Roll Call - October 2006

[aklap]

http://webpages.charter.net/aklap/Oct%20BT%20rollcall.JPG

Braintalk Roll Call

Anne thought it might be a good idea to have a Roll Call over here too :D Thanks Anne!!

It's beginning to look a lot like...Thanksgiving. At least it does on our dining room table.

As most of you know, Peg started a new job, a full time job. Something that she has not done since after I was sick [gosh..that's around 5 years...].

So, because she's working more...that's means I have to work more too...around the house. Yesterday I was stripping in the bedroom....uhhh...the bed that is. :eek: heheee More cooking [which I don't really mind], more cleaning, more unloading the dish washer, etc. Peg is enjoying her new job. Of course the doc has been gone on vacation this past week, so it's been pretty dead.

Things have been well here. I have been having a good sized flare in my PN sx's. A magnitude of which I have not seen since all this really started bothering me in 2001. The past few days have been pretty good. Not sure what's going on. And for those of you that are asking...nope, still just casein reduced. I have been watching my corn too.

It'll be interesting to see how things shake out in the discussion board arena.

http://webpages.charter.net/aklap/BT%20Roll%20call%20time%20tunnel.jpg

Oct 2005 Roll Call - Page 1 (http://64.233.167.104/search?q=cache:noYoHDY4qqUJ:brain.hastypastry.net/forums/showthread.php%3Ft%3D103504+braintalk+roll+call+oc tober+aklap+page+1&hl=en&gl=us&ct=clnk&cd=1&client=safari[/url)

Sorry Gang, no page 2

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[annelb]

Since I suggested a roll call for this forum guess I better speak up :rolleyes:

Summer was busy with trips to see my son, my sister and DH's family. Still have to get to Seattle to see my other son. Next trip is to the International Celiac Conference in New York in November.

Home today cause I don't feel well. I don't think it is gluten. It may be citric acid. I used a can of tomatoes last night. I have stayed away from citric acid recently. Possibility that I need to avoid CA because of my yeast sensitivity - not a gluten issue.

Curious how things will turn out between the two forums :confused: Not sure where I should post :confused: Guess I am really waiting for all the old data to appear.
Anne

[jcc]

I am here, but still confused.

Yes, I'm watching, too. Data restoration, communication, how concerns will be addressed, etc.

I think if the prevailing attitude is "if you don't like it, leave it"... without hearing the valid concerns of many valued members, I will be very disappointed.

Communication is as big of an issue to me as data restoration, I think. I may not have the exact identical concerns as others, but I feel rather strongly that there should be a means for two way communication on issues that people are concerned about. I do hope JL sticks around long enough to engage in some real dialogue on FF.

Cara

[aklap]

I'm already experience the slowness that exists here. I did not experience at BT2.

Being split is difficult.

[Electra375]

Well, I'm back too, but I had to re-register to get on and post.
I'm hoping things kick up again. The resources here were fantastic.

[jcc]

WE are hoping that all of our back posts will be restored. I did create The Gluten File as a website (see the post by rose), but we are still missing so much more!

Cara

[diamondheart]

Here's the link to the roll call over there on BT2:

http://forums.braintalk2.org/showthread.php?t=2306

Claire

[darlindeb]

I had to re-register too--been trying since yesterday to sign in. It would let me try 2 times and then tell me that I had no tries left and would have to wait for 15 mins. Well, tonight I decided to re-register--here I am!!!:p Deb

[annelb]

Glad that you made it in Deb. There were some glitches in the registration process yesterday. I got caught in them too.
Anne

[aklap]

That is as big of an issue to me as data restoration...

I've been thinking about the data restoration...

Since JL's re-entered all the forums in by hand, they will all be renumbered. We were forum#141, now we are #152. So, all the post old posts have to be linked to forumId 141. All of the forumId's would have to be changed from 141 to 152. A single SQL command could be issued to do the REPLACE, but gosh - what a mess piece together all this info. Then multiply that by how many forums????? Hmmmm then there's the User Id (who created the posts), those would have to be re-worked too. Plus whatever else. :eek: :eek: :eek:

I'm just glad it ain't me that's gotta piece this back together!

