~I feel like sueing someone~

[Sunshine2]

Or filing a complaint or SOMETHING.....

I had major surgury in March...(gallbladder) I should have had it over a year ago, but due to problems with getting the healthcare, could not.....I was really sick all the time with nausea, etc, I couldn't even eat.

Two weeks before my scheduled surgury, the HUD office tells me they will be inspecting (my annual inspection) a week after my surgury....I called the woman who does my inspection (she never calls back until weeks later) 3 times so I finally sent a letter explaining I needed to have the recovery time for this surgury before having this inspection.

She sent a letter back and to my landlord basically reaming me for even asking and not saying a darn word about my surgury, etc.

I asked my surgeon for a letter so I could get an extention on this inspection, he told me to go to my PC doctor......I couldn't get an appointment until AFTER this inspection and thus, no supportive letter to get my inspection changed.

Well, now I am having complications from the surgury, and I highly, highly suspect it is in a lot of part because I did not get the much needed rest after my surgury (I am the only adult here and had no help from anyone outside of my home)....I was busy cleaning (after being deathly sick, mind you) for an inspection that could not wait until I was recovered from surgury.

I've had an ER visit and several diagnositc tests, I have another one coming up where they have to put me out for it.....

I am upset, to say the least.

Any suggestions?

All this while fighting for Voch Rehab services (they closed my case two weeks after my surgury saying I am not being "responsible" enough) and fighting social security for 6-7 years.

In addition to the pain and nausea I now have, I also am dealing with anemia, chronic pain/fatigue from chronic/severe back problems, asthma, female problems (they wanted to do some surgury for THAT at the same time as this gallbladder surgury, thats how bad this has been).....etc, etc, etc,........

:mad:

[moose53]

But darling, I wish you well
On your way to the wishing well
Swinging off of those gates of hell
I can tell how hard you're trying
Just have that secret hope
Sometimes all we do is cope...
May you dream you are dreaming, in a warm soft bed
And may the voices inside you that fill you with dread
Make the sound of thousands of angels instead
Tonight where you might be laying your head... patty griffin

The wishes I whisper are for you.


BIG HUGS.

Barb http://chocolate-moose.p5.org.uk/MINIS/show-kite.png

[Buttons2]

Sunshine, by the name you have chosen you must be an optimistic person eh? You've been through alot haven't you? I don't know squat about HUD inspections,am guessing it's some kind of renewal thing the gov. decides to do so you can continue to live there? Seems like they would have far more important issues but then again people seem to delight in making life miserable for those in need.

Well, I'd guess by now you know who you can count or or not? Is it possible for you to get an advocate of some kind? You're dealing with alot of health issues, can you talk to a social worker at the hospital where you had the surgery? Even a dimwit knows that STRESS is harmful to your health/recovery. Perhaps you could request an advocate based on the fact that the doctor wants to do even more surgery & you just feel too overwhelmed. You need to get plugged into the system in a positive way.

Do you have a lawyer handling your disability claim? After this many years I'd suggest you switch lawyers!

I'm not very familiar with your issues,so my apology if I'm asking questions you've already answered in another thread.

Just want you to know people do care....HUGS & hang in there! Buttons

[Sunshine2]

So far I've gotten lots of runarounds.......over the years I've been referred to social workers, only to be told that due to budget cuts, no services are available, I also went to the social services at the VA and they told me to just go get a job. They did however, give me some bus tickets one time.

I am still trying to find that advocate. I met with an advocate at DHS and I'm not sure what it is he is supposed to be doing, he hasn't helped me advocate anything yet, he says he helps people get social security tho.

I think he is strictly social security.

I guess I am not handling stress too well, the police even wanted me to volunteer to be the new apt manager here (they have had many problems here which has also contributed to the worsening of my health) I asked for help in moving, etc and was told that there is not that kind of help.

However, if I started dealing drugs, etc and got busted, there would be all kinds of help in moving out of this place.....but since I am not doing any of that, I have to stay here. lol.

Older women with their children are truly at the bottom of the social service ladder, slightly above single men and everyone else is above us, this is why its been so difficult I suspect...we just don't really matter that much.

I just started at this new health facility and it is taking a long time establishing care, been there for oh, maybe 6 months and they STILL do not have my health records from the other place I was at for 6 or more years. I filled out the forms for the 2nd or 3rd time now for them to get them transferred.

This state is the assisted suicide state, human life is not worth much here.

Yes, I am hanging in there....but its been tough. I am hoping the rest of the year will be better than the beginning, I've gone through bronchitis, a concussion, surgury, complications and needing a biopsy too....so, I hope the biopsy doesn't reveal another bad diagnoses.

Cheers.

[moose53]

((((((Sunshine)))))),

I *HATE* that you're having to deal with all this stuff for so long.

I think if you look at all the 'stuff' that you've got going on, it's overwhelming.

I've got an idea. You can just print it out and burn it and then flush it down the toilet if you want. Or, maybe, you could try it and see if it helps at all.

To my way of looking at your situation, you've been lied to and manipulated and put off WAY too long.

It's time to bring out what I call the BIG GUNS -- the supervisors.

Take each one of these 'things' -- medical treatment that needs to be done, situation that has NOT been handle either correctly or at all and write each one separately on a file card.

Now, take each one and do something about it. The medical stuff that's already scheduled, you'll have to hold off on those until the testing is done, then you can throw the card out or cross it off or burn it -- whatever.

