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MitsyG
10-02-2007, 12:08 PM
These might also be helpful....I got this from Nancy Kale the VP of unlockingautism.org



Our Favorites so Far on Casein-Free/Gluten-Free Diet

My daughter has a true food allergy to beef, so you won’t see anything containing beef on this list. That doesn’t mean it’s not safe on the gf/cf diet, this is just a list of what we eat.

We drink Westbrae rice milk, Westbrae soy milk, and Dari-Free beverage. The rice and soy milk is at our regular grocery stores and health food store. The Dari-Free has to be ordered…Miss Roben’s and Gluten Solutions carries it. It’s sweet, yet has less sugar than the rice milk! It comes in a powder, so you have to add it to water and really mix it well. I like it a lot. We also purchased the special blending pitcher that these places sell for reconstituting the Dari-Free. Some of the recipes I use for baking call for the Dari-free powder.

I have found that most health food store owners are happy to accommodate any request I have for them to start carrying special items for me. I’ve ordered some things through the mail-order places, liked them, and then asked our local health food store to carry them so I don’t have to pay shipping charges to get them.

Please know that these are safe foods as of right now, and that I’ve learned to never assume anything about prepackaged foods. They can change the ingredients without changing their packaging, and then what was once safe no longer is. You’ll need to check the labels of everything each time you purchase them.

When I put my daughter on this diet, she went through withdraw symptoms for three weeks. She was up every night for hours, she didn’t want to eat anything, and she looked terrible. That’s how I knew her diet was affecting her. The information about this diet that is published, notes that any change in behavior or sleep patterns means that the child should be off of gluten and casein. After the initial three weeks, regular sleep patterns came back. She was a new person, with tons more skills, and a much happier disposition.

These websites are helpful. I highly urge you to check them out to learn more:

www.autismndi.com (Autism Network for Dietary Intervention)
www.gfcfdiet.com (has pointers to get started, safe food lists, and a chat room)
www.missroben.com (a place to mail order for safe foods and ingredients)
www.glutenfreemall.com (another place to mail order)
******************** (another place!)
www.glutensolutions.com (another place…one of my favorites!)
www.kinnikinnickfoods.com (pre-made cookies, breads, bagels, etc. delicious! All high in sugar and have eggs, though)


Breakfast:

Vann’s regular, blueberry, or apple-cinnamon gluten-free, dairy-free, egg-free frozen waffles (at health food store, and in our regular grocery store’s health food freezer)

Lifestream buckwheat waffles-mixed berry. Our health food store carries these now after I requested them. These are quite tasty.

We only use 100% pure maple syrup to avoid hidden milk products in butter flavoring, etc. We also are experimenting with adding vegetable glycerin to cut down the amount of maple syrup we are using (trying to cut way back on sugars)

Sylvan Border Farms pancakes. I buy the mix from Gluten Solutions (online). I make the mix by using lite coconut milk (Thai brand has no preservatives) and lemon juice to replace the buttermilk it calls for. These contain healthful flours, like quinoa, amaranth, and chickpea. Once in awhile, I can actually get a pancake without any gummies in the middle! J

Cereals:
New Morning Cocoa Crispy Rice: Miss Roben’s carries this
Arrowhead Mills Puffed Rice: Our regular grocery store carries this (comes in a bag)
Arrowhead Mills Puffed Millet: again, this is at our regular grocery store
Enviro Kids Gorilla Munch: Miss Roben’s carries this, so does our local farmer’s market
Health Valley Rice Crunch ‘Ems: Miss Roben’s
Enviro Kids Honey’d Corn Flakes: Miss Roben’s


Lunch:

Food for Life white or brown rice bread: This only comes frozen. Our regular grocery store sells it in their frozen health foods section, also our health food store carries it. We tried the EnerG Foods rice bread and didn’t like it. It was dry.

Deland Bakery, in Florida, has delicious millet breads. Their number is (904) 734-7553. Call and ask them to send or fax you a list of their products. They have great buns, bagels, and their bread is the best. It blows the Food for Life stuff away. The only concern I have is that they do manufacture gluten breads in the same facility, although they state that they clean their lines before each batch to avoid cross contamination. Anyways, you have to order a min. of 24 items for them to ship to you.