[JudyLV]

Now I am checking in over here. I really do not have time to go back and forth but I don't want to miss anything. Hopefully if things get restored soon everyone can decide to stay put one place or another. I get confused because both BT sites look the same. While this was conforting at first maybe it would have been better to have the background of BT2 be a different color :rolleyes: .

--Judy

[diamondheart]

Since JL's re-entered all the forums in by hand, they will all be renumbered. We were forum#141, now we are #152. So, all the post old posts have to be linked to forumId 141. All of the forumId's would have to be changed from 141 to 152. A single SQL command could be issued to do the REPLACE, but gosh - what a mess piece together all this info. Then multiply that by how many forums????? Hmmmm then there's the User Id (who created the posts), those would have to be re-worked too. Plus whatever else. :eek: :eek: :eek:

Now I know why my old bookmark wouldn't work. Have you pointed this out to JL?

It is annoying to have to go back and forth between BT1 and BT2.

Claire

[jcc]

Just reset your bookmark :).

I don't expect everyone will go back and forth. Some people do many forums already, and others like to stick to just one.

I simply don't want to have to choose. It might not surprise you that I had Maids of Honor and Best Men at my wedding :D.

I also couldn't stand knowing people were finding themselves here... with nobody here to answer their questions. I was here in the beginning, pretty much all alone save one or two others ;). And look how we grew. Not to mention, my history here goes back six years. I have friends across other forums who are here to stay.

At the same time, I do like many things about the other place, especially the open communication and system of moderation. So, as hard as this has all been, and trust me, I've been really struggling over it~ I've just come back to point in my life where I refused to choose one best friend over my other best friend :). In that light, I hope we will all remain best friends and not sweat over who posts here, there, or everywhere.

Cara

[jcc]

Now I am checking in over here. I really do not have time to go back and forth but I don't want to miss anything. Hopefully if things get restored soon everyone can decide to stay put one place or another. I get confused because both BT sites look the same. While this was conforting at first maybe it would have been better to have the background of BT2 be a different color :rolleyes: .

--Judy

Judy,

They will be changing the name of BT2 soon. They left it until now so that people could find their way there. At that time I expect there to be a change of colors as well. People have suggested that.

Cara

[diamondheart]

I'm like Judy. I don't really have the time to be checking multiple sites, especially if the posts are similar too.

I'm also practical. OBT was down about the same time that I was a member, so I don't have any loyalties to forums, but I am loyal to people. I really liked the group of people on OBT, but most of them found BT2. If the archeives come back up here, I'll probably be here to stay, but if not, there isn't much motivation for me. I also like what BT2 has to say about not being down for more than a day. BT1 crashed at a time I was having a digestive crisis :mad: . I got through it fine, but I would have appreciated being able to find some knowledgeable people to talk to! If I'm going to participate in a forum, I'd like it to be reliable and communicate realistically about the problems in getting back on-line instead of left hanging :mad: .

Claire

[Frog]

This is great!!!!!

Advantage of re- registering is that you can pick a new name! I have rebranded myself. I used to be Gabs and now I am Frog. Why? I find that when faced with too much choice I don't know what to choose, so seeing as I found a frog upstairs this morning (yes upstairs) I thought why not?

Any way I have decided to break my lurking habit as I was so upset when BT went down and am so relieved to see it back.

I think that it is a shame that the archive isn't up yet, but it will be. And if it isn't then it will be recreated eventually. I am going over to the FF now as I find for once in my life I actually have an opinion!

Speak soon
Frog

[jcc]

Hi Frog! Like the new identity!

Cara

[annelb]

I too am torn between the two forums. I work full time and run a local support group in my spare time. I don't have the time to become seriously involved in both. There are a couple of forums I check out now and then, but OBT was where my heart was.

