View Full Version : Alzheimer's Disease Chat Room?
Chat Moderator #1
08-28-2007, 07:08 PM
Hi everyone. I heard that Jo6 has been in the FlashChat and wanting a permanent Alzheimer's Chat room.
The ruling is that if you get 10 people to sign up on this forum stating that you will use the chat room, I will be glad to make a permanent Alzheimer's Disease Chat Room on FlashChat for you.
I will keep looking back here to see how many have posted and/or someone can email me at vbchatmod1@gmail.com
As soon as you have 10 people sign up, please let me know.
Sincerely,
CM #1
FlashChat
I did post this in Flash chat. It could be a help to many of us and maybe to even more that haven't posted.
What does everybody think? I will start out first
1. I would very much like to have a private chat.
laurissa
04-30-2009, 06:35 AM
I think this is a great ideah.we need a place to chat.
tic chick
04-30-2009, 05:34 PM
yes, i would use an alzheimer's chat, also.
thanks Jeannie for bringing this back up. I'm sure we have the 10 # now, ya think? Chat Mod #1 said if we could get 10 people interested they could start on without much trouble. What say ye? Jo
Sorry Mod # 1, I meant to ask you first. Hopefully the option is still open. *boogie
I sent Chat Moderator #1 an email. I haven't recieved anything back from her/him. Maybe others could write the Moderator and see if we have any options. Who knows, It may help. I think it would be used and I would welcome it.
Jo
Chat Moderator #1
05-08-2009, 02:48 AM
Hi, great to see new posts on here. I was surprised when I saw it.
I will admit I am a bit upset with the state of BT's chat rooms. It has been a year since we have had properly operating chat rooms. :(
I have tried and tried and I cannot get into BT's FlashChat at all. All I get is a blue screen.
But we did have an Alzheimer's Chat Room, Jo6 posted on forum and got over 10 and I made the chat room. It should still be there if you are able to get to chats.
Mike's chat is only one room. But if you get enough people in his chat, you can make your own temporary chat room.
At the top right, where is has "Add", click on that and a box shows up and you put your room name in it.
With the temporary rooms, it will shut down when the last person leaves the room.
But the next day if you want to chat again, just make another room.
I am sorry I haven't been around, but not feeling too great.
I hope you can get together to chat, I will try to stop in to see how things are going. If I can get in on BT. :confused:
If you should be chatting and having any problems, you can send me an email at vbchatmod1@gmail.com. Or contact Moderator #5 or Mod #2.
Good Luck,
CM #1
I want to tell you how I appreciate the help you have given us. I know you have had your hands tied behind your back, so to speak:D
I am also sorry you aren't well. I hope things will be going better for you. Just you take it easy and we'll get there sooner or later, but we hope sooner;)
Thank you, Jo *hug
How do I get to Flash Chat?
Hey, we've missed you.:) Jan, The FlashChat on this forum still isn't working. Mike set one up from his server. I couldn't get in there tonight. I'll keep trying to see whats going on. Jeannie may know.
It seems we are Chat-less at the moment. As soon as one is working I'll let others know unless someone else post it first.
How is hubby? Also how are You getting along? Write a note and let us know how you 2 are doing if you don't mind. We all think of you. Take care, Jo
We are doing OK. It seems everything I say or anything I don't say is wrong, and anything I do or everything I don't do isn't the right thing to do. I have noticed that he has taken to walking around the yard. We both have bracelets just in case. And he has a hard time walking any distance, he use to walk the dog and now he doesn't. I still go to the Ladies' Salad suppers and work my shift at the hospital gift shop (I volunteer) and take the dog for his walks. I stop at friend's to chat during these walks. If I have to, I go in the other room toget away andeither watch TV or play on the computer.
I watched a show last night called The Alzhiemer Report. None of the victims were like Hank......all seemed docile. Go figger, eh?
You are going through hell, I just know. I had always heard if the person was a real nasty person all thier life, changed and was totally differant, kind caring and all that.
Well, MIL had always been such a sweet person, used her whole life doing and helping others. When she was progressing with the disease she was very vocal, got down right mean at times, the physical things started and I do mean she was way bad. She fought the Whole staff. Someone so ill I will never figure out where they got thier strength.
She beat the _hit out of me, those were part of the reasons I couldn't care for her 24/7's. There were other factors but I could not man-handle her. I feel your pain, is the only thing I can do. nobody understands unless they have been in there with it 24/7's.
It also makes ME ANGRY and I know they can't help it, most of it is the disease. Please come back around when you feel up to it. I appreciate your coming by and joined us for awhile, I understood when you said you would go starke raving mad if you dwelled on this everyday and night,
Ms.J, thank you for sharing. We all need that. take care, Jo
i had signed the 1st time. have to add that i never have used one.
but with any luck would still be willing to try at least.
i hate for us to lose anything else here.
Me too Joy, me too.((Joy)) Sometimes a few in one room just talking helps a heap. It isn't hard Joy, some what like the forum, but it is in real time. No long post from books, an URL would do just fine for that. The Forum will continue on here and be as active as we want it to be.
You know how "southern bell" reaches out to touch someone? kind of like that *boogie
well i'll never learn any earlier. time is right to try now isn't it, when you reallu want to still.
i am beginning to realise that i have sorta waited to stop "mourning" until after the older woman died that was hurt the same night as mother. well that doesn't make any sense but then again, what does these days?
it is awful when you do as much as you can and then the doubting starts nagging away at your brain and won't let go.
it helps trremendously to have others that have been there themself to step in at times and i can see that today. now in the morning especially if there is not much sleep, who knows.
that's the way it goes for me these days it seems.
but i do feel a bit better most days. it's just beem 5 years after all. :o
it is awful when you do as much as you can and then the doubting starts nagging away at your brain and won't let go.
