
So I would strongly suggest a good oral supplement of B12 taken separately from a B complex. The latter typically have low dosage B12.

Methylcobalamin is preferred... it is not expensive. Only about 9 cents a day.
Many of us here have used the Jarrow brand (can be found at www.iherb.com and other online places) successfully. 1mg/day minimum.

[andy1618]

I have been using vitamin B6 (Pyridoxine HCL) for over 37 years to control my seizures.

Please read my story: http://www.epilepsyforum.org.uk/viewtopic.php?t=14802

Do not alter any medication without your doctor's consent.

Thank you,

Andrew

[Clarpa]

Hello Fibromites :D ....

I wanted to ask if anyone has tried taking extra vitamin B Balanced, and vitamin c?

If so how did it help, or work?

I had also read that some studies had been done with magnesium suppliments, has anyone tried this?

If so how did it work?

Recently I read up on that 5 hour energy drink out of curiousity and found it heavy with Bvitamins....So I read up on the ingredients and discovered that the B vitamin deficiencies symptoms were close to my own, so I decided to try a vitamin B regiment....I was already taking additional B12 because I am on metformin for diabetes....So I was curious about anyone elses experience....

Thanks,

Fay

The only supplement that helped me was B2 or B4, I forgot, but when I had bad migraines, they slowed way down with menopause, but those vitamins worked to keep the migraines fewer and farther between. There is scientific evidence for this one. The rest of the vitamin therapy was disappointing.

[ScarlettOne]

I take
Slow Mag.
Yes it does help with relieving fatigue, muscle spasms and memory (my experience).
You can do an internet search on "magnesium deficiency". You'll be surprised.