I think getting the old data back would greatly influence my decision.

I have been posting on BT for over three years. The people here saved my life. (My goodness, I have certainly seen those words posted many times here)

I hope that JL will let us know what is going on. I hope he will address the concerns people have mentioned in FF.
Anne

[MotherMoon]

I am back too. Boy I missed it here. Did everything get lost, recipes, etc.?

Michelle, gluten free and needs to be dairy free
mom to Beth and Samanatha, both GFDF

[jcc]

We don't know yet if everything is lost. JL was going to let this run a few days before trying to restore and add back data...so it is a wait (some more) and see game.

Nice to see you!

Cara

[valeriemates]

...mom to 2 more DQ2ers and one on the way!!!

Hey Electra? I'm curious if they've done the genetic test on your unborn baby, or if you're just figuring that the baby will be DQ2 too. On my recent pregnancy that didn't work out, I knew by 12 weeks that the baby had the DQ2 gene. I was amazed that they could find that out so early.

-Valerie

[RathyKay]

I'm going back and forth. Pretty much all the Child Neuro folks have returned here. But, it seems like most of the GS/CD folks are either going to both places or staying at BT2. I started lurking on BT almost 3 years ago exactly... mostly on Child Neuro and Epilepsy. I hate to think where Tom would be without BT... how many more drugs we would have gone on to? How much further behind would he be? Anyway, I really hope JL gets the data restored so most of the GS/CD folks come back.

[Hanna]

It is nice to see BT. Yes my life and my childrens' have been saved. Doctors' have been ruined. etc..... but I am too confused to go back and forth. My heart is where the facts are and where the kind people are.

This sounds so cold. I want the love, warmth and access of knowledge of BT otherwise........... I spend my life fighting with those who don't believe in the gluten connection.

Just finished 6 weeks of radiation; my son's h pyliori has been treated and thus his (gluten) anemia though the doctors won't admit it. My son now is convinced at 14 that he must watch what he eats.

My dad who is in a hospice is only fed gluten free food. His skin has never looked so good.

All for now

[annelb]

Glad to hear that your DS is now convinced that he needs to be GF. Smary kid - must take after his mom :D

Sorry to hear that your father is in hospice but it sounds as though they are taking good care of him. That is important.

Hope the chemo did what it was supposed to do.

Anne

[Razzle0]

Got tired of not being able to log in, so just re-registered...

Anyway, I'm "here..." finally... Missed checking this board for some time, never found out about the alternate board until saw the posts here about it. Oh well... Now I don't have to be in GF forum withdrawal :)

My belly is still a mess, can't eat anything solid, not sure what's going on. New PCP (old one got tired of me and fired me...oh well, he wasn't that great anyhow) is really cool and is doing her best to figure out what's up with my guts. At least I can still work...that's always a bonus :)

Amazing how fast this year is swishing by... Good luck everyone on this Gluten-Free adventure!

-Razzle
Gluten Sensitivity, Sulfite Sensitivity, Allergies, other stuff; & something else that's causing me to have to live on a meal replacement liquid and ice cream (at least it's GF and organic ;) ).

[annelb]

Welcome back to BT :D

Sorry that you are still having gut trouble. Anyone who goes GF always hopes that that is the only problem.

"Ice Cream" - hmmmm do you have problem with lactose or casein? Very common with gluten sensitivity.

Anne

[klasyjo]

I saw on BT2 that the original BT was back! Sure did miss it.

I'm doing well. As list on BT2 my repeat biopies this past May showed signs of improvement. I get my labs rechecked in November - vitamins, Ttg, etc. I'm keeping my fingers crossed no more biopies this coming May 07.

I have found a man that is wonderful about the GF diet. He has helped me find courage to try making new GF foods to eat. Now that the hard season has come for me (the weather change sure does make my osteoarthritis and scatica flare up) he's learning to adjust to my slow movements. I'm so greatful that I found him.

