Useful Websites

[David Hosobuchi]

Use this thread for posting other websites relevent to this forum....:)

[Mayzoo]

http://hope.abta.org/site/DocServer/Cysts3-06.pdf?docID=1221&JServSessionIdr004=zidzj7z881.app5a

http://www.conquerchiari.org/index.htm

http://www.chiarione.org/

http://www.childrensmiraclenetwork.org/

http://www.emedicine.com/radio/topic149.htm#section~introduction

http://depts.washington.edu/neurosur/ptcare/chiari.html

http://www.pressenter.com/~wacma/usdocs2.htm# page for doctors knowlegeable about chiari

http://www.wishesandrainbows.org/

http://www.davidfrim.yourmd.com/ United States renowened Pediatric Chiari specialist.

http://www.medscape.com/viewarticle/405726_4

Hope this helps just one other person. 1.5 years of research bookmarks.

[razzle51]

also www.asap.org

[Mayzoo]

Yeah, I am on that one too--I did not know if this forum allowed links to another, despite the fact that ASAP has invaluable additional resources besides just the message boards.

[LauraL840]

Pediatric Neurosurgery - Chiari Malformation (http://www.portune.com/erin/chiari-info.pdf)

I usually post on the CSF Leak board and occasionally a leaker will have acquired Chiari. I found this recently and thought it was FULL of good information. It's 245 pages long, and although written pertaining to peds, it's great for adult info too!

[Lavandula Canadensis]

support / information group:
http://www.chiariconnectioninternational.com/

a great blog:
http://www.carrieschiariconnection.com/index.htm

this one gives links for chiari and syringomyelia sites and blogs:
http://chiariandsyringomyeliaincanada.blogspot.com/2007/12/nausea.html