Useful Websites

[David Hosobuchi]

Use this thread for posting other websites relevent to this forum....:)

[pamuk]

www.brainandspine.org.uk


from pam from uk

[JulieNH]

http://www.westga.edu/%7Ewmaples/brain.html

http://www.bafound.org/info/links.php

http://www.brain-aneurysm.com/index2.html

http://www.brainhelp.co.uk/

http://www.brainandspine.org.uk/information/publications/brain_and_spine_booklets/index.html

http://www.ninds.nih.gov/disorders/cerebral_aneurysm/cerebral_aneurysm.htm

[Kim/ny]

http://groups.msn.com/BrainAneurysmConnection/

We are a group made up of survivors, emotional survivors and some who are having their aneurysms monitored. With a membership of over 600 and growing, there is sure to be someone who is or has been where you are right now. Whether it's to read and learn... or post with a question or concern, we understand and will help you along this aneurysm journey.

[hstupno]

I just stumbled on this website. It has an actual webcast of a coiling procedure. The man who had the procedure was to be released the next day. It was an unruptured annie. Fascinating!

Click on View Webcast on the left side to watch video. It's over an hour long.

Coiling Operation Video/Webcast (http://www.or-*********/borgess/1122/content/prep.cfm)

[acreasy]

http://www.yougivemehope.com

[snapdragon]

This site may have a rating on your DR. or you may want to post your rating of your Dr. for others (RateMDs.com ) on Goodle it allows patients to rate and read about their doctors.

[earth2000]

Brain Disorders Survivors Meetup Group

Meet with people living and surviving with brain disorders.
Aneurysm, AVM, Stokes, Injury, Tumors, Aphasia, etc.
Family and friends are welcome.

Location: New York, NY
Founded: Sep 27, 2006
Member Fee: none
Rating: 4.75
Members: 27

http://aneurysm.meetup.com/79/ (http://aneurysm.meetup.com/79/)

[hannah]

Hi all,

For those of you (or relatives) who have had a subarachnoid haemorrhage, try the online support group at:

www.behindthegray.net

take care
Hannah

[hannah]

Ok, some of these have been picked up before, but these links are the sum total of my internet research in my 'brains' favourites folder... hope people find them useful.

Annies/SAH/Brains
http://www.avmsupport.org.uk/links.php
http://www.brain-aneurysm.com/index.html
http://www.brainhelp.co.uk/
http://www.basiccharity.org.uk/
http://www.naavm.org/site/index.cfm

SAH Specific
http://www.srht.nhs.uk/patient--visitor-information/services-support/sub-arachnoid-haemorrhage/
http://www.valhennessytrust.org.uk/ Good article on hereditary implications
http://www.brainandspine.org.uk/information/publications/brain_and_spine_booklets/recovering_from_a_subarachnoid_haemorrhage/index.html
http://www.behindthegray.net/home/ Great SAH specific support group

Stories
http://www.westga.edu/~wmaples/brain17.html Some really well written accounts
http://www.differentstrokes.co.uk/ good stories from those who have had a stroke at a young age, a fair amount due to an SAH

Medical
http://www.brain-surgery.us/

Take care
Hannah

[JulieNH]

http://www.emedicine.com/med/topic3468.htm

Take a look.
JulieNH

[rhonda]

Thank you so much for the info. i've only just found out I'm not alone out here.
Regards and prayers,
Rhonda

[earth2000]

Brain Disorders Survivors Group - MEMBERS BLOG

You can become an online member: Just send your email to BrainDisordersSurvivors@gmail.com and register for Google Blog.

http://brain-members.blogspot.com/

Meet with people living and surviving with brain disorders. Aneurysm, Aphasia, AVM, Strokes, Injury, Depression. Family and friends are welcome.

2nd Saturday of the month - Therapy: Play a Game that will learn about each other. Read inspirational or rehabilitation related material. Members: About anything that crosses there mind.

4th Friday of the month - Social Events are to get the Brain Disorders members together.