My family is getting better as time goes by but they'll never completely understand and I've finally accepted that. For social gatherings I try to show up after lunch/dinner for the visits and they are ok with that.

I moved in January of this year and started a new job. I really like what I do, it's challenging everyday.

My son is doing well. Just turned 8 and has no signs of Celiac - labs came back negative and he gets tested again in two years.

Hope everyone has a great Halloween! I'll be decorating my home very soon.

[GFPaperdoll]

Hello everyone - I have a new name also, it was Country Heart. Wow, I did not know how much I used this board until it crashed. I did not ever find BT2. I have been posting some on another board but it is not like this one at all.
I have had a lot of things going on in my life. Just today I got sick at the office, I walked into the new suite of offices & they were still dry walling & had a fan blowing everywhere. I was not in there 5 minutes but my throat is still messed up like there is something in it & I cannot cough it out & it just hurts. I almost lost my voice, my nose burned, right ear hurt, I got a headache. I officed for the day on the 4th floor, but I was sick all day. I think that the stuff was coming from the 5th floor. The headache got better on the drive home - but the throat is not better. Anybody got any ideas???

Then my little sister's only child a son age 28 was killed in a traffic accident, Sept 14, 2006. He was a family practice doctor in his second year of residency. He was a remarkable person and got high accolades for his medical accomplishments in his short career. There will be a memorial schlolarship fund set up that will be awarded to second year residents that show exemplary patient care, he was known for that & also the cheesecakes & brownies that he made & took to the clinic & hospital staff, all the while getting up in the middle of the night to go to the hospital to check on his patients. Two nurses told my sister about the time he spent 45 minutes calming a woman that was having a panic attack, & they said at that time that he was not an ordinary doctor.

My nephew's & his roommate (an adopted child) were like brothers. He is taking it very hard. I was talking to him last night about celiac disease & they do check for it, when they have a failure to thrive child. I gave him some more info & will give him tha book "Dangerous Grains".

My little sister went to the GI doc today & took the printed out sheet that I gave her to get the blood tests. She has had her gall bladder out, has tubes in both ears, sinuitis surgery & it is still bad, has that ringing in her ears, IBS (bad), seasonal allergies, pouchy stomach, thin otherwise, gas, & our mother died of colon cancer (I had thought it was stomach cancer). When she is not crying with grief, she is reading that book "dangerous grains". I am sending her to Enterolab next, she is not GF yet, but I do not think it will be long. She has an endoscopy every three years, she is 52...

well that is about it for me...

[annelb]

I saw on BT2 that the original BT was back! Sure did miss it.

I'm doing well. As list on BT2 my repeat biopies this past May showed signs of improvement. I get my labs rechecked in November - vitamins, Ttg, etc. I'm keeping my fingers crossed no more biopies this coming May 07.

I have found a man that is wonderful about the GF diet. He has helped me find courage to try making new GF foods to eat. Now that the hard season has come for me (the weather change sure does make my osteoarthritis and scatica flare up) he's learning to adjust to my slow movements. I'm so greatful that I found him.

My family is getting better as time goes by but they'll never completely understand and I've finally accepted that. For social gatherings I try to show up after lunch/dinner for the visits and they are ok with that.

I moved in January of this year and started a new job. I really like what I do, it's challenging everyday.

My son is doing well. Just turned 8 and has no signs of Celiac - labs came back negative and he gets tested again in two years.

Hope everyone has a great Halloween! I'll be decorating my home very soon.

Hi Becki, I sure did miss this forum too.

