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peglem
09-26-2007, 02:59 AM
I had to take Allie to the immunologist by myself today- my other kids were at school and hub had to go pick them up...soooo

Usually when I pick her up at school- she doesn't even notice me in her mad rush (to get pat the elevator?). But today, I stepped in front of her and gave her a hug (she was trying to shove past) and told her calmly that we were going to WALK and be safe. She slowed down a bit, but seemed more excited than scared. So I got her in the van and gave her a snack to eat on the way. She never once tried to kick me in the head the whole way to the doctor. :) She did get agitated whenever we stopped at red lights and I think she was anxious because she was uncertain which doctor we were going to. But she just wammed against the back of the seat- no mommy attacks. She calmed down when I sang the 5 little ducks/cows/dogs/cats/frogs/pigs song. When we got to the office she was calm and walked right in- danced under the ceiling fan even though it wasn't on. She did not dash into the 1st exam room we came to (usually does). Followed the nurse to the proper room and sat down, paging through a magazine while we waited. But the BIG thing: We stop for a McDonalds Sundae after appointments (or the $ store-but its a 2 chaperone place). When we got to McDonalds drive thru, I was informed that their ice cream machine was broken. My first impulse was to scream that they better d*mn well go get some ice cream-NOW! But, I just left w/o getting anything, fully expecting to start getting thoroughly roughed up from the back seat. So, I told Allie we would have to go somewhere else for ice cream. NO FUSS...she was totally ok with it. We ended up stopping by another McDonald's on the way home, she got her sundae and was sooo good! I'm shocked and astounded and so happy! This has got to be because of the antibiotic.

gynwhyver
09-26-2007, 04:51 AM
Congratulations!!!!! I'm so happy for both of you. This sounds like a fantastic day!

Mother's Heart
09-26-2007, 08:30 AM
:D Absolutely fantastic!!! :D

Kristen (ColeysMom)
09-26-2007, 09:27 AM
WOW!!

:D

I just hate when things don't go EXACTLY the way they "should"...cringing the whole time, waiting for the inevidible fit...it's exhausting just being 'prepared' and all!!!

Way to go Allie!!!!!!

The antibiotic? Did you mean the anti-fungal?

milivica
09-26-2007, 10:08 AM
Wow, that is absolutely wonderful!

Don't you just expect a headline someday, "Mother snaps in McDonalds, holds workers hostage until ice cream machine is fixed".

Isn't that like a vacation in Tahiti when it goes smooth like that? So effortless for you, so NOT upsetting for her. Just beautiful.

So happy for you. What a great afternoon all around.

Mili

Kristen (ColeysMom)
09-26-2007, 11:00 AM
OMG Mili!!!

You may have just explained half the bizzare stuff that goes on in this world! LOL!

peglem
09-26-2007, 12:54 PM
WOW!!

:D

I just hate when things don't go EXACTLY the way they "should"...cringing the whole time, waiting for the inevidible fit...it's exhausting just being 'prepared' and all!!!

Way to go Allie!!!!!!

The antibiotic? Did you mean the anti-fungal?

I was really expecting battles the whole trip- that is the norm. So, I'm glad I didn't get what I expected. But, when the payoff sundae didn't materialize I was sure I was in for the beating of a lifetime. I can't help but contrast this to NT parenting. Here I am feeling so wonderful because my kid didn't beat me up when she ordinarily would have.

And, I think its the antibiotic that is helping the most-knocking out the chronic strep seems to be the ticket here, but of course, need the antifungal to counteract consequences of being on antibiotics! Then of course I have to give stuff to counteract the consequences of the antifungal- Its the circle of flora...(sung to the tune of circle of life in the Lion King)

Kristen (ColeysMom)
09-26-2007, 01:38 PM
OMG! When will the antibiotic be done? I don't know why but I thought she was all done already...

RathyKay
09-26-2007, 02:00 PM
Its the circle of flora...(sung to the tune of circle of life in the Lion King)
Thanks. Now I'm going to have that stuck in my head all day.:rolleyes:

So I don't know whether to celebrate that Allie had such a good trip, or cry that you're used to sooo much worse. Did you ever contact any of those research types to see if they figured out a way to break the cycle? I think I read somewhere (a post, as opposed to a published book or research paper) about scraping bacteria / yeast from the intestinal tract of a healthy person and putting it in someone with something like Crohn's and having them healed as a result. I wonder if something like that would help Allie... of course it's probably experimental and I have no idea how you'd look into it.

As long as I'm rambling along... is Allie still on dairy? Have you looked into kefir as another source of probiotics? My understanding is that it promotes a greater variety of good bacteria. (And reading a little more, it talks about good yeast, too.) I know some of the folks on GF/CD forum have experimented with it. We're dairy-free, so I've never bothered. At least one site had info about making it other ways (coconut milk - seizures! and maybe soy milk?), but they didn't sound like they were as beneficial. Here's one site to get you started, if you're interested: http://users.sa.chariot.net.au/~dna/kefirpage.html

peglem
09-26-2007, 02:27 PM
Years ago, we did dairy free with Allie for about a year. Gramma (naughty, naughty) gave her some and it made no difference and when we went back on it completely, no difference. For now, I'm gonna ride this out until something happens that makes us need to tinker. Its been too long since we've had any sort of stability here and I just can't handle any setbacks right now. I'm still holding my breath, hardly able to believe she's not going to crash at any moment...afraid to get hopes up.

Kristen (ColeysMom)
09-26-2007, 02:51 PM
:D I've got everything crossed for her and you!!! :D

Pamster
09-26-2007, 03:25 PM
This is so great! Thanks so much for sharing this with us peglem! I am so happy for you & your family! I hope it lasts. :D

Isabelle
09-26-2007, 10:02 PM
think positive! keep on repeating "it's working, it's working, the antibiotics, the anti fungal, the anti yeast, the probiotics, it's working..."

my! i am so glad for both of you ! :) :) :)