.
This past Feb 4th my 51 year old brother shot himself. I was 20-25 feet away yelling at him not to do it. I saw his angish and self-loath before it happened. He had did something he could not forgive himself for. Nothing I said would stop him. I did the best I could. I am sure that YOU did the best you could in your situation. I know this was the way his life was suppose to be, I feel no guilt. because I have none. Let it go, seek a higher power. God bless you.
i have but it still is awfully hard when you lose a really good mother, you knopw. she would have done anything for her kids and was a helper of anyone in neighborhood. not like many who you hear about these days.
but that is excellent advice. and i am so glad you have gotten above it yourself. that wasn't easy i am sure.
but even a beliver i had trouble i think bcaue of being home alone so much didn't help. i had to give up a lot before she died and things are still progressing. but it's time to enjoy something while i still may have some time.
good to see you posting here. please continue. it is always good to have a positive input. and a clear one at that.
Bless you dear. I am so sorry you had to see your brother go in that manner. Yes, you did all you could, I'm glad you feel no guilt because you had none.
I must say you have a beautiful attitude Jan and I see you have a very strong faith to help you thru. I know not what to say except you are a very strong lady.
I pray your husband will be there for you as long as possible. My prayers are with you Jan. Take care, *hug
my bonnie bleu eyes, you sound a little better. Are you better my dear? I see such go things you have posted, in many places. It warms the heart.:)
Do you know how to get into Mike's temp. Chat? When we are both on at the same time we'll go to the CHAT. It isn't hard If I can do it, anybody can and that's the truth.
I'll check in awhile. take care, Jo
dear Jan, I've had you on my mind since last week. I do hope you are able to continue the same things that gives you a bit of respite.
I pray hubby will do what he needs to do for the both of you. You take care of yourself. that must come first, but you seem to have a good handle on that. When you are up to it please join us again. My thoughts and prayers are with you.
My love, Jo
Jan, I've been checking everyday to see if I can get into the tempt. Chat that Mike has set up for us on his sight. I don't know why, but I can't seem to get in there. Yesterday I got as far as logging in, but when I pressed the login it stayed that way, just blue screen.
I'm very disappointed to not have something by now. I feel it is needed, especially at certain times. The Forum here will still be the same. No reason we can't have both:).
Chat Mod # 1 has been such a help and I think probably Chat Mod.2 & 3 have also been trying to get something done. We will keep our fingers crossed. lol
you take care, my luv, Jo
This past Tuesday my sister-in-law's mom (86) fell down 13 stairs. At the local ER they discovered she hat two fractures in her neck. She was air-lifted to Lubbock. C1 & 2 I went with her Tuesday & Wednesday. it is 120 miles one way. Today she found out that her mom also has some fractures in the T spine. The mom has full use of her arms and legs. I went to Midland Thursday night with my S-I-L to the airport, because Nancy's sister flew in. Now Nancy will have her sister to go with her. Hank had to stay here and he did very well. Of course, he wasn't happy about me being gone, he was fine on his own for that time. Nancy was married to the brother who recently shot himself. She NEEDED me more than Hank did.
Dear one, you have had your hands full and then some lately. I'm sorry about your friends mother. That was awful to say the least. I'm sure you know you were doing what needed to do most.
Your hubby seems to kinda know his limitaions ot at least does a good job of hiding it. I'm glad you had a safe trip there and back home. Please try to take care of you, you are not well either. I don't think there is even 1 caregiver here at Brain Talk that don't have problems health was.
We caregivers need to care for our selves, if not who would take care of the LO after we are gone? So first at least, and I speak to Jeannie and you both, take care of yourself. I'm afraid some is gonna trip K up and he will go to pieces. I pray not.
I love you all, Julia
The doctor Hank goes to has said the very same thing about his ablity to cope with his ALZ. If you didn't know and spent a little yime with his you couldn't tell either. The people at church are seeing it now. I think that they are now realizing some of his remarks to my are uncalled for and are not "normal" (for lack of a better word)
The morning after the Midland trip, he was glad I went with my Sister-in-law. Go figger, eh?
I think I know kind of where you are at times. Of course none of us can know anything for sure with this horrible disease. When we moved MIL you would not know she was ill most of the time.
Only people that had been there, it was a strange situation. We saw my sis and BIL one night at the Mall. MIL was with us, she told me she thought she knew the couple. I turned around and saw my BIL & Sis. It had been a very long time since she had seem them.
My BIL looked at me, then looked at MIL, he sort of wispered this, but he asked me if she had Alzheimer's. While sis was talking to MIL, she walked off and None of us saw her leave. You can imagine, stressout!!
After we found her I kelp hold of her. The reason BIL reconized her Alz. his Mom had it and had passed away about a year earlier. I asked him later what clued him in to her illness. He said it was something about her eyes and face.
Jan, it will become more evident with time. Sometimes fast, sometimes slow. They DO have a way of acting normal for a time, back and forth.
I hope you are still taking that time for yourself. My heart aches for all of your family. Such tragedy has seemed to take it's toll on all of you, especially you.
I'm sure others have invited you to come to the Emotional Support Forum. I wish to invite you too. It has been a great help to me especially the last month.
Take care dear, Julia
I have looked for the Emotional Support Forum, but I don't find it The list goes from an Education & School Issues to Featured Websites. Am I not in the right spot to find it. I was at Brain Talk Communities General listings.
I haven't been online fir a couple of days...............would you believe I worn out my DSL modem? I got a new one today. I was proud od myself, I didn't get the DTs being without it!
And YES, I make sure I get some time, even if it in the other room to watch TV, the shows I like.
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