Guess what I just realized...

[Kristen (ColeysMom)]

As I was posting to Hal about all that has gone on with Coley...I realized that his Auditory Processing stuff is gone

I call it 'stuff' since he was never diag being too young & all...but he had symptoms that were pointing toward that...even the audiologist thought there was a good chance of it, saying we ought to watch it and see if we could incorporate exercises at that time, and then get him assessed at the appropriate age...

Anyway,

-he couldn't handle more than one auditory stimuli at one time...like TV and someone talking,

-singing and music

-a group of singers drove him straight out of his skin (his birthdays were so traumatic, add a sugar filled cake...poor thing!)

-would get hung up on a sound for extended periods of time...like if he heard a truck go by, he would stand at the window for 30 minutes looking for the truck...

-and WAY delayed reactions to sounds too.

-Loud noises, like the vacuum cleaner and DH's power tools drove him batty! HE'd get hysterical.

It's all gone now...since restricting the fructose. It was still there while he was taking anti-convulsants...which is why I thought it not a seizure/irratic brainwave thing and a seperate issue...like his sleep disturbances (which are also gone since restricting but remained even with the anti-convulsants)....but I completely forgot about all the auditory problems and had to post...

I'm, sure it means almost nothing to anyone...I'm just kinda like...WHOA! and needed to just 'say it' out loud...:D :D

KJ

[milivica]

"Means almost nothing"...are you goofy?

That's incredible!!! Good for Coley, fantastic awesome wonderful he's not having to cope with sensory issues like that, YEAH! YES! FANTASTIC! And Congratulations!

[Kristen (ColeysMom)]

Thanks Mili!

Sometimes I forget how far he's come! It really is amazing!!!

We really are only dealing with a smiggin of what we used! :D

[peglem]

Its such a big fat huge deal! It might be no biggie to those perfect parents of perfect children, but those of us on this board can appreciate what a big deal these things can be. You have a right to celebrate and share the triumph here!

[Keggy]

I am no audiologist, but that sounds to me as though his auditory system is maturing. He may still have an auditory proccessing disorder. My daughter had similar difficulties that went away with age, and some after her decompression surgery. She still has an auditory proccessing disorder, and it really makes things hard for her.

[Kristen (ColeysMom)]

Thanks guys! I didn't mean you guys wouldn't care...I knew you would, or I wouldn't have posted...I just meant that it wasn't really gonna add much for anyone...

THANK YOU!!!! For celebrating with me!!!

Sometimes I'm so focused on what we still have to accomplish that it feels as big as a mountain, when in reality we really have chipped that awful mountain down to a bump.

It was nice to get that reality check...and AWESOME that you guys appreciate as much as I do!

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Keggy, He could, I know. But at this age he still can't be evaluated so it still an on hold thing...and at the moment he doesn't seem to be having any 'garing' issues...but we will continue to watch it.

It wasn't something that slowly went away...it just all went away. Looking back at it now...just like the OCD, and the sleep disturbances, at the aggressive behavior, etc. It was gone. Just 4 weeks after restricting was Christmas...DH has a HUGE family and Christmas was a NIGHTMARE for the kid. I would cry at every gathering because Coley would be going balistic with all the noise...but that was the first Christmas that he was able to enjoy. And then just 6 weeks after that was his B-day and we were FINALLY able to sing happy birthday to him without him screeching for us to stop. I guess he could have matured in 10 weeks, but seems like a BIG coincidence...particularly when just before restricting we were groing more & more concerned about his delayed reaction to sounds...that was getting WAY scary.

I remember one time the mail came through the slot, it was his job to get the mail and put it on the table for Daddy. He was playing with a toy and I said "Mail's here." He just sat there with no response. Which by itself was a problem too. I'm not sure that is an CAP thing...but he would often not look up or respond when someone talked to him. Certain things I would get in his face so he couldn't 'ignore' me. Touch his shoulders and talk directly to his face...but on this day I was either busy or just tired of it...maybe even disheartened...who knows. I just went and got it myself and didn't bother. I sat there and went through it, catalogs and whatnot...probably for a few minutes...OH I remember now....his EI therapist was here & we were talking about something, so I just did it...Anyhow, I put it on the table and the ST & I continued to talk...we were getting him ready for his transition to preschool. And all of a sudden Coley walks over and says "Mails here"...the 2 of us just looked at each other it was CREEPY...and it was seemingly getting worse. She drafted a letter to Coley's Neuro after that, because the neuro was ONLY focused on his speech, and wasn't acknowledging any of his obvious processing issues...and someone NEEDED to be looking at it! So Coley walked over to the door to get the mail, and then spent a long period of time frantic about the fact that there was no mail there for him to pick up. I remember feeling like I was in the twilight zone that day. I just had no idea how to deal with that. And the ENT & Audiologist were the only ones really talking to us about it...and they could only say that he was too young to do anything but that it certainly DID look as though there was a problem...I started looking at brainmapping and things like that...I was SO scared. His whole education and social development was flashing before my eyes. This particular event probably happened at the end of Oct/beginning of Nov...restriction began right before T-day...we had our first T-day at home that year becaue there are so many foods he couldn't have (veggies, pies, etc). And there was a huge difference by Christmas.

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