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jhead
06-05-2007, 07:02 PM
For those of you who live in MI, our Governer Jenifer Granholm, has declared September "Chiari Month"!!!!:
Rozia
06-07-2007, 02:02 PM
I thought it was this month

http://www.michigan.gov/gov/0,1607,7-168-23442_25488_43769-168404--,00.html
krashleen
06-07-2007, 02:29 PM
Jhead, how do you go about contacting your officials to get a month declared "chiari month" the ASAP conference is going to be in WA in July and it would be cool to have July named Chiari month.

could you post for others as well?
Rozia
06-08-2007, 04:16 PM
Talk to Devin he was the one that started it . He is sending the article to ASAP for the newsletter,

http://www.devinsdiary.com/
jhead
06-10-2007, 02:52 AM
Hi everyone, I found this info on Devin Kalisz's site. The web address is www.devinsdiary.com. There will be two books forthtcoming, "life with Chiari" and the other on "surviving pre-and and post decompression surgery" Maybe this person can tell you how to succed in recognition in your own state.
LIZARD
06-10-2007, 10:33 AM
There will be two books forthtcoming, "life with Chiari" and the other on "surviving pre-and and post decompression surgery".

Can you tell us where (on the site) to find the info about the books?


'Preciate it!

LIZARD :)
Rozia
06-10-2007, 01:41 PM
Lizard I cant find the books either ???:confused:
jhead
06-10-2007, 06:22 PM
Hi everyone, the name of the site is chiarimalformationsyringomyelianews.com. It is in the May volume where you will see Devins article. Hope this helps!
jhead
06-10-2007, 06:23 PM
Try Conquer Chiari also.
Rozia
06-11-2007, 08:22 AM
that link you put does not work . Plus Devin ( girl or Boy ) said they are not out yet