Useful Websites

[David Hosobuchi]

Use this thread for posting other websites relevent to this forum....:)

[Austinsmom]

www.hydroassoc.org


http://www.nldline.com/
http://www.nldontheweb.org/about_nld.htm


http://www.fleshandbones.com/readingroom/pdf/463.pdf

I have tons but no time here are some good ones
Deborah

[Austinsmom]

I just found these sites Austin has been put on Senimet and it has really helped interesting site connected to Hydrocephalus and repeated shut revisionsThese sites say…..
avoid unnecessary shunt revisions, in obstructive hydrocephalus
Aqueductal stenosis. should be added to the ever increasing list of repeated shunt revisions and causes of secondary Parkinson’s
Shunt failure with episodes of akinetic mutism should be check out with dopamine…

Interesting

http://jnnp.bmjjournals.com/cgi/content/full/64/5/657

http://jnnp.bmjjournals.com/cgi/reprint/64/5/657.pdf

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=retrieve&db=pubmed&list_uids=3266554&dopt=Abstract

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=retrieve&db=pubmed&list_uids=3876872&dopt=Abstract



Info on shunt failure
http://72.14.253.104/search?q=cache:H7J0yYYRt4QJ:www.spinabifidafamilys upport.com/hydroheadache.htm+intermittent+shunt+failure&hl=en&gl=us&ct=clnk&cd=24

http://www.springerlink.com/content/r131084704170627/

[Austinsmom]

Intracranial Pressure.. things you should know...

http://en.wikipedia.org/wiki/Intracranial_pressure

[Penny W.]

Hydrocephalus Support Association Inc.

www.hydrocephalus.org.au/

[CathyE]

another support assoc. similar to the Hydro Assoc.

http://www.nhfonline.org/aboutus.php?id=board

Debbi Fields the "Director" has been helping me for years especially when I am feeling panicky (due to bad days & NS not convinced I need anything done:(

[mysticwoman]

I'm going to include theese on my web site and eventualy come back to post the ones not mentioned that I have on my site here.

[Austinsmom]

http://209.85.165.104/search?q=cache:5Rj9Iv0_xbkJ:www.thejns-net.org/jns/issues/v95n1/full/n0950145_r.html+Spitz-Holter+valve&hl=en&ct=clnk&cd=8&gl=us

Spitz-Holter+valve

[Braindrain]

http://tinyurl.com/by4dt

Support for people who have hydrocephalus and associated conditions (and their families and friends).

This is a website that I created a few years ago. The format is similar to BT,
so it should be familiar to members here. When you join, you need to check
your mailbox for the message that lets you activate your account on the
board. It should go in your inbox, but check your Junk Mail, too.

When you join, please post and introduce yourself to other members.:)
It's a great way to get to know members and get a discussion started.;)

I'm known as "Ravensmom" on the site, but my signature is the same as
the one I use here...without the board link, of course.:D

[CathyE]

Hyceph-l is a Listserver Hydro.Support Group
which means members' emails are collected there then sent to each member.
I find it is a nice compliment to Braintalk Forums!

The website that shows how to join is
http://www.geocities.com/HotSprings/Villa/2020/listserv.html.The person must do the following:

To subscribe, send an e-mail message to
listserv@lists.missouri.edu
In the body of the message type:
subscribe HYCEPH-L Yourfirstname Yourlastname

You have a choice or receiving each email as it is processed (NODIGEST) or in one big email after midnight (DIGEST).
*The default is NODIGEST (each email individually)


You send your new emails or replies to:
HYCEPH-L@PO.MISSOURI.EDU

To change your options send an email to the Listserver,NOT Hyceph-L:
LISTSERV@PO.MISSOURI.EDU
(capitals not necessary)
for example:
set Hyceph-l digest
or back to normal:
set Hyceph-l nodigest

or to temporarily stop receiving mail:
set Hyceph-l nomail
or back to receiving mail:
set Hyceph-l mail

[Austinsmom]

ventriculoperitoneal VP shunt
Complicatiocomplications

http://uscneurosurgery.com/infonet/surgery/understand/risks/procedure/VP%20shunt.htm#neck%20hematoma


VP shunt insertion
Ventriculoperitoneal (VP) shunt insertion
http://uscneurosurgery.com/infonet/surgery/procedures/VP_shunt.htm#incision

[Austinsmom]