[JulieNH]

I came across the following web site that shows the circulation pattern of the major arteries of the brain. On the bottom left there is a couple of "Helpful Web Sites" that show the animation of the flow within the circle. Please note that this first page is an actual photo of the Circle of Willis in case you're squeamish.

http://science.nhmccd.edu/BioL/cardio/willis.htm

JulieNH

[Itsybitsyspider]

http://www****sh.edu/rumc/page-1160429743885.html

This is a great link for information on brain aneurysms, as well as treatments

[JulieNH]

From New England Journal of Medicine August '06

http://www-personal.umich.edu/~ahaq/new/cerebral%20aneurysms.pdf

[tg_is_me]

I just found this video on You Tube of an aneurysm being coiled. It is fascinating stuff for those who had this done. I had coiling done in January and my aneurysm was in the same artery as the person in the video. To see this in reality amazes me. I am so lucky that this treatment was available to me as it wasnt' even heard of 10 years ago. To have brain surgery internally is a wonderful step forward in the medical world. The video goes for about 7 minutes.

http://www.youtube.com/watch?v=Mvy8g_oDbbk

Love Tina xx

[ChristineM]

I found this video last week and was amazed as well. This is the first time I'm posting, but I had my aneurysm coiled on Christmas day...some present huh? ah ha ha :) When I saw the video I was like, "WOW, I could actually watch how my coiling was done." Wild - Simply wild!

[JulieNH]

Originally Posted by Suzanne*Canada> This is an important article I didn't want to disappear over time.... JulieNH

***Preclinical Study Links Gene To Brain Aneurysm Formation***

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Preclinical Study Links Gene To Brain Aneurysm Formation

Date:August 7, 2007
Science Daily — University of Cincinnati (UC) neurovascular researchers have identified a gene that—when suppressed or completely absent—may predispose a person to brain aneurysms.

Todd Abruzzo, MD, and his colleagues demonstrated that “knocking out” a gene known as endothelial nitric oxide synthase (NOS-3) in an animal model led to intracranial aneurysm formation in 33 percent of study subjects.
Scientists say this suggests that the gene may play an important role in the development of intracranial aneurysms.
An aneurysm occurs when a blood vessel weakens and stretches, forming a bulge in the vessel wall that can rupture and hemorrhage. Intracranial arterial aneurysms are bulges that develop in the arteries that carry blood to the brain.
Previous studies have shown that variants of the NOS-3 gene are markers for vascular disease. The gene also plays an important role in remodeling of blood vessels in response to changes in blood flow.
“When a vessel experiences increased blood flow, it attempts to reduce the shear stress to even levels by enlarging its luminal caliber through a process known as remodeling. This involves reabsorbing the inner layers of the vessel wall and forming new outer layers to replace them,” explains Abruzzo.
“Although we don’t fully understand the genetic determinants that control an individual’s susceptibility to aneurysm formation,” he adds, “this study is an important clue because it links a known gene with a known function to an increased risk for intracranial aneurysm formation.”
Abruzzo says this study supports the idea that the NOS-3 gene is just one step in a complex molecular pathway that links flow-dependent vascular remodeling to intracranial aneurysm formation.
“Our findings suggest that if something goes wrong in the vascular remodeling process, it could trigger formation of an aneurysm,” he adds.
The UC-led team analyzed 30 female mice bred to suppress (knock out) one of three genes and molecular pathways associated with vascular disease: inducible nitric oxide synthase (NOS-2), endothelial nitric oxide synthase (NOS-3) or the plasminogen activator inhibitor (PAI-1).
To determine whether absence of the genes resulted in an increased rate of aneurysm formation, researchers blocked one of the two carotid arteries that carry blood to the brain. They then examined brain artery samples for signs of aneurysm formation.
The researchers found no indications of aneurysm formation in the PAI-1, NOS-2 or wild type control groups. Mice with the NOS-3 knock out, however, formed intracranial aneurysms.
Abruzzo reported these findings in the August 2007 issue of Current Neurovascular Research.
Collaborators in the study include UC's Ady Kendler, PhD, and Jane Khoury, PhD, Michael Workman, of Springfield Neurological and Spine Institute, Harry Cloft, MD, of Mayo Clinic and the late Robert Apkarian, PhD, of Emory University.
Abruzzo is affiliated with the Neuroscience Institute at UC and University Hospital, a center of excellence that focuses on the main diseases of the brain and nerves such as stroke, brain tumors, brain trauma, Parkinson’s and Alzheimer’s disease, epilepsy, ALS and multiple sclerosis.