Good to hear that you are doing so well. So many changes and all positive :D

Without small kids I don't do much for Halloween now other than hand out goodies.
Anne

[annelb]

Hello everyone - I have a new name also, it was Country Heart. Wow, I did not know how much I used this board until it crashed. I did not ever find BT2. I have been posting some on another board but it is not like this one at all.
I have had a lot of things going on in my life. Just today I got sick at the office, I walked into the new suite of offices & they were still dry walling & had a fan blowing everywhere. I was not in there 5 minutes but my throat is still messed up like there is something in it & I cannot cough it out & it just hurts. I almost lost my voice, my nose burned, right ear hurt, I got a headache. I officed for the day on the 4th floor, but I was sick all day. I think that the stuff was coming from the 5th floor. The headache got better on the drive home - but the throat is not better. Anybody got any ideas???

Then my little sister's only child a son age 28 was killed in a traffic accident, Sept 14, 2006. He was a family practice doctor in his second year of residency. He was a remarkable person and got high accolades for his medical accomplishments in his short career. There will be a memorial schlolarship fund set up that will be awarded to second year residents that show exemplary patient care, he was known for that & also the cheesecakes & brownies that he made & took to the clinic & hospital staff, all the while getting up in the middle of the night to go to the hospital to check on his patients. Two nurses told my sister about the time he spent 45 minutes calming a woman that was having a panic attack, & they said at that time that he was not an ordinary doctor.

My nephew's & his roommate (an adopted child) were like brothers. He is taking it very hard. I was talking to him last night about celiac disease & they do check for it, when they have a failure to thrive child. I gave him some more info & will give him tha book "Dangerous Grains".

My little sister went to the GI doc today & took the printed out sheet that I gave her to get the blood tests. She has had her gall bladder out, has tubes in both ears, sinuitis surgery & it is still bad, has that ringing in her ears, IBS (bad), seasonal allergies, pouchy stomach, thin otherwise, gas, & our mother died of colon cancer (I had thought it was stomach cancer). When she is not crying with grief, she is reading that book "dangerous grains". I am sending her to Enterolab next, she is not GF yet, but I do not think it will be long. She has an endoscopy every three years, she is 52...

well that is about it for me...


Nice to see you again Country Heart, oops I mean GFPaperdoll. Paperdolls are fragile - I imagine that is how you might feel right now. I am so sorry to hear about your nephew's death. He must have been a very special person. I don't have any other words other than "I am sorry." (((((hugs)))))

Drywall. There were discussions about drywall and drywall compound and there is gluten in it. If there was dust blowing around, it could make you sick. Apparently it made others on the forum sick too. I tried to find the old thread but, no luck. Still hoping the old database will return. So much info in it.

Did your sister get the blood tests?

My thoughts and well wishes to you and your family,
Anne

[GFPaperdoll]

Yes Anne, she had the blood tests. I printed out the info for all 4 of them from my local support group & she printed them out & took them to the doctor. She is a retired radiology tech so not even counting spending her time around her son & his doctor friends she is pretty medical savvy in her own right. The GI doc had never run the blood tests & was grateful that she brought the list etc. My sister said they had no idea what to do, but they made some phone calls & she said something about they were going to refrigerate her blood & mail it off. I am hoping that they are sending to Prometheus labs, since that info was on there.
We have different fathers, so I was hoping that she would not have the CD problems. I have another sister (same mother & father) that is a year younger than I am & there is no doubt that she has CD, well to me anyway, she is still killing herself eating wheat.

[pakisa100]

Hello. I'm finally here. Is it still October? :D

Honestly, I've been having difficulty coming back here.

After the site going down this second time (no other group I've ever belonged to has had this issue - and I belong to many - homeschooling, chicken raising, dog health, cooking, etc.) and the problems with the heavy-handed moderators (in this gs section where we were all living quite happily without their input), I've not had much impetus to return. Especially since I'm afraid anything I say can and probably will be held against me.

Another issue I had is that they starred out some of the words on one of the abstracts I posted. I wouldn't have had issue if they had starred out one or two letters (you would've still been able to tell what the study was talking about that way) but they starred out the whole word which resulted in people not being able to tell what the replacement food could've been for a cow dairy sensitivity! :( (And they didn't even have the courtesy to tell me they were altering one of my posts!!! :mad: :mad: :mad: )

So, my food studies (when I finally start re-building them!) will be posted over at BT2 (http://forums.braintalk2.org/forumdisplay.php?f=13) for sure. I just don't have time to post them at both places... sorry about that.

