LeslieRN
07-24-2007, 01:08 PM
Hi everyone,
I have been posting on the spinal , rsd and fibromyalgia forums but this pain is just unberable.
I was daignosed with RSD in 2003 or 2004. the area involved is my l shoulder where I had surgery for a torn rotator cuff. For years the pain has been controled with medication and stellate ganglion blocks.
I was also dx with fibromyalgia in 2001. This comes and goes and when I am having a flare - nothing seems to help and there are no blocks that can treat fibro- can't be since the pain is so widespread.
In June I was hit with terrible pain, burning pain in my left upper arm and going to my fingers and up to my left temple. It was typical of RSD pain that meant the rsd was spreading. I spent days in terrible pain the pain would start in the upper arm and it felt like scalding hot water going down my arm and then up to my temple- the pain would stay there sometimes for 30 minutes or longer. The pain would stop but then my hand and the side of my face would be numb.
I was in the middle of getting blocks I had one stellate ganglion and there was no relief and then for my cervical spine for the pain- which did not help at all. The fact that the stellate did not work was difficult since in the past they did work.
So I am having this burning pain many time a day, then the fibro goes into a flare and I am hurting from shoulder to shoulder and across my chest and down my back.
My pain mgmt doc is out of town so I was desperate. We got a neighborhood magazine with the information on the new hospital and all the doctors there.
There was a rheumatologist. I called and gtot an appointment the next day. The doc did a complete exam. He then told us his findings.
My RSD is actually in remission and the terrible burning pain and other pain is all fibro. I wasn't aware that fibro could hurt so much-but then again there is a new commercial on the tv about fibro and the people talk about how bad the pain is. He tells me that and I also have chronic pain syndrome.
He did labs and sent me for a bone scan to r/o osteoporosis. He then gave me a an RX for cymbalta. It seemed to work the first couple days but noW the pain is back????????????? But after a week taking it at night, I am supposed to increase it to twice a day.
I am sitting here with the burning in my arm and terrible jolt of extra pain every minute or two- this is too much pain.
have to stop= more very "hot" burning pain now-am typing with one hsnd.
thanks for listening
LESLIE
I have been posting on the spinal , rsd and fibromyalgia forums but this pain is just unberable.
I was daignosed with RSD in 2003 or 2004. the area involved is my l shoulder where I had surgery for a torn rotator cuff. For years the pain has been controled with medication and stellate ganglion blocks.
I was also dx with fibromyalgia in 2001. This comes and goes and when I am having a flare - nothing seems to help and there are no blocks that can treat fibro- can't be since the pain is so widespread.
In June I was hit with terrible pain, burning pain in my left upper arm and going to my fingers and up to my left temple. It was typical of RSD pain that meant the rsd was spreading. I spent days in terrible pain the pain would start in the upper arm and it felt like scalding hot water going down my arm and then up to my temple- the pain would stay there sometimes for 30 minutes or longer. The pain would stop but then my hand and the side of my face would be numb.
I was in the middle of getting blocks I had one stellate ganglion and there was no relief and then for my cervical spine for the pain- which did not help at all. The fact that the stellate did not work was difficult since in the past they did work.
So I am having this burning pain many time a day, then the fibro goes into a flare and I am hurting from shoulder to shoulder and across my chest and down my back.
My pain mgmt doc is out of town so I was desperate. We got a neighborhood magazine with the information on the new hospital and all the doctors there.
There was a rheumatologist. I called and gtot an appointment the next day. The doc did a complete exam. He then told us his findings.
My RSD is actually in remission and the terrible burning pain and other pain is all fibro. I wasn't aware that fibro could hurt so much-but then again there is a new commercial on the tv about fibro and the people talk about how bad the pain is. He tells me that and I also have chronic pain syndrome.
He did labs and sent me for a bone scan to r/o osteoporosis. He then gave me a an RX for cymbalta. It seemed to work the first couple days but noW the pain is back????????????? But after a week taking it at night, I am supposed to increase it to twice a day.
I am sitting here with the burning in my arm and terrible jolt of extra pain every minute or two- this is too much pain.
have to stop= more very "hot" burning pain now-am typing with one hsnd.
thanks for listening
LESLIE