I should not have asked....(long!)

[andromeda31]

how my week could be any worse! Just have to vent as this has been the worst worst week ever that I can remember! (Even worse than being in the hospital over labor day!)
1. Wednesday-Brandon woke up with pinkeye and I took him in to the Dr. and they said he sounded wheezy too (we've all been fighting a bad cold) and could be pneumonia so he was prescribed oral antibiotics to take care of both things at once. No problems there. Later that day I feel more crappy so I went in too...diagnosis=sinus infection! So meds for me too.

2. Thursday-called mailorder place again on our medication bill for Caitlin's trileptal...hubby's insurance requires use of mail order place for long term Rx's... when I set us up in August I said she had MA, chick was like ok. Well I got a $90 bill in the mail! More runaround on the phone and they will talk to supervisor about it (again) and get back to me. Ugh.

3. Friday-now that my voice is back, I call old neurologist that we saw (for the last time) previous friday at which I filled out a form to have her complete medical record sent to me. Hadn't received it yet (and our appt with new neurologist is this monday) so I call. Well the "Dr left his brief case with the charts in it at the Green Bay office" (where we saw him, usually see him in milwaukee) and the other Dr was going to bring it to Milwaukee on Monday (which doesn't help me any). They will send it out to me when they get it. Ugh. Well on this I guess I am just OK with it since then the new neuro can look at Caitlin without any preconceived notions put in her head! But it makes me so glad that I am switching!!!

4. Friday again- called Kobussen (bus company for school) to let them know Caitlin would be back to riding the bus next week to school. Well, they have her as the first pickup and the last dropoff! (7am and 4pm! :mad: ) Grrr. I even try using the brain stuff as an excuse to get better times. But "she is the only kid out in Sherwood ("country") and the rest are in the town of Kaukauna" and it would be inconvenient for them to notify all the parents of time changes. I am too sick still to complain further. But I did ask if she could just ride on the same bus as Brandon and he was open to the idea but that I would have to call the principal or the director of spec ed to have that worked out. Grrr. It doesn't bother me to talk to either of them as I know them both, but all the time this takes is a huge drain on me as I am still trying to get caught up from my week away at the hospital with Caitlin. :mad:

4.5. Friday again!- 2 wks ago at our appt with the physiatrist she noticed a problem with Caitlin's left hip and we have to get a consult (again a trip to milwaukee!) on that and could be possible surgery depending on how they feel it should be addressed (and I haven't even told anyone about this except hubby so I am stewing on this too). Well I got that appt made and the one good thing was they could do it on a day that she doesn't have school (in service or something).

5. Friday night-hubby is gone away for the weekend duck hunting and I am a little crabby and thinking about how I am just mad at the world over all this stuff going on lately and woe is me, I'm sure you all can relate. But I guess it can get worse!

6. Saturday (today)- Brandon didn't eat lunch, took a nap instead and came out around 2:50 with puke on his shirt, we run to his room and he had puked in his sleep so blueberry muffin (brkfst) all over the bed! Of which I didn't yet have the mattress pad on yet (it had been washed but I didn't feel like putting it on cause I still felt sick). Well now I felt sicker!!! I don't know how I will get the pink stain off his mattress. And it doesn't smell too good either. I tried carpet spot cleaner that I have and it did a little but ugh. Meanwhile he was still puking in the puke bucket and continued to puke all afternoon. and into the evening. I gave him his antibiotic at "suppertime" in little sips and it stayed down but after the last shot of it he puked up about 30 min later. Also has a fever of 101. And Caitlin felt warm too and she was 102. Tyler seemed ok. But I just pray that no more vomiting cause after the hospital ordeal I am just so done with that! But now I don't know who will watch the boys on monday if they are still sick for our appt in milwaukee. My sis was going to do it, but she doesn't want her kid to get sick, which I can understand! But I am just sick of dealing with all this crap and wish I could just lay around for a day or two and have someone baby me!!!!! Thanks for reading my vent! Any mattress stain ideas would be most appreciated :D
PS-and the pharmacare place called too today and they are not set up to electronically bill to MA so I will have to submit it on my own...I was too tired to argue anymore so I just said ok.

Lisa O.

[moose53]

((((((Lisa)))))),

Good grief!! I get exhausted just READING about your week :eek:

Have you checked all your closets for this guy http://img.photobucket.com/albums/v90/moose53/MINIS/voodoo-001.gif??

I remember how hard it is when the whole family is sick like that http://img.photobucket.com/albums/v90/moose53/MINIS/huggiebears-mini.gif

You need to do something 'nice' for yourself. Like buy flowers or have some nice tea in a pretty cup. It'll make you feel a little 'human' again.

