Cerebral Palsy & Fibromyalgia!!!!

[Rob123]

Hi Everyone, I was born with Spastic Hemiplegia Cerebral Palsy on my Left side of my body and recently I was diagnosed with Fibromyalgia.My Doctor told me that my Cerebral Palsy cause me to develop Fibromyalgia and I was just wondering if CP could cause me to develop Fibromyalgia or not.
Any help would be greatly appreciate!!!!

Thank You,
Rob

[MichelleC]

Hi Rob!
I have read in books, and heard here, that fibro often develops as a secondary condition. So I would think the answer to your question is yes.

Michelle

[Rob123]

Hi Michelle, Thank You for your reply!!!! I have been searching the internet but having no luck finding any information on it.

Thank You,
Rob

[Tootsie]

Rob, I think you would find more information by looking under Fibromyalgia, rather than CP. It has been a common thread in this forum and other sources, that fibromyalgia is frequently found as secondary to something else.

Sometimes that "something else," is trauma of any sort, spinal surgery or some other disease, especially in the autoimmune category. Dealing with it, means coping and treating the primary disorder. In addition, alleviating stress in your life, adequate rest and sleep, a well balanced diet, and mild, enjoyable physical activity, makes fibromyalgia a nuisance, not a disability. Cheerio.

[Rob123]

Hi Tootsie, Thank You for your Reply and information!!!!

Take Care,
Rob

[waggytalk]

I have minor CP and was just diagnosed with Fibro about 5 months ago. The doctor said the CP may be the reason i have Fibro.

[jcc]

Is there a connection between severe cerebral palsy and increased gluten sensitivity? (http://www.ncbi.nlm.nih.gov/sites/entrez?Db=pubmed&Cmd=ShowDetailView&TermToSearch=17187621&ordinalpos=1&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsP anel.Pubmed_RVDocSum)

In nine children with severe cerebral palsy (CP), feeding difficulties and poor development of weight and height, laboratory markers for metabolic and enteral dysfunction were studied. CONCLUSION: Four of the nine patients with CP had increased levels of antigliadin antibodies AGA (IgA), a finding which calls for further studies concerning the possible connection between increased celiac markers and CP.

PMID: 17187621 Jan 2007They are just beginning to recognize the many diverse neurological manifestations of gluten sensitivity. One study does little more than put the question out there.

Still... perhaps a longshot, it might be worth asking for an antigliadin antibody test~ as gluten sensitivity is also associated with some cases of fibromyalgia as well. Fibromyalgia and Chronic Fatigue Syndrome (http://jccglutenfree.googlepages.com/fibromyalgiachronicfatiguesyndrome)

These two are personal accounts:
FIBROMYALGIA: WHAT DOCTORS DON'T KNOW OR TELL PATIENTS (http://www.cpmission.com/main/gluten.html)
Is it FMS, CFS, or Celiac Disease? (http://www.geocities.com/HotSprings/Spa/4003/diagnosis.html)




Cara

[allih]

Interesting and in my experience, most likely true. I have been on a gluten free diet for the last three weeks in an attempt to relieve some of my symptoms. I'm not 100% better but I do have more energy and don't feel as bad. I have also cut out dairy and sugar, so I'm not sure which is the culprit or if it is all three. My mother has gluten sensitivity also, so I am leaning toward gluten.

It is worth a try to cut out gluten and see if you feel better.

Alli

[dormguard]

When one has gone through birth trauma and realizes at some point in their lives, (and having been told at the age of 25 that they went through this trauma) that not everything is quite as normal for them as the next person who didn't go through such trauma, is there any way to alleviate the symptoms of fibromyalgia that is connected to mild form of cerebral palsy? I heard that some herbs might help coordination and ease of speech?
I do believe that in a situation such as a mild form of CP and fibromyalgia, that one should try to be as strong as possible and focus on that; not to become distracted or else, they may not be able to do good at their regular job and lead a "normal life;" Does anyone else feel that remaining focused on
strengths...if their conditions aren't too bad, is about the only way they can survive in this world?
dormguard

[dormguard]

I was wondering if anyone has ever heard of a connection between a mild form of autism and a person who has mild cerebral palsy? Both, from what I have read, can happen if a person has gone through a birth trauma...I just haven't heard of a connection , as of yet?
dormguard

[LIZARD]

I was wondering if anyone has ever heard of a connection between a mild form of autism and a person who has mild cerebral palsy? Both, from what I have read, can happen if a person has gone through a birth trauma...I just haven't heard of a connection , as of yet?
dormguard

Autism often results from an underlying neuro condition. My son is autistic and has Chiari Malformation http://en.wikipedia.org/wiki/Arnold-Chiari_malformation, so it makes sense that birth trauma could result in autism, too. (Were you a preemie?)