Obstructive hydrocephalus-induced parkinsonism
Basil ganglia in hydrocephalus

http://jnnp.bmj.com/cgi/content/abstract/75/11/1617

http://www.cerebrospinalfluidresearch.com/content/3/1/11

http://www.informaworld.com/smpp/content~content=a713802065~db=all

http://www.sciencedirect.com/science?_ob=ArticleURL&_udi=B6WHP-4JHMRVW-3&_user=10&_coverDate=04%2F30%2F2006&_rdoc=1&_fmt=&_orig=search&_sort=d&view=c&_acct=C000050221&_version=1&_urlVersion=0&_userid=10&md5=4cdd25702e5792e0804931a06fad4895

http://www.unboundmedicine.com/medline/ebm/record/3266554/abstract/Obstructive_hydrocephalus_induced_parkinsonism_I:_ Decreased_basal_ganglia_regional_blood_flow


http://www.cerebrospinalfluidresearch.com/

[Austinsmom]

these are for detailed brain surgeries, not for most but for some complacated Hydro cases and other brain surgeries
Austins Fenestration was done image guided
hope this helps some of you
Deborah


image-guided surgery
http://www.newswise.com/articles/view/530526/


Holography-guided neurosurgery
three-dimensional images
http://www.holorad.com/
http://www.llu.edu/news/today/sept2100/ch.htm

Voxel Digital HolographyTM System
http://www.ucdmc.ucdavis.edu/news/medicalnews/holography.html

image-guided surgery
http://www.newswise.com/articles/view/530526/


Holography in Medicine
http://www.medscape.com/viewarticle/434432

[CathyE]

I made the subject a bit misleading to make it fit the subject window!

I found an interesting article on ICP monitoring. It also found that the shunt tap test seemed unreliable, giving false negatives.
It is at:
http://www.aans.org/education/journal/neurosurgical/Apr07/22-4-10-1117.pdf

I found it very informative!
Cathy

[Austinsmom]

http://72.14.253.104/search?q=cache:8zzw8ncNkhcJ:www.jkns.or.kr/htm/fulltext.asp%3Fno%3D0042006084+shunt+malfunction+c ause+parkinsonian+syndrome&hl=en&ct=clnk&cd=9&gl=us
shunt malfunction caused parkinsonian syndrome

[Austinsmom]

more on parkinism, mute, Hydro:confused:
http://www.ncbi.nlm.nih.gov/sites/entrez?cmd=Retrieve&db=PubMed&list_uids=3876872&dopt=AbstractPlus

[Austinsmom]

CSF Rhinorrea
http://www.emedicine.com/ent/topic332.htm

[Austinsmom]

here I go....

these are great for new to the Dx of Hydro

http://www.genetic********.org/ws_display.asp?filter=infosearch_results&info_keyword=Hydrocephalus&expand=General%20Information

[Nathan]

I just started a site for people in Central Washington who have hydrocephalus and related conditions. The link is http://s2.excoboard.com/exco/index.php?boardid=27163 Feel free to stop by.

Nathan

[gabrielslife]

Hi to all of you.. I just wanted to share this one..

Gabriel's Life is dedicated to creating education, hope and community for people living with hydrocephalus. Learn about shunts, hydrocephalus in children vs. adults, hydrocephalus stories, and more, you can also read through Hydrocephalus stories from others who have been touched by Hydrocephalus directly or through loved ones.

check it our over here >>> hydrocephalus experience (http://www.gabrielslife.org/)

[CathyE]

This link takes you to the Medtronics site and to the section on the Strata.
http://www.medtronic.com/your-health/hydrocephalus/device/our-shunts/strata-valves/index.htm

[CathyE]

Hyceph-l is a Listserver Hydro.Support Group
which means members' emails are collected there then sent to each member.
I find it is a nice compliment to Braintalk Forums!

The website that shows how to join is
http://www.lsoft.com/scripts/wl.exe?SL1=HYCEPH-L&H=PO.MISSOURI.EDU

To subscribe, send an e-mail message to
listserv@lists.missouri.edu
In the body of the message type:
subscribe HYCEPH-L Yourfirstname Yourlastname

You have a choice or receiving each email as it is processed (NODIGEST) or in one big email after midnight (DIGEST).
*The default is NODIGEST (each email individually)


You send your new emails or replies to:
HYCEPH-L@PO.MISSOURI.EDU

To change your options send an email to the Listserver,NOT Hyceph-L:
LISTSERV@PO.MISSOURI.EDU
(capitals not necessary)
for example:
set Hyceph-l digest
or back to normal:
set Hyceph-l nodigest

or to temporarily stop receiving mail:
set Hyceph-l nomail
or back to receiving mail:
set Hyceph-l mail[/QUOTE]