If I were your neighbor, I cook something for you guys so you'd get a break:
http://img.photobucket.com/albums/v90/moose53/MINIS/teatime2-tiny.gif

Hope everybody gets over all these bugs and viruses and other assorted critters that have been harassing you. Hugs.

Barb

[Tracy Sheppard]

{{{{Lisa}}}}
Honey what a week indeed! Will be praying that this week is much calmer, and that everyone is feeling better, the buses get worked out, the med situation is taken care of and the medical records finally make it to you.
{{{{Hugs}}}

[Carly'sMa]

Lisa,

So sorry everyone is sick. Managing kids, especially those with special needs, is quite a job. You've clearly had a bad week, but it's seems that illness and the fact that other people aren't cooperating doesn't help matters.

I hope everyone is on the mend soon.

[alizesmom]

Lisa, you poor darling. You need to vent. That was indeed a horrible week. I pray that this week everything turns around: everyone healthy, bills get paid with minimal full and doctors communicate good things. Karen

[spondygurl1]

What a terrible week! Just a suggestion on the stain, try the oxy wash spray. I use that stuff on everything(I have 2 cats and they get sick alot and it gets it up everytime. It goes on carpet,blood etc. My daughters BF got into an accident and his clothes looked like a scene from a horror movie but they were his favorite jeans so I sprayed then completely before I washed them and there was not a drop of blood left. She found a T shirt that we forgot to clean a week later and that stuff still got the dried blood out over a week later. I have 3 bottles in the laundry room!!!
Sure hope next week goes better for you!!! and that you feel better!!

[andromeda31]

Hi!

Thanks for all the sympathy, I needed it! :D Today was much better! No puke for one thing, although I stayed up til 2am to ensure that...I knew if I went to bed early someone would probably wake me up with puke so I just stayed up late and kept checking on them. (I really worry most about Caitlin since she sleeps on her back and might swallow/choke on it). But anyway, even better-I heard the garage door open at 3:30pm this afternoon...hubby came home early! :D Yeah! I didn't call and tell him about our nasty day since I figured then he for sure would stay gone til monday! So now he is going to take a vacation day to watch the boys while I am gone with Caitlin so that worked out great. She is still feverish though, 101. Nothing on either end though so hopefully my luck will hold out there!!! I am nervous about our neuro appt tomorrow and am hoping she will let us get Caitlin off those seizure meds. She is just so out of it all the time from them. I tried working on some homework with her today and she just seems so dull, it is the best word to describe it. She was not like that last year when we would do homework (before all the seizure stuff and meds). I know being sick isn't helping either but I just don't know how she will get thru 1st grade like this and we're already a month into classes and she is just going to get more behind. Pray for us that our new neurologist is a good one...I just took the first open appointment down there they had when I made it (they have a lot of different doctors to pick from....she did look nice on the online summary I read). :)

Lisa O.

PS-I will have to pick up some of that oxy stuff, my friend also said she has a plastic cover thing zipped around her boys' mattress then puts the mattress pad on top of that so I am going to shop for one of those too! (someday when I get to a store again!!:rolleyes: )

[RathyKay]

I never did get around to replying yesterday with lots of (((Hugs))). You've definitely had a week (and that was only half a week?!?!). Glad to hear things are better today, and so nice of DH to come home early and help you out. Sometimes those are the BEST surprises.

[andromeda31]

Hi!

My week is improving...although it really could ONLY go up!! Monday we went to the new neurologist appointment. And this sounds so unreal, but it is true...there was a fire alarm while we were sitting in the waiting room waiting to be called!! So I was like do we have to evacuate and then out walks Caitlin's neurosurgeon! Who we were to see for followup next week. Well, I waved and she came over and was like "I usually don't have clinic today, but my schedule was flipped around and since you are here why don't I just see you today and save you a trip." So that worked out great!! What luck!! Her incision is healing nicely and looking well and we don't have to come back for neurosurg until January, our normal yearly check.

I really liked the new neurologist we are seeing, I felt they (nurse & dr) were very thorough and also educated me more than where we went formerly. The only bad, is she wanted to see EEG results before changing meds or anything and we were to set that up within a month. Well when we made the appt, the first available appt was Jan 2! :eek: Caitlin was ready to go at this point (she was scared to be back at the hospital and crying at this point-we had been there 2 hrs by then) so I just took it and we left to get lunch. But I did get put on the waiting list and I plan to try calling this week to see if it can be moved up sooner. I just hate to see this whole school year wasted since she is just so sluggish cognitively on this med. I talked to her teachers today about it since the dr wanted us to observe her for awhile to make sure, so that I can have their input too. She has the same aide & spec ed teacher as last year so they will have a point of reference. And they have noticed a decline. So keep praying for this to get solved, I feel like we are not done yet with this roller coaster. It is very draining.

Lisa O.