rumpled
10-19-2006, 11:44 PM
Potentially... it looks like my pit lesion is getting out of control. My ACTH is getting high (all over 1000) and that is an indication of Nelson's syndrome. Has anyone here had radiation such as a gamma knife, photon knife or cyberknife and know the pros and cons, and the side effects?
I have run into someone before who had gamma for a prolactinoma and she has residual memory issues. I worry this and about the tissue that is "in the way" of the ray...
I had a transphenoidal craniotomy (sp) before through the nose... but due to my Cushing's, I never healed well. When the ACTH hyperplasia grew back, I was declared inoperable due to the scar tissue and how badly I had healed... so I don't know what options I am going to have now.
I looked but there is no section for radiation... or am I losing it already? So sorry if I posted in the wrong place. I have been posting in endocrine but not sure anyone there will know about radiation as this could apply to many types of tumors. Thank you.
I have run into someone before who had gamma for a prolactinoma and she has residual memory issues. I worry this and about the tissue that is "in the way" of the ray...
I had a transphenoidal craniotomy (sp) before through the nose... but due to my Cushing's, I never healed well. When the ACTH hyperplasia grew back, I was declared inoperable due to the scar tissue and how badly I had healed... so I don't know what options I am going to have now.
I looked but there is no section for radiation... or am I losing it already? So sorry if I posted in the wrong place. I have been posting in endocrine but not sure anyone there will know about radiation as this could apply to many types of tumors. Thank you.