I avoid lunch meats because most contain hidden milk and gluten, but do use Cure 81 ham or leftover turkey to make meat sandwiches once in awhile. My daughter likes almond butter (instead of peanut butter), so we use that (health food store) and homemade jam (buy from lady nearby). From the GF/CF diet web site, Welch’s jelly is safe. I also rotate in cashew butter and sesame butter to get different nutrients in her diet.

Imagine Foods soups that come in cartons (like the rice or soy milk cartons) We like the butternut squash flavor a lot, and use the cream of corn and potato leek often as well. These are really great. They also make a safe "cream sauce" substitute that is milk free and gluten free, also found in this line of soups. Our regular grocery store’s health food section carries the full line. Miss Roben’s just started carrying these as well.

Shelton’s chicken or turkey hot dogs. Webvan carries the chicken dogs! So does our regular grocer (health food section…in frozen foods) and health food store. These are organic and preservative free.

Shelton’s turkey sausage…similar to hot dogs, just more fat! (and more protein too)

Nayonnaise- soy-based mayonnaise that is certified gluten free (I called the company)

Dinner:

Lundberg Farms wild rices
White rice
Brown rice
Jasmati rice
Basmati rice
Arborio rice…I make it plain with the Imagine No-Chicken broth, and my daughter eats a lot of it
Rice pastas (all the stores and mail order places sell many varieties of these)
Lentil bean pastas (Miss Roben’s)
Muir Glen tomato sauces, Contandina tomato sauces

Mashed potatoes made with Dari-Free milk and Fleischmann’s unsalted margarine
Cascadian Farms hashed browns, homestyle potatoes, and french fries: health food store frozen food section (I order safe ketchup from Miss Roben’s)
Boiled red potatoes
Baked sweet potatoes
Roasted potatoes with simple spices

I use the EnerG Foods breadcrumbs (they’re delicious, it’s hard to believe they’re made with rice flours and such) to coat small chicken pieces to fry in oil for homemade chicken nuggets. I also use these breadcrumbs to make meatballs and meatloaves

Roaster chickens, baked fresh fish (farm raised salmon, farm raised tilapia, and orange roughy…these fish have less potential toxins) with lemon and spices, pure pork chops (not Hormel or any other "enhanced with solution" brands because they contain potassium lactate which is a milk by-product), pure pork tenderloin, cornish hens, various chicken dishes with plain spices and such (Note, we get organic meats at our local farmer’s market) Meatloaf with ground pork, EnerG breadcrumbs, poha, onions, and spices…better than mom’s meatloaf! Poached chicken in crock pot…cover a small fryer chicken with water in the crock pot, add a bay leaf, _ tsp. Ground cloves, one small onion, a few carrots, potatoes if you’d like, and thyme to taste. Cook on low 9 hours.

I ordered lots of different Mr. Spice sauces from one of the gluten-free mail order places (most of them carry this line of sauces), and use those on meats.

Our favorite biscuit so far is one I make from a mix I order from Gluten Solutions. It’s called ‘Cuz You’re Special biscuit mix. It calls for you to use buttermilk in making the mix, but I’ve always used Dari-free, and they taste good!

EnerG Foods tapioca rolls. These come ready-to-eat, but they are hard and need to be run under water briefly, and baked in the oven at 350 for a few minutes to soften.

Desserts and Snacks:

Cerrone cones: these are safe ice-cream cones (all the ones at the grocery store contain gluten). I order these through Miss Roben’s or Gluten Solutions

Glutafin tea biscuits: a ready-to-eat shortbread cookie. I order these through the mail order places. This Glutafin brand makes a variety of cookies, and while the tea biscuits are our favorite one, the others are pretty good too.

Bi Algut ritz-like cracker. Well, that’s how they promote them anyways! They don’t taste like a ritz, but the shape and texture are good, and the taste is satisfactory.

EnerGFoods pretzels. These taste better than wheat pretzels to me!

Lay’s potato chips

Tostitos

Terra Stix Our regular grocery store carries these, but so does Miss Roben’s. These are similar to potato sticks.