Honestly, the only reason I come back here at all is because of the 'oldies' that I love and want to support (Cara - of course, Al, Ann, etc.). If they did not feel any loyalty to this site, I wouldn't be here any longer. I don't feel loyalty to a place that makes me feel scared... as I look down at the moderator block and see SIX! moderators for this gs site that has NEVER had any issues (save the one that was caused, not by any members or even anyone who was going to stay, but by a passing interloper).

My last reason is that I think if I post my stuff at BT2 (http://forums.braintalk2.org/forumdisplay.php?f=13), the psych. community may tune in because it's been set up by one of their own. I think it would be nice for their 'club' to have unlimited insight into the studies we're looking at and what we find works/supports study findings. It would be nice if they started talking about our findings at their conferences so that word really starts spreading around the psych. community.

So there you have it. Sorry folks. I'll pop in here once in a while to post a link or two just to keep information flow up... but I'll be spending my time at BT2 (http://forums.braintalk2.org/forumdisplay.php?f=13)

Kind regards,
KimS (formerly: pakisa100)

[jcc]

Another issue I had is that they starred out some of the words on one of the abstracts I posted.


That is really weird... I don't ever remember anything like that occuring (not that it didn't happen, just don't remember it being brought up). Do you remember what the word was? I think there are some words that are automatically blocked. I didn't think mods ever read here...lol. The other incident was due to an outsider complaining on FF about selling on our forum.

I know they used to edit into posts quite often at Delphi, and I agree that it is an invasion, particularly for something innocent...like someone mentioning they ate at a restaurant but forgetting the mandatory disclaimer.

Cara

[pakisa100]

The word was as* as in a type of animal dairy. It was there just fine for months and months and then all of a sudden the whole word was starred out. The whole study was based on the fact that some people, who couldn't tolerate other milks, could tolerate that type. :mad:

I do suspect it was just some passerby who took offense, just because that's the only time we ever had any trouble... and I can even understand a mod. wanting to delete the possibility of someone weird doing a search for that one word and ending up here... but they didn't have to star out the entire word!

[jcc]

It seems that might be on an auto list, but it wouldn't explain why it would be ok for weeks before the stars showed up. You know, I'm just dying to type the word to see what happens....lol.... but I might receive an auto infraction. I think at Delphi, or maybe here, the words make money could not be used together :).

Cara

[Leslieand]

I'm here. Husband just got back from a trip with his old pre-gluten ADHD, mania, and irritability. Of course he tells me he didn't eat gluten... But I know better. If you ever see an article backing up hyperthyroidism and gluten or meneire's (like) autoimmune ear disease with gluten please pass it on. Everything I've read says 5% are celiacs. What with his negative blood tests (eating mainly gf at the time) and no good articles he just doesn't have much drive to stay off gluten altogether. (He is double DQ2).:eek:

I'm off all asthma drugs now with a spirometry better than when I was on drugs. Over 115% capacity in all airways. Wasn't asthma-was gluten.:D And at one time I was on 30mg Prevacid twice a day, 1840mg (or whatever measurement)Flovent and still had peak flows of 70% of my new high. Also had irregular heart beat and voice loss.

What worries me is that I tested negative (gf at time) and even Enterolab was high normal. Yet the returned health is undeniable. Food for thought.:rolleyes:
Leslie

[annelb]

Fantastic news about your better health Leslie :D I hope your doctor is impressed with what you have done. I hope your experience encourages others to try a GF diet in spite of negative tests. Are you IgA deficient? That would be one explanation for negative tests.