LIZARD :)

[Nana4&cntn]

I believe a person with any illness or condition should remain as strong as they possibly can. I also believe we should also stay as positive as possible, even during the flares and times feel like they just can't do any more.

When I was working with people with cerebral palsy, physical therapy and strength were very important to mobility. I too believe that birth trauma can cause autism. Doctors tend to focus on one problem without taking in the whole picture of what is going on.

I don't know of any herbs that will help with speech, I do know speech therapy can help trmendously. I am sure something that will relieve mudcle spasms or tightness would help.

Keep researching and check out a University Medical center for the best new research.

[dormguard]

Thank you for replying. I know that the doctors just treat one thing and feel that is it and they don't want to view the whole picture. I tried to speak with my doctor about the way I was born and its affects on me, and he just brushed me aside and wanted to treat me for what I was there for on that day; which was just a physical routine. I was grateful that my physical came out good, but I have to work on it. I just have to focus on being strong, so I can be of service to other people who might need my help and also to do my job so I can make a living. I cannot have any children, but really believe that is for the best anyway. I was born breech birth with the umbilical cord strangling me. Of course, I am thankful just to be alive. Before I knew this about me, I tried to fit in with other people my age and thought I was "normal", even tho' I never really felt that good at all. I guess my parents, thought that there was nothing that could be done, and for me to just "go along", even tho' they knew I wasn't "quite right". Anyway, it worked out for the best and now realize that I have to focus on being strong and not to become distracted by people who I think are normal and feeling well...(not to get mixed in with them, because then I do become distracted and ignore the fact that I do need to be strong and need to work out differently from them). Of course I realize that everyone is physically different , and I do tell quite a few people that , where I work and also when I see them working out at the local gym. Some people, at times, don't take that into account...that everyone is physically and mentally different. I do understand that, and take that into account when dealing with people many times.
Dormguard.

[Stormi]

I'm a little confused now.. I have CP spastic diplegia in both legs. I've been to several doctors over the years and no one can tell me why I have SOOOO much pain. Burning-stabbing-aching-nawing-grinding and the oh so much fun electrical shock that hits
any where anytime... The rummy doc said I _may_ have Fibro but he said I didn't have to come back and sent me to Neuro doc who did a blood test and I'm going to get an MRI with contrast to rule out MS. If the rummy really thought I had Fibro wouldn't he treat me? The Neuro doc said the rummy is the one that would treat Fibro if I really
had it. My pain came on slowly over the years and now everything hurts and I'm so tired all the time. Pain wakes me up at night

The neuro doc said that CP doesn't get worse in the same manner as I seem to be getting worse...

[waggytalk]

Hi Everyone, I was born with Spastic Hemiplegia Cerebral Palsy on my Left side of my body and recently I was diagnosed with Fibromyalgia.My Doctor told me that my Cerebral Palsy cause me to develop Fibromyalgia and I was just wondering if CP could cause me to develop Fibromyalgia or not.
Any help would be greatly appreciate!!!!

Thank You,
Rob

hello!

i have a mild case of CP in my right side. about 5 years ago i started haveing lots of pain in the joints and around them. NONE of the doctors could figure it out. X-rays never show anything (well besides the hip joints are really bad) but doctors beleived i was in pain.

over the years it got worse and worse and it would come and go. Finally a doctor thought it was RA even though the blood work didnt show it (guess its rare but happpens) and he sent me to a RA doctor. The doctor said yes i may have it but he wanted to do a Fibro test and it hurt like crazy..i left in lots of pain and near tears.

he said that Fibro is usually off something else. while he was not sure about the RA (they still arent sure on it) he said it could be off the cp.

after about a year of fighting with insurance about what drugs i could take (seems everything was in "testing" or nto for fibro) i finally got on Lyrica. I'm not sure if it works or not. I notice when i have pain but i really don't notice when i dont (err the brain of mine also is a little messed up hehe) so i don't know if it works or not.

man i can put up with the CP, memory problems etc. but fibro sucks. ..hmm pain in general sucks


hmm sorry for the rambling

[Stormi]

I totally understand... CP is a walk in the park compared to living in constant pain. The Rummy said I _might_ have Fibro but didn't do any tests to find out and quickly sent me to the Neuro doc. I'm waiting for them to call about my MRI head-spine... My docs believe I'm in pain but no one can find evidence except for my hip and the pinched nerve in my C-spine. The neuro doc wants to rule out MS.

[waggytalk]

just posting to see if anything new?

[funnylegs4]

go to the cerebral palsy forum here and ask. They'd know. I think someone there had this actually. I have CP too by the way.

[spikemedic]

they may not be able to do acceptable at their approved job and advance a accustomed life.



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