Health Valley rice crackers. Don’t know why they call them crackers, they are like very sweet, very crunchy graham crackers.

Pamela’s brownie mix makes an awesome brownie! Great for a treat. Our health food store carries this, and I’m sure one of the gluten-free mail order places would too.

The ANDI group says Tofutti ice-cream (soy cream, really) is acceptable, although the company cannot guarantee its vanilla is gluten free. They did some research on vanillas, and found that most would be gluten free if prepared properly. Anyways, it is pretty good. I like Soy Delicious too, but it is hard to find. It has less bad stuff and more good stuff in it.

Juice bars, fruit bars, I make homemade Popsicles from fruit juice.

JungleWoman
10-02-2007, 01:16 PM
If you ever get a chance to try either Kinnickinnick doughnuts or Namaste brand brownies--- DO IT! They are SO good!

The Namaste brownie mixes are about $7 a bag, but they make a double size batch so you're eating brownies forever!

I buy these over the regular gluten filled brownies, and we dont do GFCF anymore!

Tootsie
10-02-2007, 08:30 PM
For those who can tolerate dairy products, Breyer's ice cream, in the past, was all natural and only had sugar, cream, natural vanilla flavoring, or fruit, etc. The carton had said "new," but little did I realize, that, that not only meant a new flavor, but about 40 different additives!

I've already dumped it down the garbage disposal as I found myself nauseated after eating the first serving. When the same thing happened with the second service, I read the label. What a shock. However, I guess everyone on this board has had a similar experience at some time or another.

My comments went to Customer Service, along with the UPC code and information stamped on the bottom. "Chocolatey coating! Shame on you."
Cheerio.

Marciab
10-10-2007, 09:41 AM
Hi there

I normally hang out on the GF and CFS boards, but I read this and wanted to make sure you knew that this bread is highly contaminated. I live near Deland, Fl and my celiac support group leader says that this bread had been tested repeatedly and found to have high levels of gluten.

They were putting a wheat, etc sticker on this the last time I looked.

Deland Bakery, in Florida, has delicious millet breads. Their number is (904) 734-7553. Call and ask them to send or fax you a list of their products. They have great buns, bagels, and their bread is the best. It blows the Food for Life stuff away. The only concern I have is that they do manufacture gluten breads in the same facility, although they state that they clean their lines before each batch to avoid cross contamination. Anyways, you have to order a min. of 24 items for them to ship to you.

JSYK, Many people who have gluten sensitivities can't handle any cross contamination whatsoever. The last time I got nailed was from a bag of organic pine nuts that were processed in a facility that processed wheat.

Good luck with this ... Marcia

Isabelle
10-10-2007, 04:50 PM
thanks for the head ups, is good to know that are sites to consult and verify any trespasses
it's important to know that digestive enzymes minimize in some cases the effects of unseen casein and gluten is best taken before and/or after which is effective too.
milk thistle is excellent to rejuvenate the liver taken before meals

Kristen (ColeysMom)
10-11-2007, 01:08 PM
My head is absolutely swimming with all that we discussed here lately pertaining to diet & yeast.

On one hand I'm interested in 'testing' some of the ideas and on the other I'm petrified.

In some ways I feel like I just keep taking more & more away from Coley...it's better for him or I'd give it back...but I have this fear that I'm going to learn that EVERYTHING bothers him and that I'm going to have to live with some of it or something...like trading mental health for fuel to grow or something. Of course that's a fear and has no basis so I'm trying to ignore it, but it is paralizing at the moment.

I am going to wait until we talk to the GI on Monday before altering his diet any further...perhaps some prescribed intervention (like enzymes or probiotics) will give me the courage.

Having said all that, one thing I'm interested in trying is the Paleo diet. Have any of you ever read up on or tried it? It's like a cross between Atkins and SCD. I actually learned about it way back...I think I saw it on Oprah or something years ago and tried it myself to drop those last stubborn 10 pounds that seem to appear out of no where somewhere around your 30th birthday...happy birthday your getting old & fat! LOL!

