i'm just hangin on by a thread ...

[blimeyitslymie]

Brief, but necessary dump. I have not been able to find an LLMD yet; PCP is a joke. I have had a headache daily for the last 3 months that Í've lived here and all Lyme symptoms flared. Back to the same routine of not being taken seriously, even with a positive Western Blot from 4 months ago.

So hard to get settled here. Major problems with my autistic son's HS and IEP. Had 3 hour meeting today. The first face to face in three months of my trying to get help from school district. Will probably have to hire an attorney; already hired a special ed advocate, but not enough.

My son is fragile and melting down at home, not school, so they feel that everything is hunky dory. I am exhausted, mentally and physically. I am crying daily. I barely have enough energy to take care of my own needs let alone my special needs son and my 10 y.o. daughter. My husband can't take too much time out from work to help, as it is a new job.

And then, to add insult to injury, my cousin, with whom I am very close, was just diagnosed with stage III colon cancer.

When does the joy come back? It's been so long that I've felt any consistent happiness that I wonder if I'll remember what it feels like. Thank goodness I can still experience a moment of awe with a beautiful sunset, or laugh at something my witty daughter says, but all in all it is a major struggle.

I pray for the grace to handle everything.

B~

[Ginny43]

B-
I'm so sorry. We just got back from a four day trip and I'm really tired. I just finished reading your note and wanted you to know you're in my prayers.
May the angels strengthen the thread. May the Lord send you help. There has to be a lyme knowledgeable person around there somewhere.

I'm praying anyway.

Ginny

[blimeyitslymie]

Thanks, Ginny.

[Sonsie]

Blimey, I'm so sorry you're having so many struggles. I can't imagine how very difficult this is for you. I am sending you strength. I hope the school district comes through. And I hope you can get an appointment with an LLMD.

Can't recall if we've talked about the fact that many Lyme patients have discovered that their children have Asperger's and autism. Have you been able to explore whether this could be a factor in your son's situation? I know several adult Lymies who were able to improve their children's health by attacking their problems as LD.

[blimeyitslymie]

Thanks, Sonsie. I have not had my son evaluated for LD. I can't seem to find any scientific evidence (vs. anecdotal) that Lyme is transmitted in utero. Would you be able to point me in the direction of any?

B~

[Buttons2]

Hang in there Blimey. You've got alot going on right now that is stressful. Prayers for you,your family & your friend. Can your PCP do a phone consult with your old LLMD?

You've got alot of battles to fight right now,please make your own health your #1 priority before YOU have a meltdown!

HUGS,Buttons
And do whatever it takes to get rid of the headache! I can't imagine that for 3 mos! Overstressed? Yes!now what can be done about it?

[tmptmp]

Perhaps not in utero but if it can transfered
via the mother's blood, if there is shared bleeding
during birth this could be a factor.

Has there been any research in this area?








blimeyitslymie wrote:
I can't seem to find any scientific evidence (vs. anecdotal) that Lyme is transmitted in utero. Would you be able to point me in the direction of any?

[blimeyitslymie]

Hey BUttons,

Thanks for your hug. Keep hugging me ... the bad news just keeps on a rolling. I just learned that a dear friend back home (wait, this is home ... I mean where I lived before :( ) died from breast cancer yesterday. She was the kindest, most loving person and I will really miss her. I hadn't talked with her in a couple of months and am saddened to think that I'll never have the chance to talk with her again, nor feel the warmth of her sunshine.

TMP - how would blood be exchanged during birth? Like a transfusion or something? Or during a section? I had a typical delivery, although my son was premature by 6 weeks and coded in the delivery room after APGAR was done. He was resuscitated by CPR and didn't need intubation.

Be well friends, and don't forget to stop and smell the roses (make sure you're wearing your deet, though:eek: .

[Sonsie]

I can't seem to find any scientific evidence (vs. anecdotal) that Lyme is transmitted in utero. Would you be able to point me in the direction of any?
Human studies haven't been done. They can't ethically do it. Gee, I wonder why. :rolleyes: There is at least one canine study that discovered transmission.

(Rant: Will they make up their minds? Lyme is too dangerous to be transmitted in a test, but it's way too minor to believe us when we ask for treatment? :mad: )

But, in utero is not the only way children of Lymies can be infected. Nursing can do it (spirochetes have been found in breast milk). Lifestyle can do it. We often hike, camp, rake leaves, hunt, sit outside, and gather firewood as a family, and the ticks feast. Not every family member will be affected at the same time and in the same way even if bitten at the same time. It depends on various factors like age and immune system condition. So a mom and a child could be exposed on the same day. Child's journey ends up like your son's. Mom's like yours.

[Buttons2]

Blimey, I'm so sorry for the loss of your friend.HUGS<HUGS<HUGS

I did some research yesterday about Lyme passed in utero. I found alot of instances (stories) but no scientific evidence. I ended up learning more about autism & mercury however!

Here's a link to some good info,with scientific evidence (this has nothing to do with Lyme however). It's a very long read but I think you will find it worthwhile: http://www.talkinternational.com/haley-congress.html

You do so much here sharing your links,I figured the least I could do was try to help you someway.

I went to Yahoo search & just typed in Lyme disease passed in utero. You WILL find doctor's statements & published stories. But alas,no proof!

Now I'm also curious how many women have had miscarriages since getting infected? How many had premature babies?

Be good to yourself blimey,you need a break! Cry for your friend,let the tears flow & release some of this pent up anger cause any woman who dies of breast cancer is such a sad loss. Don't beat yourself up for one single second for not talking to her recently. You've had far too much on your own plate these past few months.

How about you plant a rose in her memory?
Buttons

[Buttons2]

I just found out someone in Maine passed the Lyme to her latest baby,I'd tried to warn her! We gotta get the word out. This gal uses the Bruhner protocol. I've never met her,she's just someone my lifetime friend knows. Apparently she got diagnosed when her DOG got Lyme! Seems we've heard of this before eh?

[blimeyitslymie]

. Nursing can do it (spirochetes have been found in breast milk).

Well, I breast fed ... from what we can pin together I was infected in 1991
(no rash) just horrible flu-like symptoms and aseptic meningtitis, and my son was born in 1993 and my daughter 1997, so I carried and nursed two children with the illness.

My son developed typically until about two, and then started regressing. My daughter has always been neuro-typical.

Anyway,thanks for the information!

[blimeyitslymie]

I ended up learning more about autism & mercury however! Buttons

Buttons, thanks for your hugs and supportive thoughts. Isn't cyberspace wonderful. I feel like I know many of you so well, and get such tremendous support, from people I've never met.

I haven't had a chance to read everything. But will soon and appreciate your looking it up for me. My sharing information brings me some comfort that at least I can inform others in the same dilemma as I.

I am not convinced on the mercury and autism connection. There seem to be two camps regarding this disorder as well as llyme.

Thanks for the rose idea. I like it!

G'nite all.

B~

[Sonsie]

I can't seem to find any scientific evidence (vs. anecdotal) that Lyme is transmitted in utero.
Yesterday I had lunch with a friend who is a Lyme mom (her child got Lyme from tick bite). I mentioned the issue of in utero transmission, and she told me that it has been documented. Someone studied umbilical cord blood of known Lyme moms after birth, and spirochetes were found. She could not come up with a citation (we were at lunch, not online) but she said that a good place to start learning about women's issues is studies out of UC Davis. A professor there did numerous studies, including the one of cord blood. I imagine a search would unearth information.

Sorry that I posted incorrect information in my response to you the other day! :(

By the way, the newborns in the above situations were then treated, and they are OK. :)