Central Pain Syndrome

[Kathi49]

I just thought I would post this considering some of us have ongoing neuropathic pain. I like this particular website www.painonline.org because it has a lot of very good articles on what happens when a nerve is injured. In particular, click on "Information for Patients" and then click on and read "How Pain Nerve Cells Act When They Are in Pain."

It also mentions opioids and why sometimes they don't work..as well as anti-convulsant types of meds.

Anyway, my supposed small fiber PN has to do with the "C" fibers. And it speaks to that as well. But since then my Neurologist has changed her diagnosis to Central Pain Syndrome.

Sooo...just something for informational purposes. I just think they did a great job of explaining it. And for those of us with spinal disorders it MAY be particularly helpful. The owner of this website also posts on the CARE Community Website for SCI patients...which is really where I first found it.

[JAVISI]

Kathi,
I have never been to that site. Thanks for the info! I beleive that knowledge is empowering and I crave knowledge about my ailments! Many thanks again!

Dreaming Big and Reaching fror the Stars, Javisi:)

[Kathi49]

You are welcome JAVISI. I hope it helps. I know it did for me. :)

[slipnslide]

Kathi,

Interesting!.... thank you!

Kim

[BrokenBladder]

Kathi,

I just wanted to give you a BIG THANK YOU for posting this info. It's important that we all be informed.:)

[Kathi49]

Kim and Lisa,

You are welcome. :)

I should clarify that I don't think I have this as bad as some. I have read some of the descriptions and while some apply, others don't. So, I believe I must have a mild to moderate form of it. And I don't want everyone going around thinking they have CPS LOL! No, my intent was to help someone understand what is OCCURING when the nerves fire up. Just about everything I have read on that site falls in line with what my Neurologist and two other docs were saying...a CNS problem...and a hypersensitive one at that. :eek: :)

[JAVISI]

Kathi,
I think it is great that you took the time to share this website. I do suffer from hypersensitive nerves. I am going to have a nerve block at the pain clinic at the end of this month. I sure hope that it helps! I also suffer from trigeminal neuralgia. I take a high dose of neurontin for that, It is pretty much under control. I also have peripheral neuropathy that does bother me at times but I too am not as bad off as some others are. I am just grateful to be alive.

Thanks again for your gift of sharing!
Dreaming Big and Reaching for the Stars, Javisi:)

[OriAl]

painonline.com is another central pain site with good info. No treatments yet, darnit.