Chatting Again

[Spikey]

Hi Everyone,

I havent been chatting for a week or two I have been busy with my college work, but im back now. If you are wondering who I am I am the one also suffering from Chronic Pain.

The reason for my pain is a middle ear adenoma and atpresent none of my consultants quite know what to do about it. The adenoma is growing and unfortunatly for me as it grows my pain increases. Also because it is growing there is talk that it is going to have to be removed.

If it is removed my facial nerve will have to be removed also leaving me with right sided facial paralysis. I have spoken recentlyto my consultants and they have sad that removing it would not neccessaraly reduce my pain, it could infact make it worse.

The consultants have introduced some new pain killers tramadol on top of the other I take but they are not really helping me much at the moment. I am due to see them again and also I am due to see a new neurologist so hopefully someone will be able to help me.

I will keep you all informed on my progress.

Hang on in there

Spikey *fantasia

[BrokenBladder]

Spikey I'm glad you're working through the college even with your pain.
I would make sure to see several specialists in this field before you make a decision about surgery as facial paralysis is a biggie. My question would be, if they don't remove it and it continues to grow what kind of complications would you have from that?
I took Tramodol once a long time ago and it didn't touch my pain, but always remember that we're all different.
i hope you have a nice weekend and as pain free as possible.

[Spikey]

Hi Lisa,

The consultat has said that if they leave my tumour to grow and they dont operate it will press against my brain and there also is a high chance of it turning malignent if it continues to grow so I am completely stumped.

Thanks for chatting

Spikey *fantasia

[suede]

Hi Spikey,
Just posted to you on another thread.
I have to say that nerve pain is the hardest pain to treat, I have several different things wrong with me but treating the nerve pain is the hardest by far.
I'm sorry you are having to deal with all this and know that there are many of us here for you.
I'm looking forward to seeing more of your post.
Linda

[Mark N]

Spikey, sorry to hear they haven't given you better options yet. I hope the new NS will have good news for the removal of your growth in a way that won't damage your facial nerve. Come and chat any time you need to talk to another CP sufferer, just to chat, or to let off some steam when things get to be overwhelming.

[Jo6]

WELCOME SPIKEY :) I do hope they will find something that will help. Sounds like you have a plate and 1/2 full. I'll keep warm thoughts and kindness coming your way.

I'm glad you came by and hope you will stay and keep us up on how you are.
take care, Julia *cg14

[Spikey]

Hi Jo6,

Thanks for the warm welcome I will keep you informed about my illness and what happens, Im at the hospital on Tuesday for an appointment witha new neurologist to try and control my pain for me (it would be nice). I will let you know what happens.

Happy Chatting,

Spikey *fantasia

[Spikey]

Hi Mark,

Thanks very much you are really kind. I see a new neurologist on Tuesday to try and come up with some way to help control my pain. I will let you Know what happens, if anything. They have said that if this neurologist cannot do anything then they will have tried every avenue and I will have to deal with it. Having said that in August im going to a pain management programme at the hospital to try and help me to learn the best way to deal with the pain but im not sure it will help but at the moment I will try anything.

Hope your feeling ok

Happy Chatting

Spikey *fantasia

[Spikey]

Hi Linda,

Thanks for your kind words. It is nice to talk with people who understand what it is like to be in pain all day every day.(Im not pleased there are people like it as it is cruel). But I have to say talking to people who understand really does help and also it makes me think that im not on my own.

Hope your pains not to bad.

Happy Chatting

Spikey *fantasia