The other ones -- the services that you've been asking for for years, the facilitators who have not been facilitating at all <<-->> all of those non-functioning, non-helpful people get a letter to the supervisor -- stamped, certified -- if you can manage to get legal aide to send out these letters on their letterhead -- in the letter you state "I have been asking for x amount of time for this to be handled. It has been put off and put off by Mr. *** and Mrs. ***. I want to know specifically by X date when this matter will be completed. If I do not get a response from you by X date, I will be having my lawyer contact (pick one of these >> [the state agency that oversees your budget, the state senator, the state representative, the local newspaper]."

Sunshine, the sun has been turned off way too long in your life. It's obvious that no one is going to step up to the plate voluntarily and take care of their job. Therefore, you are going to have to start kicking ***.

You have surpassed sainthood, you have earned your angel-wings -- NOW, it's time to put on your ***-kicking boots and DEMAND COMPLIANCE.

I know you can do this. Everybody that doesn't have your future in their hands (paper-wise) can see how competent you are -- that's why the offer from the police. Now you need to make the paper-pushers see that YOU are not going to be pushed off or delayed any longer.

I **KNOW** you can do it. Just break it down -- one thing at a time. BIG HUGS.

Barb

[Sunshine2]

Ok Barb.....I will try, you should see the tons of paperwork sitting around here right now, I can barely wade through it.....my mind is clearer than it was 6 months ago....anyway.

I know I am such a whiner, but like a 12 year old told me on New Year's Eve "YOU ARE A STONG WOMAN" about 5 or 6 times, lol.

[moose53]

Oh, Sunshine,

You are definitely not a whiner.

You've been subjected to unbelievably incompent help on top of medical problems, it's enough to make anyone scream.

Got a t-shirt for ya' --
http://chocolate-moose.p5.org.uk/MINIS/scream-t-shirt.jpg

Sometimes when the piles get too big, everything just gets to be too much.

That's why I suggested small paper (i.e, file card) and one task per card.

Much as I hate to say this on top of all the other 'stuff' you've got going on, **YOU** are going to have to have one more contact with these people -- actually with their supervisors.

I've seen examples of this is my own life. People that get sick are just fed up with procedures that don't work and people that don't do there jobs. Sometimes, you just get sick and tired of everything. My pain management doctor -- the director of the whole pain management center at one of the top teaching hospital in Boston -- rude, crude, short, not very pleasant person, didn't listen very well either. I talked to my primary care physician (my old one) -- who was the director of the women's health centre. Next time I saw pain management doctor -- totally different person. Takes time to actually find out how I'm doing. Treats me like I have brain. Discusses things with me.

My plastic surgeon. I was having trouble driving with droopy eyelids. Had a really great plastic surgeon do the procedure. When I tried to make an appointment to get the stitches out, I ran into his "assistant/office manager" -- rude, short, abrupt, kept losing my record, didn't return phone calls. I just showed up to get the stitches taken out -- because you can't keep them in forever and she wasn't returning my phone calls. She yelled at me. I stomped right over to the patient ombudsman's office -- she made a phone call, I got my stitches out, and I got a phone call later from the doctor with an apology.

It works. But, when you're sick and exhausted, you have to take BIG things in real small 'nibbles'. And you have to bring in the BIG GUYS to help you.

Oh, I got a great filing system for you, dump all those papers into a great big trash bag, put a label on it "back-story 2007" and shove it in a closet somewhere. Mountains of stuff are overwhelming. Take only one file-card out of the drawer or desk or file cabinet and work on that one thing until it's done.

The feeling of accomplishment helps you to move along a little bit further :D

You must be talking about your kid. I get more advice from my son. He's been smarter then me since he was *6*. I've given up trying to surpass him. I've finally figured out he knows what he's talking about.

Besides, he's probably one of those 'teachers' that The Universe keeps sticking under our noses when there's a specific lesson that we haven't "gotten" yet :D

I'm still learning too :p BIG HUGS. Sleep well.

Barb

[JAVISI]

Sunshine,
I was hoping things were going better for you but it seems like when it rains it really pours. I know that it is hard to keep a positive attitude in the place you are at right now! When I am having a hard time I end up on this site! Somtimes venting really does help. I have always come to my side when I am dpwn. They might not have the answers but they reach out just to give you a little inspiration and it helps knowing I have people to talk to!

I wish I had the answers for you but unfortunatly I don't. I agree with Barb, it is the sqweeky wheel that gets the grease! Complain! You have a right too! Try to tackle one thing at a time. I often get overwhelmed and sometimes I need help to prioritize and start there and then when I am done with that problem I move on to the next! It is too hard to think about so many things that need done!

Thinking of you! Javisi;)

[Buttons2]

Sunshine, can I assume you have a child in school? If so, make an appointment with the school counselor,give a brief background of your condition & the brick walls, ask for help-a referral to someone that will CARE what is happening to a single mom. Say your situation affects how well you can be a mother!

Idea 2, in my own experience getting health records transferred-do it yourself. Office staff seems to be paid to gossip these days & ignore the patient. Get phone/fax numbers of every office that has a file on you. If you drive,go there & sign a release form to get your records,I find that a fax works quicker but then I don't drive. Tell them you will be back in ***x number of days to pick up the file,sit in the reception room & go through the file before you leave to make sure EVERYTHING is in it,doctor's notes,lab results,etc. You have a right to these files,if anyone tries to block you,threaten to report to gov. (sorry, I forget what the agency is,HEPPA? or some such thing).

Realize this is gonna add to your paperwork,but believe me these files will be an eye opener to you! Might be better than reading a horror story:eek:

Don't even bother with the front desk people. Deal directly with the top supervisor! Every office should have a manager or supervisor.They are fully aware of these federal laws & will hopefully get you your files pronto. You can get any MRI & xray films also.

HUGS,Buttons