Sorry that your DH won't get on board with the GF life even after seeing your health improve. I think the problem with looking at the literature for the connection between Grave's and gluten is that the docs are looking only for CD. I wonder what the percent of people with autoimmune thyroid disease have gluten sensitivity :confused: I have never found an article that states more than 5-6% incidence either.

This may help. Although there was not an increased incidence of Grave's, in follow-up some who did not follow the diet went on to develop it.

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=11280546&dopt=Abstract

Am J Gastroenterol. 2001 Mar;96(3):751-7.
Prevalence of thyroid disorders in untreated adult celiac disease patients and effect of gluten withdrawal: an Italian multicenter study.

Sategna-Guidetti C, Volta U, Ciacci C, Usai P, Carlino A, De Franceschi L, Camera A, Pelli A, Brossa C.

University of Torino, Italy.

OBJECTIVES: Many afflictions have been associated with celiac disease, but chance associations may exists. The aim of this study was to establish, by means of a multicenter prospective study, the prevalence of thyroid impairment among adult patients with newly diagnosed celiac disease and to evaluate the effect of a 1-yr gluten withdrawal on thyroid function. METHODS: A total of 241 consecutive untreated patients and 212 controls were enrolled. In 128 subjects a thorough assessment, including intestinal biopsy, was repeated within 1 yr of dietary treatment. Thyroid function was assayed by measuring the levels of TSH, free T3, free T4, thyroperoxidase, and thyroid microsome antibodies. RESULTS: Thyroid disease was 3-fold higher in patients than in controls (p < 0.0005). Hypothyroidism, diagnosed in 31 patients (12.9%) and nine controls (4.2%), was subclinical in 29 patients and of nonautoimmune origin in 21. There was no difference regarding hyperthyroidism, whereas autoimmune thyroid disease with euthyroidism was present in 39 patients (16.2%) and eight controls (3.8%). In most patients who strictly followed a 1-yr gluten withdrawal (as confirmed by intestinal mucosa recovery), there was a normalization of subclinical hypothyroidism. Twenty-five percent of patients with euthyroid autoimmune disease shifted toward either a subclinical hyperthyroidism or subclinical hypothyroidism; in these subjects, dietary compliance was poor. In addition, 5.5% of patients whose thyroid function was normal while untreated developed some degree of thyroid dysfunction 1 yr later. CONCLUSIONS: The greater frequency of thyroid disease among celiac disease patients justifies a thyroid functional assessment. In distinct cases, gluten withdrawal may single-handedly reverse the abnormality.

PMID: 11280546 [PubMed - indexed for MEDLINE]

Anne

[aklap]

Hi Kim,

I suspect that Cara is right about auto filtering words. In many boards, I suspect all of them, you can set up certain words that will be stared out. I have experienced this over at the CF board, plus in a board that I started setting up myself [just to understand how they work]. In the phpBB software they are called Word Censors. You enter the bad word and you enter the word you want to appear.

"The jaw bone of an ***"

Let's see if this gets filtered...

Edit after post: Yup - it filtered it!!

Yeah Kim, I'm having a hard time too. Quite frankly, splitting between the two is getting...tiresome ['course it doesn't help matters that I've had the stupid cold/flu cr@p going around and I'm tired and grumpy anyway] ;). There's just not enough time in the day...

[jcc]

I never stop being impressed by how many people have major positive health changes after dumping gluten, celiac or not. I especially love to hear about the prescription drugs that can be avoided.

Cara

[annelb]

I don't like the split either. Wasn't there a child's game with the song of "round and round she goes and where she stops, nobody knows" - that is how I feel :confused:

Was that rhyme part of "swinging statues"?
Anne

[jcc]

Quite frankly, splitting between the two is getting...tiresome ['course it doesn't help matters that I've had the stupid cold/flu cr@p going around and I'm tired and grumpy anyway] ;). There's just not enough time in the day...

Two?? You are doing more than that ;) ! I'm still just doing two :). Everyone will find their own comfort level of how much they can do and where they will do it. I don't work and I have my days to myself while my daughter is at school. I have the luxury of time to pop back and forth, but I do understand everyone doesn't have that same luxury.