Note: This story has been adapted from a news release issued by University of Cincinnati.
Copyright© 1995-2007 ScienceDaily LLC

[JulieNH]

Article: New Study Proves That Minimally Invasive Aneurysm Treatment Yields Successfu

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Press Release Source: American Society of Interventional & Therapeutic Neuroradiology


New Study Proves That Minimally Invasive Aneurysm Treatment Yields Successful Long-Term Results
Wednesday August 1, 10:53 am ET
Findings Represent Strongest Support for Coiling Since Groundbreaking 2002 Trial


DANA POINT, Calif., Aug. 1 /PRNewswire/ -- A new study reveals that coiling, a minimally invasive procedure to treat aneurysms in the brain, is successful in preventing recurrent or first-time bleeding years after initial treatment in those aneurysms considered "untouchable" by the traditional surgical option. One of the most significant findings since the 2002 release of the International Subarachnoid Aneurysm Trial or ISAT (the trial that established coiling as a safe and effective treatment), this new study's scientific value is reflected in its large patient population and length of post-procedural follow-up -- two factors that have not existed together in other post-ISAT studies to date. Results were unveiled yesterday at the fourth Annual Meeting of the American Society of Interventional & Therapeutic Neuroradiology (ASITN) in Dana Point, California.


"This study represents a unique contribution to the scientific evidence that proves coiling to be a viable treatment option," said study presenter Jo Peluso, a neurointerventional radiologist who collected and analyzed the data on behalf of colleagues W.J.J. van Rooij and M. Sluzewski, who have been performing neurointerventional procedures since the early 1990s at Saint Elisabeth Hospital in Tilburg, the Netherlands. "The clinical credibility of any procedure relies not only on the initial trials that may sanction its use on patients, but also - and perhaps equally as important - on those long-term follow-up studies that prove the procedure's success over time. This study achieves one such milestone."

A retrospective analysis, the study includes 154 consecutive patients who underwent coiling over an 11-year period (January 1995 - August 2006) on aneurysms on the tip of the basilar artery, located in front of the brain stem. Comprising approximately 8.4 percent of all brain aneurysms in the general population, basilar tip aneurysms pose particular difficulties as their position deep in the brain makes a traditional, open neurosurgical approach more dangerous for the patient. Coiling, achieved by placing a mesh of platinum wires in the aneurysm (described as a "bulge" in an artery wall), prevents the aneurysm from rupturing, a serious and often life-threatening condition.

Of the 154 patients undergoing the procedure, 114 (or 74 percent) of the aneurysms had ruptured and 40 (or 26 percent) had not. Following treatment, 144 surviving patients received clinical follow-up up to 144 months, adding up to a total of 637 patient years. Angiographic follow-up (actually viewing the site of the aneurysm using X-ray and MRI technology) conducted on 138 patients up to 122 months revealed that 27 aneurysms (17.5 percent) re-opened over time; these patients underwent additional coiling. Of this number, 11 aneurysms repeatedly re-opened and were coiled up to a total of six times. Re- bleeding occurred in only two patients, indicating an overall annual risk of 0.3 percent for re-bleeding after treatment. In all cases, aneurysm size greater than 10 mm was the only significant predictor for re-treatment at follow-up.

As these results underscore the effectiveness of coiling as a treatment option that ensures success over time, Peluso says the study also shows that in some cases coiling can be considered a staged treatment. "Our strict clinical and angiographic follow-up strategy with additional treatment when necessary was effective in preventing recurrent hemorrhage in ruptured aneurysms, or primary hemorrhage in unruptured aneurysms."

