Mom2Ava
07-12-2007, 04:52 PM
Hi all. I am usually over at CN, but have been here a couple of times.
I have a 3 y/o with left hemi from stroke, epilepsy, & EDS likely w/ possible chiari.
From about 11 months or so she would do things that to me resembled autism. Rock viorously back and forth while flapping her hands ... or looking at objects in a strange manner and sometimes head banging. I was told it was normal and she would outgrown it.
Now at three she is doing these things more than ever. She does thiese things when she is excited, anxious or when you ask her to do something. I know any one of these things alone doesn't mean much, but she does so many of these quirky things. Here is a list of some of the things she does:
Flaps her hands which recently has changed into shaking her hands wih her palms up, she rocks from side to side several times a day, odd finger, hand and sometimes entire body posturing, sniffs everthing ... especially when someone touches her, has days where she has a hard time in which she will perseverate or become pretty obsessive, lately has been having touble with pronouns ( reversing) ...when she first started learning to talk, she seemed to have an easier time with language than now, with a certain puzzle she has, she rubs certain pieces on her chest before putting them into place.
She is very social, but sometimes very inapprpriately social, almost seems socially unaware or something. She will get right in another childs face and when the other child has asks her to back off ( directly or indirectly) she just doesn't get it. Even if a child pushes her, she doesn't seem to get it. She is waaayy too social with strange men ( I mean men that are strangers). We were at a park and there was a man juggling, again gets right up in his face and starts chatting, I mean inches away.
For the most part has good speech and language skills, but struggles in certain areas. Has a huge vocab and has always scored ahead in certain areas of speech, but MLU was always behind and eventually she was DXed w/ expressive language delay. Speech is better these days, but requires lots of consistent prompting.
I have been doing an ABAish type home program since she was a year old or so ( mostly for motor issues, and later issues related to her epilepsy ... this was something our NP recommends for kids with epilepsy and learning issues) If I go more than a few days w/o working with her, she really begins to unravel.
Anyway, Monday we saw our NP again. I brought up some of these issues, she did say one might think of autsim when they hear these things but does not think my dd has autism. She thinks she is too social. She thinks all of these issues are SI related and suggests more SIT ( I already do so much of that). She thinks most of the above issues are related to where her brain is injured. Now, I have heard from many other parents of kids that have suffered stroke that their kids also had a DX of autism, and I have also worked with children and adults that have had both DXes.
So what do you all think? Does it sound like autism? Should I do anything more or just leave it alone?
Thanks,
Jen
I have a 3 y/o with left hemi from stroke, epilepsy, & EDS likely w/ possible chiari.
From about 11 months or so she would do things that to me resembled autism. Rock viorously back and forth while flapping her hands ... or looking at objects in a strange manner and sometimes head banging. I was told it was normal and she would outgrown it.
Now at three she is doing these things more than ever. She does thiese things when she is excited, anxious or when you ask her to do something. I know any one of these things alone doesn't mean much, but she does so many of these quirky things. Here is a list of some of the things she does:
Flaps her hands which recently has changed into shaking her hands wih her palms up, she rocks from side to side several times a day, odd finger, hand and sometimes entire body posturing, sniffs everthing ... especially when someone touches her, has days where she has a hard time in which she will perseverate or become pretty obsessive, lately has been having touble with pronouns ( reversing) ...when she first started learning to talk, she seemed to have an easier time with language than now, with a certain puzzle she has, she rubs certain pieces on her chest before putting them into place.
She is very social, but sometimes very inapprpriately social, almost seems socially unaware or something. She will get right in another childs face and when the other child has asks her to back off ( directly or indirectly) she just doesn't get it. Even if a child pushes her, she doesn't seem to get it. She is waaayy too social with strange men ( I mean men that are strangers). We were at a park and there was a man juggling, again gets right up in his face and starts chatting, I mean inches away.
For the most part has good speech and language skills, but struggles in certain areas. Has a huge vocab and has always scored ahead in certain areas of speech, but MLU was always behind and eventually she was DXed w/ expressive language delay. Speech is better these days, but requires lots of consistent prompting.
I have been doing an ABAish type home program since she was a year old or so ( mostly for motor issues, and later issues related to her epilepsy ... this was something our NP recommends for kids with epilepsy and learning issues) If I go more than a few days w/o working with her, she really begins to unravel.
Anyway, Monday we saw our NP again. I brought up some of these issues, she did say one might think of autsim when they hear these things but does not think my dd has autism. She thinks she is too social. She thinks all of these issues are SI related and suggests more SIT ( I already do so much of that). She thinks most of the above issues are related to where her brain is injured. Now, I have heard from many other parents of kids that have suffered stroke that their kids also had a DX of autism, and I have also worked with children and adults that have had both DXes.
So what do you all think? Does it sound like autism? Should I do anything more or just leave it alone?
Thanks,
Jen