Useful Websites

[David Hosobuchi]

Use this thread for posting other websites relevent to this forum....:)

[Vickii]

http://www.ninds.nih.gov/disorders/agenesis/agenesis.htm This is a link with information about ACC

http://www.umaine.edu/edhd/research/accnetwork/aboutacc.htm This is a very good online support group about ACC. If you join you will receive a packet with a lot of information as well as a quarterly newsletter.

[acc_angelsaroundtheworld]

This is a quick update to recent information about the ACC Network website link posted here.

The ACC Network was the first place I discovered when my son was diagnosed with agenesis of the corpus callosum as a baby. They are wonderful! The co-founders of the ACC Network are Gary and Kathy Schilmoeller. They have two sons and one of their sons who is grown now has ACC and is high functioning. I had the pleasure of meeting all of them at an ACC Conference. They are very nice people. I even had the pleasure of sitting at the same table for lunch with their son, Matthew, and I got to talk to him for awhile.

The ACC Network recently announced in their "Callosal Connection" newsletter and also in their ACC-Listserv e-mail support group that they have made the choice to end the ACC Network due to funding. The ACC Network has informed me, however, that they still plan to continue the ACC-Listserv e-mail support group and will be updating their webpage to reflect their new changes.

The ACC Network will no longer be mailing out packets of information in the mail about Agenesis of the Corpus Callosum or writing their newsletter called "Callosal Connection"

http://www.umaine.edu/edhd/research/accnetwork/accresources.htm

http://www.umaine.edu/edhd/research/accnetwork/aboutacc.htm

Sandie *Mom to 15 year old Matthew with complete ACC*


http://www.ninds.nih.gov/disorders/agenesis/agenesis.htm This is a link with information about ACC

http://www.umaine.edu/edhd/research/accnetwork/aboutacc.htm This is a very good online support group about ACC. If you join you will receive a packet with a lot of information as well as a quarterly newsletter.

[acc_angelsaroundtheworld]

Below you will find websites with information pertaining to Agenesis of the Corpus Callosum:

The ACC Network:
http://www.umaine.edu/edhd/research/accnetwork/aboutacc.htm

ACC & Me book - great teaching tool for school:
http://agenesiscorpuscallosum.blogspot.com/search/label/ACC%20and%20Me%20Book

ACC Brain Images:
http://www.abc.net.au/rn/allinthemind/docs/ACC_Brain_images_courtesy_Dr_Elliott_Sherr.pdf

National Organization for Disorders of the Corpus Callosum (NODCC)
http://www.nodcc2.org/nodcc2/index.php
their original NODCC website can be found here:
http://www.nodcc.org/index.php

ACC-Angels Around the World: family web pages of kids with ACC, adults with ACC and a variety of information about agenesis of the corpus callosum:
http://members.tripod.com/~scenicbeauty/AngelsAroundTheWorld.html

Agenesis Corpus Callosum Blog:
http://agenesiscorpuscallosum.blogspot.com/

Teaching Resources: input from parents who have a child with ACC about what methods have helped:
http://agenesiscorpuscallosum.blogspot.com/search/label/Teaching%20Resources

Educational Suggestions for Children with ACC:
https://www.nodcc.org/pdfs/Conference_Handouts/educational_suggestions_for_children_with_acc.pdf

Travis Research Institute - Warren S. Brown and his Research Team have been studying the corpus callosum since 1992:
http://www.travisinstitute.org/neuroscience/agenesis.htm

Considerations For Educators Of Students With ACC
This page is written by Mr. McCallum a teacher who has worked with an ACC child in his classroom. He offers detailed and valuable information. The web page version is no longer available. If you would like to receive a copy of this document through e-mail written by Mr. McCallum please E-Mail me: hope@aracnet.com He wrote the following line which I feel is the best possible way to begin to educate any child...

"Finding a student?s learning style is key for the educating of that child."

Sandie *Mom to 15 year old Matthew with complete ACC*