I'm sorry to hear you aren't feeling well. The weather today didn't help any, I'm sure.

Cara

[pakisa100]

Sorry to hear you're feeling so 'yuck' Al.

Maybe they plugged that word in a while after I had posted the abstract. Thanks for explaining. It makes me feel a little better and if I post an abstract like that again, I will know to alter the word myself upon posting... but my abstracts are still not going to be posted here.

I just lost too much information. Honestly, for myself, it's not that big a deal because most of it is still in my head. But I'm upset because it was an enormous compilation of food studies that would be very helpful to people trying to heal, all in one place, which made it very easy for them to gather tidbits to decide on what foods they could use to heal and which ones they might want to try avoiding. Part of what made my time commitment to reading and compiling those abstracts was the fact that I would not be the only one to benefit from all the information. :(

Even if they get it all back, I still feel open to 'the next time BT goes down'. :rolleyes:

I'm also half expecting I'll be banned for these posts because I'm voicing my unhappiness. This makes me, kind of, doubly angry because I'm one of those people who sent money in the first time BT went down, just so they could get back up and running. I did not realize at the time how easy it was to get banned or how easy it was to be fearful of being banned. :eek: :( :mad:

[aklap]

Kim,

As for getting banned around here...I don't think you have a lot to worry about. I was quite vocal during the Monica Incident last year...nothing happened to me. I expected it however.

Things appear to be changing here now. Maybe in time, you'll feel more comfortable.

We'll just have to wait and see about the data. There's not much else to do at this point.

My fear still remains about the next outage. It will happen again at some point in time.

Sorry to hear you're feeling so 'yuck' Al.
Thanks!

[Leslieand]

Thank you Anne,
I hadn't seen that abstract and will print it out for Joe when we have the big talk about eating wheat while on business trips. I'm not IgA deficient. It's just very strange that I never showed up definitively positive on any tests but lactose. They even taped food to my back and found no reaction. And yet I react to tiny amounts of gluten...
Leslie

[aklap]

Two?? You are doing more than that ;) ! I'm still just doing two :). Everyone will find their own comfort level of how much they can do and where they will do it. I don't work and I have my days to myself while my daughter is at school. I have the luxury of time to pop back and forth, but I do understand everyone doesn't have that same luxury.

Yeah you're right - it's really 3, but I was only talking about BT's. Actually, I haven't much time or desire to devote to any of them them :eek: LOL!! Right now my main concern is getting some calluses built up on my fingers for a guitar service at church in Nov. We've got 2 services this year :eek: :eek: I haven't played for quite awhile, so my fingers hurt. :(

I'm sorry to hear you aren't feeling well. The weather today didn't help any, I'm sure.
Thanks! I love fall, but fall does not love me. Right now I don't know how much of what I feeling is cold and how much is seasonal allergies. Allergies really wipe me out this time of year. I go to be 10-11:00pm [which you guys know is 1-2 hrs eariler than normal] and I still feel tired. <GACK> <snif> <cough><snort> ;)

[diamondheart]

Al - I hope you feel better soon. Where are the hugging smilie faces? I have them on another forum I'm on. (((Al))) :( Sorry, not as good as hugging smilie faces. Maybe Anne can find me some.

I'm mostly lurking here, but will pop in once in a while to comment. I don't see the use in putting a whole bunch of data here on this forum if there aren't reliable backups and crash times are longer than a week. I'm more impressed with what Doc John has to say on BT2 with his experience with forums - never down more than a day because he leases his hard drives, and everything backed up.

Claire

[aklap]

Thanks Claire!!

The same goes for BT2 - a crash is never a matter of IF, it's a matter of WHEN. If I've learned nothing in the 24 years of computer consulting - it's always WHEN, never IF. Then it comes down to, how is each party prepared to deal with that crash.