Coiling is performed by physicians specially trained to treat conditions in the brain through endovascular (or "through the artery") and minimally invasive means. Coiling and other treatments are achieved by working through a catheter or narrow tube that is inserted into the groin and threaded up through the arteries directly to the problem site in the brain.

Approximately 2 million people in the United States have an unruptured aneurysm. It is estimated that approximately 30,000 Americans suffer from subarachnoid hemorrhage each year.

ASITN members specialize in minimally invasive and endovascular procedures to treat stroke, aneurysms, carotid stenosis and spine fractures. Our physicians have made numerous contributions to the neurosciences including: advancing stroke treatment through catheter based therapy; innovating endovascular coiling for aneurysms; pioneering interventional procedures to treat fractures in the spine; and initiating the first-ever stroke registry to track procedural success in the treatment of acute stroke. More information on ASITN and our members' treatment specialties may be found at www.asitn.org.


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Source: American Society of Interventional & Therapeutic Neuroradiology

[NHDebbie]

Annie's Angels support group is a forum dedicated to helping individuals that have Brain Aneurysms, Abdominal Aneurysms, caregivers of such and also those that have lost love ones to this illness. The group also support the Brain Aneurysm Foundation. *cg24
http://groups.msn.com/AnnieAngels

[kim]

http://groups.msn.com/AnnieAngels

[dawnmn]

Here's a web site with personal stories about brain aneurysms.

http://www.westga.edu/~wmaples/index.html

[NHDebbie]

Here is a wonderful search engine that will actually donate to your favorite charity everytime you click to search. I use this to help out the Brain Aneurysm Foundation which you can type in.
http://www.goodsearch.com/Default.aspx ;)

[NHDebbie]

Awesome website on medical surgical procedures.
http://www.or-*********/

[NHDebbie]

Here is a product made by Nintendo that provides great brain stimulation. NINTENDO DS: BRAIN AGE
http://www.nintendo.com/channel/ds
http://brainage.com/launch/index.jsp

[NHDebbie]

Not sure if I ever posted this here. I purchased this pin with the word "SURVIVOR" inscribed on it. It is a beautiful pin with a burgandy color which represents the Brain Aneurysm Awareness.
http://www.personalizedcause.com/shop/collections/personalized/detail/p_burgundy.html

[NHDebbie]

Please take the time to post a review to each link that is advertising the sale of 3 separate "SUPER ANEURYSM" games.
CLICK ON THE (customer reviews) link and add yours. Unfortunately it will not take if you do not give stars. So I stated "ZERO" in my review. You must register an account in order to participate. (when I posted my first in January, there was only that one in Amazon) Keep it true for the cause!

[snapdragon]

This site http://www.headinjury.com/brainmap.htm the brain is mapped and explains what each area controls and how dammage to that area can effect us . it is for TBI ,an interesting read & answers a lot of questions we have all ask.Like why is my short term memory so bad ? or why can't I find the right word ?

[Chill]

Not sure if I ever posted this here. I purchased this pin with the word "SURVIVOR" inscribed on it. It is a beautiful pin with a burgandy color which represents the Brain Aneurysm Awareness.
http://www.personalizedcause.com/shop/collections/personalized/detail/p_burgundy.html


I really like that idea!!! Think I'll get one myself! I sent an email out to dozens of my family members and friends. My 1 year anniversary for my annie surgery is a few months away. It will make a good 1 year survival gift! Thank-you!

[mjones1213]

Hello All,

I wanted to share some helpful websites. The first three websites are for Californians the last one is for all 50 states! These websites helped me a great deal during my Aneurysm.

http://www.disabilitybenefits101.org/

http://www.calbia.org/index.html

http://www.aneurysmfoundation.org/

http://www.allsup.com/default.aspx

[Maddy]

I so much appreciate all the information gathered here . . . just wanted to say thanks to everyone ;)

~Maddy~♥

[se0001ld]

Hi guys. Im new here. Here's a website I stumble upon, not sure whether it was mention before:

http://www.justanswer.com/medical

They have online doctors available and u can post questions to them. I found it quite useful.