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[momo2]

Hi there. My husband as recently been diagnosed with "probable" mmn. He's had symptoms for about 4 years. started in the fingers/wrist. twitching and cramps. at first thoughts were als, but a recent trip to boston found conduc. block, so they are saying probable mmn. says now arm feels weaker than the other, and he's got drop foot, only when walking fast. to look at him you wouldn't know anyting was wrong. he recently had 5 days straight of ivig treatment, with no results whatsoever. that makes me a bit nervous. Any comments would be appreciated.

[sdc]

Hello there, and welcome to the forum! You say your husband "recently" had five days of IVIG, but you don't say how recently. Therefore, I am assuming "recently" probably means within the past few days or couple of weeks. If that is the case, I wouldn't get too worried, yet. While everyone responds differently to just about anything, most people find that it takes awhile for the IVIG to start working (if at all). It took at least 2 or 3 months before I could really tell a difference. Also, in my case, it wasn't really an abrupt change. It sort of sneaks up on you, for lack of a better way to describe it.

[ronju99]

I've had MMN for over three years and have severe muscle wasting of left thumb and index finger plus left foot drop. I took IVIG treatments one day a week for ten weeks at 40grams each without any noticable effect. I'm not taking anything now as it seems to be fairly stable for now.

Ron :rolleyes:

[momo2]

Thanks for your replies. Treatments were about 3-4 weeks ago. Neuro said if there were no results, they probably wouldn't do it again.. so we'll see. Actually, he's noticed cramps aren't as frequent as they were a year ago or so. don't know if that's good or bad. I also read somewhere where some people with these neuro issues have had a chronic sinus issue. Anyone have that here? My hubby has had this ongoing sinus thing for 5 years or so. I don't know if it's related or not -- doesn't seem like it would be.. but who knows. Best of luck to all of you.

[sdc]

momo2, funny you asked about sinus issues. I actually opened a whole new can-o-worms in that regard a couple of weeks ago. I had been having trouble with recurring sore throat, drainage down the back of the throat, etc. So, I was referred to an otolarynologist (spelling?) by my primary care physician. After a couple of office visits/exams and a CT scan of the sinuses, I quickly learned that I do have, and almost certainly have had for quite some time, sinusitis. I never even knew, or really suspected before. I've been taking antibiotics and doing a couple of different nose sprays for the past couple of weeks as a result. I suppose it has been working because my throat is now a whole lot better.

But, what is even more interesting is the fact that my particular doc has mentioned a medical paper that proves a direct link between sinusitis and multiple sclerosis in certain cases. The cause has been found to be a virus in those cases. I haven't read the paper, yet, but it is here on my desk and I do plan to read it as soon as I get a chance. From what the doc explained though, evidently this particular virus has been shown to be the cause of sinusitis in some individuals and it is thought there is a link to it also causing multiple sclerosis in the same set of people. It then stands to reason that if it can cause MS, could it also possibly cause other neurological conditions, too (e.g., MMN)?