Anyhoo, it worked! And more than that it had amazing affects on my sleep and thought. Now, let me clarify first that I don't think, and didn't think I had any real issues, beyond stress related stuff in those areas. But was VERY surprised at how much more calm and rested and confident and strong I felt while on the diet. So I knew this guy, Ray Audette was onto something. It wasn't just a diet, as he described it, it's a way of life. That the human body was not designed to consume all sorts of chemicals (a no-brainer), but more than that even the array of grains, fruits & veggies that we do...never mind the overprocessed varieties. And mind you, before we (DH, my boyfriend at the time) tried it, we were already eating primarily from whole foods.

Ok, so with all this swimming around in my head, I decided to go get a 'refresher' on the diet (although somewhere in my unpacked boxes down the cellar I do have his book, Neaderthin)...I want to see specifically what items would be allowed that Coley now doesn't get due to the fructose restriction. I already know the grains need to be eliminated, but I'm curious to know which items I'd be adding back, wondering if my fears will allow it, if they are that scary or not...

So I'm looking on the net to avoid the cellar and come across this:
http://www.paleodiet.com/autism/

And I just can't believe it...the page itself doesn't say anything that we didn't already know, or hear about...but I was VERY surprised to see anything about Autism &/or behavior issues linked up with the diet itself.

Ok, so after refreshing my memory, a little: a few nuts (those lower in fructose) would be considered an 'add' for Coley. And also the fruits & berries. The interesting thing with that, is that as I got over my shock of the fruits on the list, as well as the root veggies (particularly carrots which are high in fructose) I recalled that these things are supposed to be eaten raw AND not inconjunction with other things.

It is REALLY interesting, because one thing that we consider for Coley was that d-glyceric aciduria....for which he had just been tested negetive for...well one of the 'quirks' with this enzyme is that it performs better in fructose breakdown when the body is in a 'fasted' state. Which means fructose is better tolerated on an empty stomach versus mixed with other things.

We tested this with Coley, only a couple times, but those couple times he did seem to tolerate stuff better...PLUS looking back at my volumes of notes on his behavior/intake shows a sharp decline in his consumption after fructose intake.

Ok...so I'm not real sure exactly why I'm rambling on here about all this...maybe I just have so many things swimming around in my head that I gotta put some of it into black & white to process it at this point.

Although I thought some of you might find the paleo diet interesting too...

KJ

Marciab
10-12-2007, 12:16 AM
Hi again,

I hope I'm not being a pest. I really appreciate all that I'm learning from you. Maybe, we can help each other here. :)

This article refers to a link between celiac sprue and fructose intolerance. And while so much about gluten intolerance vs celiac disease is still up in the air, I figured it can't hurt to look at this further.

http://www.everydayhealth.com/publicsite/index.aspx?puid=cbd39862-177b-4797-b71a-2594946b0b14&p=1

The Right Diet for Fructose Malabsorption Disorder

In addition, there appears to be overlap between fructose malabsorption and celiac sprue, an inflammatory condition of the small bowel that is treated by avoiding gluten, a component of wheat products. For this reason, adults who are found to have fructose malabsorption disorder should also be tested for celiac sprue.

I noticed very quickly that I couldn't handle corn syrup. Did you know that this is found in Enfamil baby vitamins ?

Marcia

PS For those who are new to this, it gets easier once you get over the learning curve.

MitsyG
10-12-2007, 02:59 AM
Marcia,


Which bread are you referring to that is contaminated, I would like to tell Nancy Kale about it, so she will take it off of her list, because she sends this out quite a bit.

Thanks!
Mitsy

Marciab
10-12-2007, 10:46 AM
Mitsy,

It's the millet bread from Deland Bakery. I checked it again yesterday at my local HFS and the label now says it may contain wheat, etc. The used to only have a sticker on it, so I was glad to see they have changed the actual packaging.

I know it makes it harder, but most of us really have to avoid any foods that are processed in facilities where wheat / gluten is processed too. That includes restaurants and our own kitchens.

Marcia

PS. If you haven't already, I'd suggest taking a look at www.celiac.com. They have a group of parents there who discuss foods that kids like.