more questions...no more ataxia???

[terric]

Hi all,

I am completely confused and so is my neurologist. ( I only recently started with a neuro. as my symptoms have never been severe.) I've been asking questions here alot and hope to get input re: I have had ataxia for about 20 years. It is gone without any treatment. I've had the MRI which shows demylination, but I'm not having the L.P. until the 26th so the neuro doesn't want to start meds 'til she gets the L.P. results. The only thing she did give me was a prescription for cerafolin (a very expensive form of folate.) Is there any explanation for this ataxia improvement besides Munchhausen's LOL? The other weird thing is that my legs have now become shaky.

I looked on the leucodystrophy board and asked alot of questions there also.

terric

[lady_express_44]

I'm going to post a link because there may be people who aren't familiar with the term "ataxia":

http://www.mult-sclerosis.org/ataxia.html

That link describes other conditions that may cause this symptom.

I'm not sure why the treatment you are using might help with this condition, but it's good to know! Thanks.

Even without a confirmed dx, we are often prescribed symptom management drugs. I'm not sure why they are holding off on giving you them, as most of the drugs that we use for MS are not MS-specific anyway. :confused: The CRABs are not prescribed to help our symptoms, they are for disease management . . . but she could provide you with other medications.

Cherie

[terric]

To lady express,

Thanks for answering. After I wrote the post I thought people might think that I was just goofing around as using LOL re: M.S. is not a good idea. However I do know what ataxia means as I am an R,N. and also because the Neuro first thought I had Friedreich's ataxi. That was the scariest thing I ever heard. Anyway, I guess I just have to wait for the L.P. rather than drive myself crazy. terrics

[lady_express_44]

To lady express,

Thanks for answering. After I wrote the post I thought people might think that I was just goofing around as using LOL re: M.S. is not a good idea. However I do know what ataxia means as I am an R,N. and also because the Neuro first thought I had Friedreich's ataxi. That was the scariest thing I ever heard. Anyway, I guess I just have to wait for the L.P. rather than drive myself crazy. terrics

A lot of us have found a way to have a sense of humor about much of what we go through . . . it's too depressing otherwise. :p

I don't know if it is better or worse to understand what the symptoms actually are, but I suppose it could make you a more compassionate RN. ;) I had sensory ataxia for a long time, and it took me several years (and postings) before I finally figured out what it was. It was cheap entertainment for me to try to guess where my arms were laying while I laid there with insomnia though. :D

Cherie