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View Full Version : Shunttests. and UCLA dr.


mpsgirl
09-19-2007, 09:31 PM
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I had an LP done today, shunt series and dye study - don't have report from Dr.Dickson on shunt study yet but the LP showed high presure (although lower than when they measure above my c-spine compression, there it is 26. ) Also from the initial pictures on fluoroscopy machine she said dye was not gfoing through the shunt. She is talking to a NSG next week from UCLA who alsoo comes to Harbor campus - Dr.Bergsneider who main resesarch clinic focus is Hydrocephalus and he has experience or maybe it is interst in my case/disease. They meet with him next Tuesday and Dr.Dickson did not think it would be long ater that to get surgery scheduled. In the main time she is going to find out what Charnas (My Neurol) has found out from the NS's he has been talking to. The tilt test done to see if dye would get past my compression to brain seemed to work, it also seemed to get in to my brain so I will know more tomorrow after talking to my Dr. and to Neurologist.

hydromom
09-20-2007, 12:05 AM
Hi

Sorry to admit that I do not much about you, so was the news you got today good?? I'm going to guess no.

Will we be able to meet you during our time in L.A?
Good Luck
Marilou

mpsgirl
09-20-2007, 12:54 AM
Marilou,

When wilkl you be here? I leave on Sat. to go back to WI, but then after my Genetics Study Dr. talks to the NSG on next Tues. she will let me know when surgery is going to be and I will come back - no matter what I will be back here in LA in 4 weeks, maybe sooner though with surgery.
Let me know your dates. Todays news was mixed good and bad I guess.

KathiDG
09-21-2007, 12:34 AM
Doesn't sound like that shunt is going to last much longer....if I remember correctly yours was placed not too long after mine last summer?? I'm praying you'll have better luck with the new shunt set up.....