Looking for feedback & experiences regarding Chiari

[Jenelle's Mommy]

Hi Everyone! I'm usually a regular at Child Neurology and have a child with epilepsy- I see some familiar names here. HI!

My Husband's Brother and wife are pregnant, and there was an abnormality found on her 17 week ultra sound. A second ultra sound confirmed a "malformation of the spine and cerebellum" - they have not told us the official name of the problem and are awaiting an MRI next week. Googling this has led me to find Chiari.

It seems in reading about Chiari, there are varying degrees. The individuals that seem to have a "normal" (for lack of better word) life seem to have found their Chiari by accident. I'm curious as to what the prognosis and lifestyle is if Chiari is found during a pre-natal ultra sound. I assume it would not be the "type one" type of Chiari, and that there may be other issues to deal with. Also, are seizures an issue with Chiari?

Please feel free to lend me your thoughts and experience. I appreciate the feedback. Thanks!

Kelly

[Rozia]

This is a good article from ASAP. www.asap.org , also Dr. Batzorf in California is the Chiari expert in your state .
http://asap.org/articles/main.html

Ulrich Batzdorf, MD.

http://neurosurgery.ucla.edu/Faculty/Batzdorf/Faculty_Batzdorf.html
Professor of Neurosurgery and Director of Spine Surgery
http://neurosurgery.ucla.edu/Programs/
David Geffen School of Medicine at UCLA
Los Angeles, California

another excellant site is
http://health.groups.yahoo.com/group/ChiariConnectionInternational/

[Rozia]

here is an excellant video




http://www.chiaritvspecial.com/wasp/Chiaristream.html

[Jenelle's Mommy]

This is a good article from ASAP. www.asap.org , also Dr. Batzorf in California is the Chiari expert in your state .
http://asap.org/articles/main.html

Ulrich Batzdorf, MD.

http://neurosurgery.ucla.edu/Faculty/Batzdorf/Faculty_Batzdorf.html
Professor of Neurosurgery and Director of Spine Surgery
http://neurosurgery.ucla.edu/Programs/
David Geffen School of Medicine at UCLA
Los Angeles, California

another excellant site is
http://health.groups.yahoo.com/group/ChiariConnectionInternational/


Thank you for the links. Please let me clarify... most of these links seem to discuss a woman with Chiari who is pregnant - our circumstances are that the fetus possibly has a Chiari malformation. I was looking for information about prognosis for the baby.

Thanks again!

[Rozia]

duhhhhhhhhh sorry . Look here :
http://scholar.google.com/scholar?q=unborn+fetus+and+chiari+malformation&hl=en&rlz=1T4GFRG_enUS222US222&um=1&oi=scholart

[Jenelle's Mommy]

duhhhhhhhhh sorry . Look here :
http://scholar.google.com/scholar?q=unborn+fetus+and+chiari+malformation&hl=en&rlz=1T4GFRG_enUS222US222&um=1&oi=scholart

Thank you! :)

[Rozia]

Here are some more excellant videos on Chiari from TCI

http://www.northshorelij.com/body.cfm?id=6456&oTopID=6456&PLinkID=6407

[LIZARD]

Kelly...

Could you get you BIL and SIL to post (or let you post) the MRI here (or even PM it to me)? Of course, I'm not a doctor, but I might be able to give you something to go on.


Just a thought...

LIZARD :)